Just pre testing the swear meter, None of those set it off!
Well, just tried a range of middle offence swear words which didnt set off the swear meter…buggr and blody amongst them…am a bit afraid to test the front liners…might LEt lissa, and Zena( both cunsumate swearers -just a joke) Test it out !
Moijanxx ?
Oh can I join in the Wednesday swear day too please ??
Welcome everyone
Carolyn xxx
Yes indeedy Carolyn, in fact you can start it off if you like on Wednesday… you have just two days to dream up the most vulgar, filth ridden shocking word to begin the day!
Ooh! Am looking forward to this xx
Actually Carolyn, we might get known as the
’ jolly swearing community champions’ what do you think?
( bet you are regretting asking now xx)
moijanx
Marnster… thank you for feeding back! Every time you talk about Oz, I get a shiver. I used to be a ‘new Australian’ after emigrating so very long ago, but just ‘lived’ in Nsw with trips to capital territory, Victoria etc, ID love to turn the clock back and do all the stuff you plan to do…,
Are you doing some of that first
? Just st in case you feel a bit tired afterwards… well done tho and did the onc have any chemo suggestions prior to rads? As I note Truffle has been testing out at least one… with favourable personal perceptions as to effects xxx
Love and Hugs, Moijanxx
Yea so funny … swearday - like winesday … gonna call you mo-jo from now on moijan lol xx
Moijan, Carolyn & Zena, I’ve just caught up on all the posts & am in fits of giggles! ??? Methinks Charys is intrigued, teehee.
Marnster, thanks for updating us re the neurosurgeon’s concerns & plans for your treatment. Glad he’s taking your post op mobility into consideration. You definitely sound confident with his advice. Now, that’s what I call a world tour! ? Don’t bother to come here for a white Christmas. USA is much better for that. We hardly get snow in London & when we do, it’s a light dusting that stops all the traffic & public transport & is washed away by the rain the following morning. I still love it though so feel free to see visit this lovely city (my biased opinion). ? I’m right here & haven’t spent nearly enough time in Europe. Shameful, haha!
Hey funny gals …I’m in on a ward with my damn and blast arse ?
Sod it im fed up and can’t wait till weds ?
Gonna MRI me as can look up it cause I’m neutropenic …
marnster , so glad you feeling positive and why not with those travel plans … yes Barcelona , I haven’t done enough of Europe either and Just as we about to cone out of Europe lol … I’ve done a safari in South Africa, on boarder with Botswana. I can tell you it was one of the best experiences of my life … I spend 4 days at the tau lodge and saw incredible animals … I can say honestly do that if you do nothing else … I was an airhostess with Emirates and then virgin so I have been to a lot of places and contrary to belief we stay over night at least one night in most and 2-4 even 4-5 in some like India and China … I’m bragging now sorry but got carried away as I’m stuck on a ward and it’s so busy and my iv hurting and I feel pants …
Anyway USA NY and San Fran , Vegas all amazing … Yosemite looks great I’d love to drive through that …
i was thinking after chemo I mite sell the house and buy a Dutch barge and sail about canals in U.K.
My eldest son cried and my husband walked off laughing … I was deadly serious as I’d been googling all night and planned out new dream lives ?.. no sense of adventure at all … xxxx
HI All
I hope its okay to join the discussion…my mum was diagnosed with brain mets last august and was operated on in the october. They diidnt do wbrt afttrewards. She has had two clear mri scans post surgery and is being scanned every two months. She had her scan today but has been feeling dizzy and lightheaded, kind of detached over the past few weeks and has had a few visual disturbacnces and has been started on a low dose steroids. Its the fear that accompanies scan time!! Im sorry to read all your stories but have been so struck by your bravery and supoprt for one another.
xx
Hi Moff ,
I’m so sorry for the things your family and Mum are going through…
How are you feeling and coping Hun ? Xx
I’m fine don’t worry about me xx
It’s an incredibly scary time and it’s your Mum darl , so you must feel very helpless…
I’m not going to be able to advise you on brain mets like the other wonder ladies on here but I can be here as an online friend if you need one …
they will be along soon .
I’m the mean time tell me a bit about you and your mum if you can xxx
.
