I finished my rads 3 weeks ago i had 21 of them which was all ok, but i’m a little fed up with my hospital i’ve had a bad back since March after a fall down the stairs all the way through my chemo the pain it was causing me was put down to the side affects of chemo so i put up with it with the help of Tramadol (which i hate). After i finished my chemo at the end of July the pains were still there i gave it a few months thinking perhaps it is the side affects, before i started my Rads i went to see a Osteopath who thought i had twisted my pelvis and twisted my neck so he started working on my back after 3 sessions with him the pain was getting worse so he wrote a letter to my doctor suggesting they look into more, so i had a MRI which came back clear no problem with my pelvis i had a couple of protruding discs in my neck but nothing to cause any worry or pain. Went to see my onc on Weds and she was quiet concerned as i have limited movement in my legs and back and my right leg has beginning to shake my ankle is always swollen i’m having sleepless nights because my leg goes dead. but she spoke to my onc and he wasn’t to concerned and advised me to take my tramadol along with neurfen and paracetamol and he wants to see me in a months time he seems to think i have nerve ending damage and sometimes it gets worse before it gets better. just feel really let down and they dont seem to understand how much pain i’m in.
i don’t mean to moan because i understand i.m lucky ive been given the all clear but i just FED up with being in pain…
Am i alone or has anyone else had these problems xxx
Whilst not exactly the same thing as you I am in a similar situation. Shortly after being discharged from a spell in intensive care during chemo (long story for another day!) I fell down the concrete steps outside our cottage whilst struggling up them with the aid of the two walking sticks I left hospital with. The end result was 3 cracked and 2 broken ribs on my treatment side and radiotherapy was an absolute nightmare because of the pain. Nearly 6 months on and I am still in terrible pain which no one seems to want to do anything about. I was on Tramadol but had to come off it because it was interfering with my epilepsy medication. Since then the only thing I’ve been allowed is very strong anti-inflammatory drugs, which sadly don’t do the job. I am going back to see my GP to see if I can get a referral to a specialist pain clinic and it might be worth you seeing if you can do the same.
We’ve been through so much with active treatment that ending up like this seems so unfair doesn’t it? I do hope you can get something sorted out as being in constant pain really does diminish one’s quality of life.
I.m sorry to hear your suffering as well, all they keep saying each month is give it another month then they will refer me to a neuropath doctor but month by month my pain is getting worse, i hope you get your
referral sorted out.
I just get fed up because i should be happy that ive finished all my treatment and got the all clear but im just not happy at all and i really want to be…
Commiserations for you being on Tramadol, I asked to be taken off it in hospital 2 days after surgery as I felt like a zombie and was staring into space. Unfortunately, I had to go back in it as I was in extreme pain on Taxotere. The combo of Tax/Tram wasn’t a good one for me and I was often asleep 16 hours a day with severe fatigue. I think it’s one of the worst painkillers out there for making you sleepy, I can honestly say I couldn’t keep my eyes open.