Hi everyone, looking for some advice or people with similar experiences.
Was diagnosed two weeks ago withgrade 1 invasive ductal cancer, ER positive and HER 2 negative. Had MRI yesterday and they said they have found 5 masses ranging from 5mm to 15mm. Have to now have another biopsy with a 3D scanner. Has anyone else had this and what was your prognosis?
I am all over the place with this now so any words if wisdom would be greatly appreciated xxx
@tryingnottogoogle Similar happened to me.. mammogram and ultrasound showed a grade 2, 21mm invasive lobular tumour - MRI revealed 3 tumours - 24mm, 15mm and 10mm.
This didnât change my prognosis at all, and it wasnât more concerning to my medical team - however, it did mean a mastectomy rather than the original lumpectomy I was expecting, which was upsetting at the time.
Try not to worry too much about your prognosis- itâs unlikely to have changed, and primary breast cancer is treatable. Your team will look after you 
Speak with your BCN if you have any questions and need reassurance.
Sending hugs and lots of love 
xx
I should have also said that my oncologist doesnât give stats, as weâre are all individual and they mean nothing to her. Despite a fair amount of invasive cancer, I got clear margins and apparently my prognosis is excellent. Iâm more than happy with that! 
Thank you so much for replying. You have instantly made me feel better and I am so grateful!! It is so hard because the initial news was just sinking in and now I am trying to process this next bit. Am petrified that they might be higher grade cancers than my initial diagnosis and am just a bit scared. How are you doing and how was your recovery after the mascetomy? Hope you are doing really well and thanks again for replying xxx
Iâm 2 and a half years out and doing really well thanks. I had a DIEP flap reconstruction (with addition of small implant) and reduction on good side - so a lengthy recovery⊠but it wasnât as awful as Iâd imagined at all, and is a distant memory really. I suffer with various side effects of letrozole - which is the oestrogen blocker, as I was also ER+ - but nothing I canât live with. I was 50 at diagnosis, so you may be younger and will be more likely be prescribed tamoxifen if you are.
Your mind can take you to some dark places, and the waiting for results is the hardest time I think. I wish you all the best, and really hope things go as smoothly as possible for you. This forum is great to offload on - we all get it! 
xx
My initial lump seemed to appear suddenly and be almost the size of a satsuma! Turned out to be two lumps and a lot of swelling. In terms of clinical staging itâs the size of the largest lump and whether the lymph nodes / other nearby structures eg chest wall are involved that determines the stage. The grade is how abnormal the cells are with grade 1 being the least different from healthy breast tissue. Thatâs determined from the biopsy and I donât think it would change unless they biopsied other tumours and found them to be a different grade. I ended up diagnosed with triple negative, grade 3, mine is difficult to measure but the largest dimension of the bigger one is 5.8-5.9mm plus a 10x8mm little one next to it and one affected lymph node. Prognosis with latest treatment is fairly positive and the chemo seems to be working well so far (triple negative gets chemo first to avoid spread and test how effective the chemo is to judge risk of recurrence). I think itâs possible that your surgical choice may lean towards mastectomy and not just removing a single lump but that your overall prognosis sounds great. If you have no lymph nodes involved then you sound like stage 1-2 and anything under 4 is considered early. Hope you can find some relief and reassurance x
I know itâs scary, but I think it is relatively common to have more than one tumour. My initial diagnosis was a 17mm tumour provisionally classed Grade 1-2. MRI found more stuff and I ended up with a couple of tiny Grade 1s and some intermediate DCIS too. My main tumour ended up classed as Grade 2 when I got my final results. Finding extra things frightened me at the time, so I can understand how you feel, but none of this changed my stage, treatment plan or prognosis which is deemed to be good. I had a lumpectomy, radiotherapy and taking tamoxifen for five years. x
Hi @tryingnottogoogle i had the same mammogram picked up one tumour MRI picked up another two smalller ones, I didnât have anymore biopsies just another ultrasound with the consultant which I found strange, anyway my surgery was just changed from lumpectomy to mastectomy which was 6 weeks ago and have recovered really well 
