Hi
I found a lump in right breast on 1st May, saw GP the following week & was in breast clinic 19th May.
GP & clinic examination no one was concerned with the feel of the lump but I had ultrasound to be sure. This then became a few mammograms & a core biopsy & lymph node biopsy. At the end of the clinic I was told it was suspicious of breast cancer & biopsy would confirm and to prepare for chemo/genetic testing/op. they also noticed some calcifications on left breast which needed a stereotactic core biopsy.
Having lost my mum to BC 18 months ago this was terrifying.
Right breast core biopsy came back as B2 so was asked to have a VAB which came back as B3. Today I have had VAE.
Left stereotactic core biopsy didn’t show any calcifications so today I have also had VAB on that side.
I am so worried about the wait & what is going on. I have been through every emotion possible & now feel numb to it all.
Has anyone else experienced such a long wait to get an answer & conflicting biopsy results?
since referral I’ve just had a nightmare of a time with what’s and struggling to get appointments. I found a lump and was seen at the gp on 7th March , was referred on the supposed 2 week urgent referral but it took over 3 weeks to get an appointment. They were great that day and did mammogram and ultrasound but they didn’t really show anything and the lump was obvious to feel so they did a tomosynthesis mammogram which did show a distortion , they also decided to do a lymph biopsy as I had enlarged nodes and was told I’d be seen again in a couple of weeks with results , I then received a phone call asking me to go for a great mri which was a shock. I waited another couple of weeks for the mri, and then another few weeks to be seen with the results . The mri also showed the distortion and I was told they couldn’t rule out one way or the other as it was showing as b3 /borderline on both scans but the lymph biopsy was thankfully clear. So they then said they would do a core biopsy within a couple days , this was then changed to a vab biopsy and I had to wait another almost 2 weeks for the vab. I was told results could take upto 3 weeks and I would be seen back in clinic, 3 weeks later we were just about to set off to hospital for my results and I received a phone call saying my appointment was cancelled ! Obviously I was a little upset as it had already been from the 7th March till 29th may! After much chasing I was told a letter had been sent …I didn’t receive this letter until 13th June !! I was expecting as the appointment was cancelled and just a letter sent it must be all clear but the letter actually advised me I had lobular carcinoma in situ …but I would not be put on regular monitoring and just to make sure I attend 3 yearly mammograms ….even though the mammogram doesn’t even show what I have . Plus the biggest issue is my sister had ducal carcinoma a couple years ago and this is one of the ones that lcis puts you more at risk of so the thought of just waiting for 3 years to see if the mammogram even shows anything is very concerning but I feel so let down by the whole time scale - 14 weeks to have a diagnosis and the fact they didn’t even see me in person to explain what it was . I’m hoping this isn’t the norm and other people are being handled much quicker . But also would be interested to hear if other people with lobular carcinoma in situ are given more regular screening or indeed have been given the option to have it surgically removed rather than just wait 