Hi Moff, so very pleased you have joined us. Xx
its always so lovely to have lots of warm and wonderful posts xx
sorry to hear about your mum…I know you must be fearful that you might lose her. i lost mine when I we were both too young and unexpectedly! I am now older than she was and as Marnster says, it feels very strange.
I also echo what the others have said…enjoy your mum and your time together,…try not to worry too much…I had a lovely breast surgeon who said that if we spend all our time worrying, then its time wasted…and its really true…( hard to do, tho, I know that far too well )
do try and get some time away with mum and create happy memories for both of you.
I hear what you say about symptoms…and I am not an expert on brain mets either…
.However, after any surgery we can expect some scar tissue as the surgery site heals and this takes its own time to recover so it doesnt sound completely out of this world that mum might be having symptoms related to scar tissue…which is a special kind of tissue that is different to brain tissue.
the doctors are scanning mum frequently, so they will be aware very early, should anything else need attention. fingers crossed that mum wont need further treatment…they obviously felt there was an excellent chance that the surgery would do the trick…travel hopefully,
love and Hugs…Moijan???
Hi Zena , with your ‘damn and blast arse’
for cuddly Charys’s sake, im going to elaborate re the swear day…I noticed you had placed the odd choice “bleep” and word in a previous post and thought…i wonder what swear words wont get bleeped…
I did try ‘arse’ and like your’arse’ it didnt raise a bleep…i also tried some other words…then deleted them fairly quickly… But thought ‘this is good fun’ and decided, to very, bravely suggest we have a swear day ( just on this thread) on Wednesday. At that point Carolyn popped in and asked if she could join in…so I have offered her the first go!
Im sure that by now the moderators will have had the ‘Wink Tipped’ and are feeling either very nervous…or possibly a bit envious…at any rate…can I ask that we stop short of typing any too vulgar, or racist, sexist or ageist words??
Zena, am so sorry about your hospital stay…Im sure it is the very best place for you just now…but I recall how gloomy it can make you feel. One loses ones sense of independence and I remember feeling quite negative at times. Xxx
Mind you, as homework, you could try out some of the ‘swear day’ options on the nursing and medical staff and see if they start bleeping!
Oh, and im seeing the onc that morning, so you will have to start proceedings without me…!
hugs, Moijanxxx???
Oh yea my beep word was only the one for poo beginning with s … I got worried just then and checked back. Really nervous I’m not going to be brave enough for weds now lol. Xx
I’m ok just on morphine and tramadol…, a little fuzzy headed and keep getting lost if I make it free of the bed for the loo ?
MRI really early so that’s good but I’m super claustrophobic so not keen on them . Although I’d like to know why I’m suffering so much with my bottom ??? Def not normal and they picked up shadow on hip and fibroid type mass at back of womb needs further investigation ( their language) .
Okey dokey I’m going to try and sleep as I’m not sure if I’ve made much sense today. Massive hugs to all
Morning Zena. How’re you doing? I assume you’re not seeing this post until after your MRI so I hope you managed to get some rest & aren’t too disoriented now. Tramadol _ AND _ morphine… a powerful combination!! You must be dozed out but fingers crossed you’re getting relief. Maybe the two drugs help combat the claustrophobia during the MRI? Having said that, tramadol isn’t making me drowsy at all at the moment (was hoping it would so I can sleep at night) but it is helping with my back pain so I’m thankful for that.
Moijan & Marnster , I agree with you both re laughter. When I returned to work after completing my first set of treatment (before my metastatic dx), my colleague & I would have hilarious discussions about our experiences - she returned to work a few months before my primary dx having completed treatment for Hodgkin lymphoma. The others in the office didn’t understand our seemingly flippant & humorous attitudes towards our cancer trials. ? Being metastatic has been so much harder to deal with mentally & physically but I laugh even more now. ? It’s therapy & I’m determined to cherish good times with my family & friends. Hope to take some short breaks in spring & summer to Europe. A bit scared to go long haul but have done USA many times & the Caribbean (parents originally from there). In the meantime, I enjoy my jazz singing ? & music. Written some songs & am working on a CD so hopefully I can do a charity gig for MBC, fingers crossed. Taking a while though, energy’s c**p! Oh well… slowly, slowly.