@tryingnottogoogle i had the same in that they found an additional tumour on an mri scan in addition to the 2 we knew about. I had the 3d mammogram and another biopsy and all were lobular bc. Because they suspected there would be more cancer between the tumours I had a mastectomy in July. It turned out there was nothing in between but I am happy with the decision now and love my new diep boob. Iâve been back to exercise since 1st November and doing well now. Best of luck with your treatment plan and recovery x
Am so glad you are doing so well and thank you again for your support. I am 44 so will def be tamoxifen. Waiting to hear now if itâs lumpectomy or masectomy but I donât care so long as I can get better! 3D scan with biopsy on Friday. Scared but you have made me feel SO much better- thank you 
xxxx
Thank you for replying it sounds like you are doing amazingly. Hope the chemo continues to go well for you. Think you might be right re the masectomy for me but BCN says it wasnât definitely the case but who knows?! Itâs such a rollercoaster. So far the ultrasound and the MRI have not shown any abnormal looking lymph nodes so am holding onto that. Thanks again for replying and good luck with your treatments. Keep me posted
Canât tell you how reassuring this all is. Thank you definitely think finding those âhidden extrasâ is really scary but I guess it means they know what they are dealing with. How are you doing after treatment? Hope things are going well for you and thank you again
This is really helpful as I honestly thought last night I was a totally rare case with them finding more things! But it sounds pretty normal. Sounds like you are doing really well after your masectomy and hope that continues. Thanks so much for replying
Thank you for reassuring me and it sounds as if your recovery is going really well. Hope this continues. Ace you can get back to exercising not sure if I will be masectomy or not yet but stories like yours make me feel way more positive- thanks so much xxx
Iâm doing really well, thanks! None of the treatments I had were anywhere near as bad as I thought they would be and I made a quick recovery from surgery. Iâm also one of the fortunate people who has no issues with tamoxifen so overall have been extremely âluckyâ. Life is good again. x
Amazing and thank you again for your support.
Am so pleased you have had such a positive outcome and your story really reassures me xxx
Hello there, bless you, it really is a scary time, you are in the right place. I was in your shoes in May, similar diagnosis and also 44. They thought I had two masses, but turned out after extra tests to be one large, 70mm. Things can change. My diagnosis was grade 1 but upped to stage 3 simply due to the size, apparently I am an anomaly.
I am 4 months post mastectomy (and implant reconstruction), having had lymph node clearance also, and yesterday I finished radiotherapy after 15 sessions.
All of this journey is scary and we get it, listen to your team, ask all the questions you have, none of them will be silly. Try not to over Google I would say. Best wishes.
Hi @tryingnottogoogle, Iâm sorry to hear your diagnosis. Itâs hard not to worry, but it is so good that the tests have identified this at the start of treatment rather than after it has started. I had 4 tumours - grade 2, hr+ her2- IDC. It was also in my lymph nodes. My team only knew about the 1 tumour as they donât do an mri in my trust. As a result, my treatment was more complicated than normal. If all your tumours are the same type, your treatment will be the same as it would have been for 1 tumour, although you might need a masectomy instead of a lumpectomy if the tumours are spread out. I hope you get your plan very soon. All the best. X
It is dreadful when youâre in the moment, but you will get through it. My initial lumpectomy went to a therapeutic mammoplasty with positive margins chemotherapy radiotherapy double mastectomy is with immediate reconstruction. I am on letrozole and had no side-effects and chemo was luckily very easy for me radiotherapy on one reconstruction was easy but the late effects can continue for a month if not years. despite it all it is curable itâs not distant. Invasive Lobular Cancers tend not to be lumps so the size can be alarming. I think mine is 25 mm. The final grade was three but Iâm still here and smiling. You will get through this. Sending hugs
Just to reassure you. I was diagnosed with invasive ductal carcinoma in February this year. They initially thought my tumour was 3.5 CM(!!) but⊠after not getting clear margins with a lumpectomy I had a mastectomy and the tumour was actually 5.5cm⊠and my stage and grade are 2. Itâs the worst part, waiting for test results. Just know you are not alone. 