Hi everyone, I was diagnosed just before Christmas last year . It seems my type of cancer is rare as only 2% of all women diagnosed with breast cancer have a mucinous tumour. Mine was 35mm associated with high and intermediate DCIS.
I have had 2 Wide local excisions to get clear margins and then 15 rad treatments and now on a Anastrozole for next five years. Would like to find someone who has similar as feeling a bit out on my own here!. Seems to get pure mucinous is very rare and it is usually mixed. I did post a thread in another section but Sam one of the moderators has suggested this section might be more helpful.
I was told by my Consultant that if I had to ’ pick a cancer off the shelf it was one of the better ones to treat’ . Would welcome comments even from anyone who has also had treatment or recently diagnosed the same. Thanks Katy.
Hi Katy,
I am sure your fellow forum users will be along soon to give you some much needed support, but could I suggest you give our helpline team a ring, they’re here to support you. Unfortunately the helpline is closed today as it’s the Bank Holiday but will be open again tomorrow morning at 9am. Calls are free 0808 800 6000
Take care,
Jo, Moderator
Hi Katykooabura
You are not alone! I was diagnosed with mucinous cancer in October 2011 and have had a wide local excision, SNB and 15 rads with tamoxifen for next 5 years. Luckily for me I had clear margins, no cancer in my lymph nodes, and so no further surgery. I was also told it was one of the better ones to treat in that it doesn’t seem to spread so much.
Other than the shock of having cancer and feeling low and very tired during and after rads, I have generally been well so far, and as I am more than a year from active treatment think I am ‘back to normal’ (or as normal as things get!)
Hope you are feeling well too. Happy to answer any questions.
Fairow