METAPLASTIC-A rare breast cancer at aged 33!!

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Hi all,

Following my WLE last week I had an appointment with my Breast Surgeon yesterday and was told my tumour was Metaplastic. This was the first time I’d ever heard the word. I am now awaiting an appointment with my Onc for a fuller explanation of what Metaplastic BC is. I’ve already had chemo 2xEC and 4xTax, moving on to Rad’s in about six weeks.

It’s been interesting reading the posts here, thank you.

Libby x

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Hi libsue, sorry to hear you’ve just been diagnosed with this type of breast cancer&really hope u get any questions u want answering from your onc. Please feel free to contact me, I’m more than happy to try and help u. Wishing u all the best&like I’ve said already u may like to join the facebook group as there’s lots of lovely ladies in there.

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Hi Dulcie and Libsue, just adding to what bigbear has said. The FB site is really friendly and there’s always someone who’s got helpful advice from experience about treatment etc for MBC.

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giving this thread a bump

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Hope all you ladies who have commented on this thread are doing ok. Xx

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Hi everyone,

I’m feeling more relaxed now. My Onc explained that though little research has been carried out on Metaplastic BC, the chemo I had (tax) plus the WLE gives me as a good a chance as anyone with TNBC.

I hope he’s right!

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My Onc is of the same opinion, i had dose dense AC and Paclitaxel which i gather is what they give in USA as well. I hope you are all ok! Lou

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Hi ladies i hopefully start chemo tomorrow…only now a blip as OH has a cough and cold…so fingers x…
Good luck to you with your treatments…and must keep this thread going!

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As I had chemo first followed by a lumpectomy my Onc wasn’t aware my tumour was metaplastic, though he did know it was TNBC.

What chemo regimen are you having Dulcie? Good luck.

I start rads on Thurs.

Libby

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Hope everyone going through treatment r doing as well as they can. Sending best wishes to u all. Xx

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I am 38 and was diagnoised with Metaplastic Breast Cancer,triple negative 3 weeks ago. I am having surgery to include mastectomy and removal of lymph glands on the 24th May. Just to confuse matters last year was diagnoised with nuro sarcadosis basically again a very rare condition - basically a non cancerous brain tumour on my piturity gland and englarged lymph glands in stomach and chest. my parents have been away and are due back on saturday - which is when i have to tell them whats been going on as they have no idea.
Had my pre op assesment on monday - got my “comfy” but i refuse to touch it or look at it - have hiden it in a draw - all seems a bit unreal at the moment

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Hi Krissel xx how are you now? and where have you gone too! Please PM and the other ladies on this thread…i am having a masectomy in July…
Dulcie xxxx

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Bump

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Hi krissel, just wondering how u are getting on since u had your op? hope things went as well as they could for u. Feel free to make contact with any of us if u wish. Xx

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Amore, how r u doing?Hope u are coping ok with things.just Wanted to wish u good luck with your op in july. xx

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Hi Bigbear thank you for your good wishes…xx We have more dreadful worries now …my OH is not well and we didnt realise just how unwell he really is…Tests for him hopefully next week…

Dulcie xxxx

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So very sorry to hear your OH is very poorly…life is so unfair at times but I hope you continue to try and stay as positive as you Can. Xx

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Hello Heidi00123

Welcome to the forums. I’m sorry to hear of your diagnosis, the first few weeks are always difficult when coming to terms with your diagnosis and treatment.

As well as the support you will receive on the forums you might find it helpful to order the BCC resources pack. It has been specifically designed for those newly diagnosed and contains information to help you understand your diagnosis, test results and the various treatments available. If you would like to order a copy just follow the link bellow:-
www2.breastcancercare.org.uk/publications/diagnosed-breast-cancer/resource-pack-primary-early-breast-cancer-bcc145

You may also like to talk things through with one of the helpline staff, they are there to offer emotional support as well as provide information. The free phone number is 0808 800 6000 and lines are open 9-5 Monday to Friday and 10-2 Saturday.

Best wishes

June, moderator

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Keeping this going…hi BigBear how are you? I am off to the Royal Marsden…i also have a ‘spread’ too!
I hope you are doing well?
Dulcie xxxx

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Hiya ladies, my post didnt come out, I too have MBC, age 32, start chemo Wednesday, get in touch xx