Mets in Brain Fluid
Mets in Brain Fluid Hi all,
I havent written for a while as I have been on a high since I got married in May, which was seriously the best day of my life ever! I dont know how I managed and wish they could bottle that excitement feeling as I reckon that would put all our cancers in remission for a long while!!
However we cant expect things to go so well for so long can we? Yesterday I was told the Mets in the lining of my brain has thickened, up till now this has not caused me any problems but now the headaches and other symptoms are taking its toll, its not in the actual brain itself but they are talking of Whole Brain Radiation or a chemo which is injected straight into the fluid which Im dreading if that is the case, I shall find out tomorrow.
I just wanted to know if anyone else has their secondaries in this area, I feel ok mostly and once on pain killers feel fine just tired but not sure how to take this, it seems such an unusual place to spread?
I have had it in my bones for 3 years too but this, Im not sure how to take.
Any advice would be much appreciated
Thank you
love LaraC xx
Hey there
Am really glad to hear your wedding went well!!!
I keep up with your posts and many others - I rarely respond just take yours and many others great advice!!!
My mum’s cancer has come back in exactly the same area (i’d never heard of this kind of spread before) - she was diagnosed in April and has been first put on oral chemo that did not quite agree and then she had her first new one today (Vinorelbine) - she hasn’t been offered WBR not sure the reasoning behind this other than it is in one place and isn’t giving her any worries.
I can tell you that her headaches were really bad a few weeks before they discovered it but touch wood she seems to be going great and hasn’t had any issues with it (no pain or dizziness) the onc is very optimistic so we just go with that!
Hope this reassures you a little I know how horrible it is to get news like that when you think all is back on track - but I can say me and mum manage to travel and have great craic (wine always helps!!).
I hope all goes well for you and i’ll be thinking about you.
take care
Tabbsxx
Thanks for your quick reply Tabbs, I really appreciate that. To be honest it seems such an unusual place to get this spread I wasnt expecting anything.
In all honesty the headaches, the dizziness and now nausea I get is really getting me down and Im off to the hospital for a further MRI on my spine to see if its in my spinal fluid as well. Im really so very tired of all this and your email did give me some hope. I shall ask about vinorlebine today too.
I really hope the chemo works well for your mum and wish you both the best in this roller coaster journey we’re on.
Take good care
love Lara xx
hi Lara
No probs I know what a horrible time this is (i could use worse words for it mind you!!) I can only see it from the outside as it’s me and mum in this we have no other family bit it is hard.
At the beginning and still sometimes she gets a bit quesey and dizzy in the morning but to be honest I think its also the fatigue and stress of having to go through it all again that pulls you down.
It terrified us when we first found out as we had been told by a doctor in the hospital (whom we don;t see anymore) that it was just a cyst and nothing to worry about … so we didn’t and then the news came!!!
I can say that mum is nearly three months in and it seems ok she had a week on xeloda but came off due to major allergic reaction which they think did great things for the cancer but nearly finished her off!!! but yesterday as I told you was put on the vinorelbine and given loads of anti sickness and was out shopping today which is pretty good.
By the way since diagnosis we have been to Dublin, Fermanagh and been given ok to travel to Italy so it ain’t all bad!!
I really do wish it all goes well and i’m always on here having a nosey so will post and look out for you!!
take care
Tabbs