Hi Mo
All the best for tomorrow I do hope it works for you. You may find the rads tiring so thankfully you have someone with you. Nothing is pleasant is it but it’s all worth a try I am waiting to hear your results.
The saliva test sounds abrilliant test lets hope it does become a reality here.
I shall be thinking about you tomorrow xxx:heart:
Dear Julia thankyou for your kind words I feel a little embarrassed I think we are all champions fighting to stay positive with an incurable decease. I salute all of you that continue to work while struggling with se of treatments. We are all there when someone needs reasurance and advice I wish I could be more knowledgable on some medical terms
Dear Mo How far do you travell to the hospital and which hospital are you in. I’m glad you have been able to secure a parking permit the barcode is new to me. I hope you have not had any se from the rads but it’s all in a good cause.Sending you Hugs for Monday.
Sending Hugs and love to all our skinny friends. xxx
Hi Marie
Mo’s experience is a little different to others on this site. It’s true it can come in different forms but ours are like chicken pox spots red but clustered together in one area to begin with usually around the tumour area mine were under my primary effected breast where the secondary tumour decided to grow on the chest wall there were 11 to start with. Now they have spread across to the cleavage and upper stomache but they are smaller and staying quiet proberly due to the capecitabine. My second lot were like little bubbles I couldn’t have radiotherapy because I am already scarred from the primary in 1996.
But if you have something that worries you it is always better to get it checked out as Mo has done. I do hope it gives you a better idea Marie if you google it they have images. It’s cutaneous mets.
Take Marie xxx
I have not been following this thread because I felt I had nothing to contribute as cutaneous mets was outside of my experience with breast cancer. It’s funny how the passing of years can dull the memory - or has ‘chemo-brain’ got something to do with that lol! But when I was looking at it yesterday it suddenly struck me that I have been incredibly fortunate to have escaped the awful time that some of you have experienced with this. Back in 1998 (I think) I had an appointment with my breast surgeon for a check up after my first mastectomy. He seemed to be unduly concerned about a few of what I thought were flea bites (yuk). I had a couple of persian cats and we live in the country and these were an inevitable part of what ‘goes with the territory’. If he had not acted so quickly and what I thought was very drastically with the situation my story would be quite different. He immediately did biopsies on 3 of them and sent the tissue off the be analysed. It came back as cancerous and my next appointment was with himself and a plastic surgeon. The op they did was a VRAM which is similar to a TRAM but vertical instead of horizontal cut. He had to remove a huge area over my chest wall down to the ribs - thought he might have to remove some of the ribs if it had got into them so you can see why I thought it all sounded quite drastic. I hadn’t realised the implications back then. I suppose there wasn’t so much information available and we didn’t scour the internet as we do today (was it around then?). It had happened because my first experience with bc was quite a large tumour in the breast in 1990 which had responded so well to chemo & rads that it wasn’t visible any more so I did not have any surgery then. When it recurred in 1997 I kept getting told it was just hardening of the breast from the rads but I was convinced the bc was back and by the time I convinced them it had spread throughout the breast tissue and I had a mastectomy but there were still some cells left in the skin around the mastectomy scar. Those ‘flea-bites’ were the first sign of skin mets starting up and I am so thankful for my quick-acting breast surgeon. Sadly he has been lost to us as he too became a victim to cancer.
Obviously from your posts they can present in different ways but anything appearing around the breast area needs investigating, and fast. Redridinghood posted wise words when she said GPs know nothing and to insist on seeing a breast cancer specialist.
I am struggling to keep my eyes open now so will say goodnight. I hope for all of you that the treatments you are on will bring good results.
Dawn
xx
Hello all,
You will have finished your rads now Mo, hope you have good results. I had 5 treatments a year ago purely palliative and it did help, as you must have been told the effects get worse before they get better.
My mets started by looking like little lumps under the skin which eventually broke through, to start with they were completely colourless. Seems we do all have different experiences with how they present.
Dawn nice to hear from you, another long term surviver like myself.
Well done Melrose for being acknowledged as being so supportive, you always seem to know the right thing to say.
Been to hospital today,told onc.what a rough week I’ve had and she’s given me this week off with a view to having a break once a month. Done 12 weeks now every week, would be nice to have a week to look forward to.
Hope everyone is enjoying the sunshine it has certainly been in short supply this winter.
Take care.
Jan
WOW girls thankyou so much for sharing your stories
Dawn I always find your posts so interesting and informative I have valued them since I was dx with secondary 3 years ago. You have been through so much and I wish I could have had a onc like yours. I find I always question how good mine are I have had 3 different oncs with lots of registra’s helping them if you count the one in 1996. Your longevity is certainly something for the younger ladies who have the misfortune of getting secondary cancer to have hope for years to live with it. Thankyou. :heart:
Lynn your input is also valuable your story of your skin mets maybe it wasn’t like mine but it is still important for others to read and belongs in the skin met section.
Janice if it wasn’t for you this thread would not have been so good Ladies like Bumpkin, DBNO Stresshead have all helped to keep it going and give good advice anyone I have missed I am sorry.