Welcome Moff. Again, so sorry to hear about your mum but you’re in the right place. Everyone on here is so supportive & they’ve all been a godsend to me. ‘Scanxiety’ is real & it doesn’t get easier so what you’re feeling is quite normal. I’ve just had an MRI & am due a PET/CT on Wednesday. Brain mets dx 16 months ago, craniotomy less than a month after that, clear scans since & I still get twinges in that area of my head, other parts of my head, lack of concentration, balance issues, occasional blurry vision, etc. Scan time also intensifies worry. My oncologist explained there are some nerves that will never repair & it takes a looooong time to heal but it doesn’t necessarily mean recurrence. I live with my mother - a two time BC survivor who’s already lost one sister to this menace of a disease, has another in the States who’s also MBC & her niece (my cousin) is a BC survivor. My mum’s in her 80s & is now my main carer. Whodathunk??!! I guess you’re in the same position. Of course, you’re a lot younger than my mother ? but you’re both watching a family member go through this & what you must realise is you’re already being brave without even trying. Seeking support & reliable information (not from the google jungle, LOL) goes towards helping your own well being. Your mum is very lucky to have somebody like you to lean on unconditionally. Now you can lean on us ?? although you might think us slightly odd ?? seeing how ‘swear day’ seems to be upon us. ? I’m extremely proud to be referred to as ‘odd’! Normal? Not so much. ?
Marnster , we’re both Pisces… not that I know a lot about star signs. I turn 46 next week. Have you something lovely planned?
Much love & good news wishes to all,
Your-Ever-Lovin’-Odd-JazzHead-Insomniac, Lissa ???
hi Lissa, just popping into this thread & just wanted to say what a fab post, so uplifting & fun to read, you’re one cool lady!
love & hugs everyone
ann xxx
Hi Zena
Well done! Hang in there and try not to crystal ball about your bottom xx
Although, methinks… tramadol and morphine… now there’s a ‘bottom stopper’ if ever I heard one… so plenty to drink fir you now+++. just 'sit in your canoe ’ and use your huge paddles to help it ride the waves, until you get back on the beach xxx
Much love, Moijanxx
Hi there again Zena… will be getting my MRI results just around the time you have your trip in the scanner.
What do you do whilst you are in there? I usually try to practise something I’m trying to perfect, such as a meditative state or I visualise myself getting something correct, or completing something. Xxxxxxxx
Or you. Could just lie there and swear your head off! I doubt anyone will hear you! If they do… just tell them it’s swear day and you have a passport!
I love my onc… do you think I should try out a swear word or two on him? It’s still my Eribulin ‘week 3’ when I tend to say just what I like! Don’t want to upset him xx
Hugsxx Moijan??
Morning ladies
Having a little cry reading all your posts, what a preciousplace this is, such compassion and bravery! I can see how iys become a place for suppport. I definitely agree that humour is required and love the idea of a swear day…I think you have all earned it. Mums team have been great froma practical perspective but they dont really offer much in the way of support. I think the psychological element and the terror is a huge part of the experience and im not even the one who is fighting. My mum is a very anxious person anyway and I thik you are right when you say that can excaerbate symptoms. Shes unaware (although I think she knows) what it all means and just keeps saying Im going to be ok? think we all put on a brave front but have been able to cry a little together too. Prosecco has also helped. Mum was very lucky in that she was a candidate for surgery, one solitary lesion. She had experinced focal seizures due to all the inflamation. There is significant tissue damage and shes no longer able to read but thats a small price to pay. They diidnt do wbrt at the time said they would hold off and just scan her every 2 to 3 months. I think part of the battle is learning how to live in the shadow of cancer and to not let it take over. Take good care of yourselves ladies xx
Yes Moff, the fear is the thing that is the real ogre… the unknown causes fear and bc tends to take away our confidence… it’s a very tough job you currently have, keeping mum cheerful and also boosting yourself.
you seem to be doing really well tho, - as Lissa says, mum is lucky to have such a lovely kind daughter oat her side… as I was reflecting, ( and Lissa also mentioned) some symptoms can be expected from the surgery and the healing process/scar tissue, where some nerves have been cut… so do try and reassure mum about that if it feels appropriate… try and get out for small trips, yes proseco also helps… but in moderation! Love and hugs xx
Moijanxx