Hi All, Kim afraid I’m very new to all of this (the site and the illness) I’m writing for my mum who in march this year found a lump in her breast, 2 weeks later she was very ill in hospital and we were told she had breast cancer which was alreadymin her liver, lungs and bones. obviously it’s been a major shock and adjustment for us all mum especially. chemo was stopped after 2 cycles as she was admitted twice to hospital with neurosepsis, then devastatingly this week they have found multiple brain mets. Mum has taken to this really badly and I’m not coping great myself so I was looking for a bit of advice. mums oncologist has said she can have wbt and has started steroids but they are short term and that is it nothing else can be done. I have read about Tyverb and gamma knife and wondered if anyone here had any thoughts on these or any other treatments. Mum is on herceptin and zemeta. Thank you so much in advance and I wish you all well. Xx
Dear Littleme, welcome to the BCC forums, I am sorry to read that you are having such a worrying time with your Mum
I am sure you will soon have lots of support from your fellow users and in addition our helpliners are on hand with practical and emotional support for you, lines are open 9-5 weekdays and 10-2 Saturdays on 0808 800 6000
Take care
Lucy
Hi, I’m so sorry to hear your Mum’s unwell. I have spread but not to the brain. I’ll ‘bump’ your post up to the top again so anyone in a similar position may read it and be able to advise. There are some threads here on WBT and gamma knife, cyberknife, they should all be in the Secondaries forums. Best Wishes to you both.
Dear Littleme
Sorry to hear about your mum-it is such horrible news to receive. I was diagnosed with brain mets in February this year after suffering excruciating headaches-think I guessed the outcome though before they gave me the news.
I was immediately put on steroids and my onc managed to get the funding for lapatanib which I take in conjunction with capecitabine and denusomab and my last scan in May showed that the mets had reduced in size which was a great booster. At present, I am keeping quite well although I do suffer with bad headaches from time to time and I am due to have another scan shortly, which is always an anxious time. I know that in the future I will need further treatment and my onc wants me to have WBRT but I wish to go down the stereotactic radiotherapy road, although I feel that I will have to push for this to be referred.
Certainly ask about funding for lapatanib for your mum in conjunction with capecitabine. This treatment has given me a bit more hope and in the world of this horrible illness, hope is something we all cling on to.
Thinking of you and your mum and,speaking from a mum’s point of view, it is lovely that she has your support but do look after yourself as well.
Take care. Liz x