Have my radiotherapy in the new year and then (hooefully) done.No more chemo needed as lumpectomy and nose clearance successful and last chemo was the beginning of September.At my wits end as to what to do about my mouth! I was troubled with a bad mouth at the first chemo…thrush and ulcers although the gelclair kept it under control and the bad taste but towards the end of treatment my dry mouth has got much worse until it’s there constantly.Also it feels like I’m sucking on a block of salt all the time.Its worse after any food or drink…I don’t eat spicey food or put salt on my food at all now but can worsen at any time.My teeth feel “squeaky” and I can’t speak properly sometimes.I went to the dentist before surgery and was told straight away my very dry mouth is causing decay…terrified of the dentist and losing my teeth! I chew sugar free gum to relief it a bit and discs you place on your gum at night to relief it but I can’t constantly be doing this and it gets expensive and frustrating.Can anyone help? Never heard of anyone who gets this problem severely.
Hi Treeze,
I’m sorry to hear you are experiencing so many problems with your mouth following treatment. I am sure some of our users will be along soon to offer their support.
In the meantime you can always call our helpline on 0808 800 6000 who will be able to talk you through any questions you may have and offer a friendly ear. The opening hours are below.
Monday - Friday, 9am-5pm
Late opening Wednesday, 9am-7pm
Saturday, 9am-1pm
Best wishes,
Lucy
Hi…saw a doctor today who was very thorough and has given me a spray to try…she is wondering if rather than caused by the chemo it may be meds related…we’re wondering if its aggravated by anastroxole.I can’t see it listed as a side effect but I’ll try the spray and then maybe speak to the oncology dept The taste is bad enough but it’s the damage its causing that really worries me.
Thank you…I pick up my spray tomorrow and will give it a few days or whatever to see if there’s an improvement…if not I’ll ring the breast care unit.start radiotherapy next month which can make it worse!