Need to have a rant & would be good to hear from anyone who is having a similar experience?
All started at the beginning of October
1st appointment: Diagnosed with BC
2nd appointment: Was told it was low grade, 2cm, hormone receptive, would need lumpectomy, radiotherapy & tamoxifin. At the 2nd appointment they had to biopsy another suspicious area
1 week later, call on a Sunday night saying they wanted to do another biopsy of the suspicious area as they were not convinced I was nothing
1st surgery: Lumpectomy with SNB
Appoint after 1st surgery: Told the tumour had changed to grade 2 & they needed to operate again due to unclear margins & that they were also sending my tumour away for oncotype testing to see if I needed chemotherapy
2nd surgery: Re exision of margins
Appointment after 2nd surgery: Told they had still not cleared margins & I would need a mastectomy
3rd surgery: Mastectomy with immediate implant
Appointment today: Mastectomy successful, have to keep drains in & come back on friday to see if they are ready to be removed. Was also expecting oncotype test results but these are with the oncologist who is on holiday & will need to make an appointment to see him!
The stress of this journey is horrendous & like everyone I am so scared of chemo & just don’t want to have it!
Sorry that you are having these problems Sonia. It is so frustrating, the weeks just seem to tick by and you seem to have had a particularly tough time with so many surgeries. At least they seem to have got it all with sufficient margins. Make the most of this time between surgery and chemo. I have had surgery, and my chemo starts in the New Year so I get Christmas with my family, and need this time to build up strength. When you see the oncologist you will get a plan and everything is better when you get a plan, and know what is going to happen to you. Chin up, it’s all doable we just need to stay positive! So saying everyone gets down sometimes- says she!
Hi Mooney,
Thanks for your message, unfortunately I didn’t seem to get your reply on the private messages, strange?
Hope you okay? I feel your pain & frustration with this ******* cancer business! S xx
So sorry to read that you’ve had such an awful time with surgery. I just wanted to put your mind at rest regarding chemo. They will give you plenty of time to recover ( mine was 6 weeks) and then the chemo itself is not as bad as you might think. The main side effect for me was fatigue in the first week. After that, I just carried on as normal. Yes, you will lose your hair ( probably the most emotional bit for us ladies ) ,but it will grow back . And the chemo and rads will kill off any cancer cells lurking around…it’s our medicine.
Thank you so much Sue for your words of encouragement. It is always good to hear from people who have been through treatment & can report that it wasn’t so bad. Where are you at now with your treatment? S x