MRI results in
MRI results in Hi Girls
Had my results tonight, and said I’d update you, so here we go.
Wasn’t so good I’m afraid,although being the pessimist I am, the news didnt come as too much of a shock.
It turns out the tumour is bigger than they first thought - I didnt ask how much bigger, as I really don’t want to know ! Anyway, tonight I had my bloods taken, Friday morning I have an appointment with the Oncology Research Sister (!) to discuss chemo treatment, and a new trial they’d like me to take part in. Monday morning I have to see a Consultant Oncologist to have some strange stuff put in my armpit, an Isotore injection at 11.30am, followed by surgery at 5.30pm to have a check of my nymph nodes and a coil placed into the lump ! The bonus is I get a week off work next week- hurrah !
I have been told that a mastectomy will definitely happen, but do you know what ? I really don’t care ! I told my Consultant tonight that they can do what the hell they want me with me as long as I get better !
l
Surprisingly, I didnt cry tonight. I think I’ve done enough of that since the frst diagnosis two weeks ago.
Anyway, time for yet another large glass of vino - I think I deserve it.
Lots of love to you all
Julie xxx
hi julie sorry your going through the mill at the moment ,at least you know now just whats ahead ,and you will come through we have all been through the waiting and worry of diognosis and treatments. i myself did not have a n isotore injection or wire i think its to pinpoint the exact area to opperate on .i had mastectomy last oct and finished rads in feb its been a trial but im through the other side and seeing the light at the end of the tunnel .when you get to the end of yours i will be waiting to give you a hug!! please take care of yourself and keep us posted as to your progress ok love lynn xx
Julie, hope you manage to keep ok until Monday. I felt better once I started the treatment and I am sure you will best of luck will be thinking of you Love Eileen
Reply Hi Julie
So sorry to hear your news. I can understand your feelings at not wanting to know. At the beginning anyway, I did not take in half of what they told me. Once I got over the initial shock I just wanted to get everything started.
I had a mastectomy and immediate LD reconstruction on the advice of the surgeon. It was once I had started the actual treatment that I began to think of the questions that I wanted to ask.
I just wanted to have everything essential done first and, even now I think it will be when the treatment is finished and I go back for checkups that I will have the list of questions for the future ready.
I think I did all my crying in the first two weeks as well and then thought, I am here and have this and, there is no way to go but forward.
I feel really well now and as I said I am on radiotherapy for another three weeks. I looked on each treatment as another step forward and am amazed at how far I have come. I also met some really nice people - patients and hospital staff along the way and had some good laughs and moans too.
Take care and best wishes for Friday.
I think you deserve that large glass or two of vino!
Love
Thistle
Hi Julie Hi Julie
Just wanted to say i’m from Peterborough. I was diagnosed in July 2004 and I had a large lump 4.5cm I had chemo first followed by mastectomy and recon (only needed mastectomy in the end becuase I had small boobs) the chemo did a brilliant job at shrinking the lump. I then had 3 weeks radiotherapy. I’m nearly 3 years post diagnosis, feeling very fit and well working full time. It’s a very scary time, but you will get there, my advice would be to take one day at a time.
If there is anything I can do to help or support you in any way just let me know.
Wishing you all the best with your treatment plan, I think our team are fab both oncology and surgery.
I was 45 when I was diagnosed and my children were 12 and 16.
Love Lesley x
Hi Lesley Hi Lesley
Thank you so much for your message - and its great to hear from a local girl too !
Luckily I’m having a good day today - we saw the chemo lady at PDH yesterday morning who put my mind at rest with a couple of things. Mind you she did startle me when she came right out with telling me the lump was 5 cm which panicked me initially until she assured me that they do see larger lumps than that ! Apparently the cancer is in its early stages and its Grade 2. Now if only the Consultant had told us this last Wednesday, I wouldnt have been in such a state on Thursday.
My Consutant is Mr Abdullah - who did you have ?
Sounds as if our treatment is similar. I too have got to go through a few months of chemo first followed by a mastectomy, and I too have been told its because I have small boobs - cheeky devils ! I have totally come to terms with this now though, particularly as I’ve told Mr Abdullah I want him to use my excess wobbly belly to reconstruct my new breast !
Still having good days and bad days, but lucky to have an amazing husband and the most wonderful supportive friends. Our daughters are 13 and 10 and we have been totally honest with them, answered all their questions honestly, and they seem fine about it all.
Just dreading next week in one way, but desperate to get going with the treatment.
Anyway, so pleased to hear you are doing so well, It’s messages like yours that really give me a boost,
Will let you know how I get on, and thanks again.
Love Julie xx
Hi Julie Hi Julie
My surgeon is Mr Abdullah and my oncologist is Karen McAdam, I think they are both brilliant.
My cancer was grade 2.
Good luck with your treatment, just shout if you want any help or advice.
Love Lesley x
which chemo regime forgot to ask what chemo are you having?
Love Lesley x
Hello again Lesley! Hi Lesley
What a coincidence - My oncologist is Karen McAdam too, and we’re seeing her on Monday morning !
Am fortunate to be going private (my husband only added me to his work policy in January and at the time I was really cross, insisting the extra £50 per month wasnt worth it!). Needless to say, I’m glad he did after all, so in a weird kind of way, I’m quite looking forward to spending Monday evening in the comfort of the Fitzwilliam !
Will let you know how I get on, and thank you so much again for your support.
Would love to stay in touch !
Take care
Julie
xx
Chemo Hi
Now this is where it gets confusing, as I’m not 100% sure ! The lady we saw yesterday was Vanessa Shackleton in Oncology and she has suggested a Neo-tAnGo-trial. By the looks of it, there are four different types of treatment, but I’m still not sure which one I’m going for. Sounds silly I know, but we were told so much information yesterday and so much different paperwork to look at, that the pair of us are still not clear as to which chemo I’m having !!
Personally, I think that’s why we have our meeting with Karen at 8am on Monday and the decision will be made then, What I told Vanessa is th same as I told Mr Abdullah - "You’re the experts - you just do what you think is best "!
Let me know what you had would you ?
Thanks
Julie
x
my chemo Hi Julie
I had 4 ec followed by 4 taxol.
Love Lesley x