Now we have Mo with a different experience with her story. Lets hope this thread helps others to feel they are not alone and to check everything unusual around their tumour scars or areas
Love to all xxx
To all who have had contact with Wolfie in the past. Sadly she passed away on 29th January. The enemy got into her brain about 15th and was very quick. We had her funeral today so I thought you might all like to know. She had headaches for about 2 weeks before she went into hospital but refused to go and get it checked. So ladies if any of you get headaches don’t wait till it gets bad. Only rads might help if treatment is early when pain starts. Best wishes to all Wolfies husband.
Thank you Wolfie’s husband for letting us know.
I was so excited to see her name on our thread after not hearing from her for quite a while but now I just feel so shocked and heartbroken. I thought/hoped she was just putting all her efforts into family life and getting on with things.
She loved her boys so much; it was very evident in all conversations with her. All she wanted to do was to be here for them and it’s so unfair that she can’t do that. I’m just pleased that she did so many wonderful things to create lovely memories for them. I hope they can draw some comfort from that.
X :womansad:
Downbutnotout. Thank you for your sentiments. We were hoping for another 12-15 months. We had a list that we were going to do together. Now I will be doing them with the boys to the letter of that list. Hope you are okay. Corinne didn’t say much about what she put on this forum. Mick
Hello Mick - yes, I hoped she would get much longer but it’s such a cruel disease. I had some private correspondence with Corinne after she had some issues over whether she was getting the right treatment. She firstly sought help and advice on this Forum thread and then offered support, advice and friendship to the other ladies, and she liked to tell us what she’d don,e and what she planned to do, with her boys. Her enthusiasm for her family shone through in all her posts on the Forum and in private chats. I’m so glad you’re going to do the things on her list with your boys.
Best wishes to you and your boys for the future. I know she’ll be very much missed on this Forum.
X
Dear Mick
Thankyou for letting us know about Wolfie Corinne I was so shocked to see your post. She was so loved by all and we did not know she was so poorly. This rotten decease is so cruel.
We admired her so much for wanting to spend as much time with her two boys. She wanted them to have as many memories and I think she gave them that especially the trip to Euro Disney at Christmas I’m only sorry she didn’t have the chance to do more.
My commiserations to you all at this difficult time may Corinne as I first knew her R.I.P xxx
Thanks to all you ladies for your kind thoughts. But don’t forget if you get headache for more than 24 hours get it checked and don’t have no for an answer, especially if you have TNBC. I probably won’t be back on this site. So good luck and love to you all from Mick, Bryn and Kaidan. XX
Hi all,
We are really sorry to hear the sad news about Wolfie, she was a valued and supportive member of our forums and she will be missed.
On the behalf of the moderation team at Breast Cancer Care we want to offer our sincere condolences to Wolfie’s friends, family and all that knew her.
If any user wishes to talk, our helplineis available at 0808 800 6000 to offer support.
Best wishes,
Lizzy
OMG…i cant believe what i have just read abot Wolfie.
I havent posted for a while (will catch up soon) and this was such a shock. Corinne was my ‘soul buddy’ as we seemed to be going through nsame things at same time. She was a tower of strength and she never ceased to amaze me with her zest for life and her love for her precious boys. I too had an ‘inkling’ when her posts dropped off but also thought she was just sorting things out and spending time with the boys. I never realised things had got so bad and has someone else has said it just brings it all home. My heartfelt thoughts go to her family…she was a real inspiration and deserves the pride you all have for her. xxx
Hi Girls
I have found it so hard to accept losing both Belinda and then Wolfie they were part of our little gang and will be missed so much. There is a dedication thread in the dedications and remembering others at the bottom of the page.
I hope you are both doing ok and all the others on this thread
Love xxx
Hello ladies
I’m so sorry to be the bearer of more bad news but Bumpkin sadly passed away on Monday evening. Her husband said she remained hopeful and positive to the end and said she always maintained she was ‘living with cancer’, not ‘dying from it’.
I know she was a tremendous support to all the Forum ladies, particularly on our thread. To me she became a good friend. We corresponded privately, weekly, for the last 18 months, and it was because of her advice and support that I gained a second opinion and am here now, currently enjoying my life. She was a lovely, kind lady who tried so hard to remain with her husband and son.
I’ll post on the dedications thread as well.
Oh no Bumpkin was a vital member on here she was a lovely person who gave me so much help. I have missed her so much these last few months. First Belinda then Wolfie and now Bumpkin our little gang is disappearing how it brings it home what a dreadful decease we live with.
My heartfelt sympanthy to her husband son and family and friends.
Dear DBNO
Thankyou so much for letting us know about Bumpkin xxx
Hi all,
We are very sorry to hear about Bumpkin passing and behalf of the moderation team we offer our sincere condolences to her friends, family and all that knew her.
She truly was an amazing support to so many women on this forum and I am sure she will be deeply missed.
If you ever want to talk our helpline is here to listen and support. You can reach it at 0808 800 6000.
Best wishes,
Lizzy
Ladies (and BCC) I will pass on your condolences to Bumpkin’s family. Her husband said if I wanted to send some words about her he will read it out at her funeral on the 22nd. I thought I’d say something from myself but will also write how much she meant to you all - though I have already told him how much she helped us.
Marirose, I know just what you mean about it bringing it home to us. Our world has a large void without Belinda, Wolfie, Bumpkin and all the other ladies we’ve got to know and care about on this Forum.
Sending you all a big hug.
(((((((((((((((((((x)))))))))))))))))))))