Well done Moff my gut feeling is that you are on the right track xxx
Thank you for updating. Don’t feel afraid to ask for help for yourself, from Macmillan or other, they will not breach confidence or stumble in without your permission xxx
Getting away is good too
Love and hugs
moijanxx
Lissa
Happy birthday XX glad the hospital staff are looking after you… it’s wise of them to delay the chemo whilst the antibios are working… gives your immune system a chance to stand up to any bugs. Chest infection! Yes have heard of a virus or two going round, -am fighting one off myself, even tho am on filgrastim - mine started with sore nose and runny nose, then eyes and throat tender, wasn’t sure what it was… could have been cellulitis as all ached… but now coming out of it, tho eyes still sore.
Enjoyed the rest Lissa xxx and have some cake??? ! Hugs
moijan???
Awww, thanks everyone. You’ve all been so supportive. Had a CT chest scan earlier & I do have mild pneumonia but I’m slowly getting better. You’re all absolutely right… it’s best for me to stay put where they can keep an eye on me. Carolyn, you made me giggle with the snoring & farting comment. ?
Goes to show I still take the good days for granted. I forget that our immune systems are compromised & when things get bad, it’s like a shockwave of reality.
Take it easy everyone & I’ll do as I’m told… for now. ?
Much love, Lissa ?? xxx
Yes Lissa,
I’m the same, I suppose I like to forget re the bc or deny that I might need more sleep say, and then push myself until I need to have a day in bed!
Sorry about the pneumonia, am sure they are making you mobilise and drink loads(water not booze!)… get lotsa spoiling
And eat well xxx
Keep us posted … now singing to the Ward… you could put on a concert once you get your puff back!
Hugs. Moijan???
Hi Lissa, happy birthday xxx poor you spending it in hospital but it sounds like the place you need to be xx hope you have been spoiled xx you deserve to be! hope you start to feel better soon. So hard not to become disheartened xx thank you for your lovely words x
Thank you Moijan, your words have added to my confidence that we are doing the right thing, no harm finding out more. sounds like mum is a candidate on paper and they are now having a closer look at her MRI. How are you doing? xx
Moff,
you are so very welcome…you also have a very kind heart…thank youxx
i am ok, had a virus this week and went to chemo feeling lousy. But much better now.
enjoy your weekend and do keep in touchxxx
Lissa,
hope you are feelng betterxx
Love and hugs, Moijanxx
Fell aslerp in front of tv…‘the lucky man’ so now waiting to feel tired xx
Nicky!
Lovely to hear from you… you have been in my thoughtsxx
So glad you have recovered… yes, I have had some virus or other too and my neural have been high! Goodness knows how it happens, but I can look back this week and see I got overtired … pushed myself too much xx anyway great to hear from you
miijanx
Damn this predictive text… nutraphils ( not neural anything!) M
Hi all ,
Lots of hospital stays my dears but I guess we have to don’t we sometimes, like Nicky said can’t get away from it … I also forget in good days and rush about … then get home and hit the floor…
I keep getting neutropenic but I guess I have 3 little kids so maybe just them bombarding me with bugs …
Only one stay in so far so that’s good and my MRI of bowel was clear so that’s good just waiting on sacrum one ?
The new weekly paciltacel is so far much kinder ( thank the lord god in heaven who probably doesn’t exist or this wouldn’t happen to us amazing peeps )
But anyway I’m not sick and my buns ok so far … and I feel ok as I can do on chemo… so so far so good … my surgery is due in June 2x mx they think so had to cancel barge holiday I’d planned so not sure what to do for kids for a holiday?
I guess I will need rest as full lymph node clearance too ? That’ll hurt I bet …
Anyway it’s nothing compared to what you lovely ladies and your mum Moff are going through so I’m not moaning at all …
Glad you feeling better lissa and will be home soon I guess … ? Funny the tea lady forgetting after all the bother they were going too ,daft isn’t it really if they can’t keep it consistent you might as well be on a ward … but nice to have a quiet fart free room lol ?
So glad you also feeling better moijan after that nasty bug ?? Hope you got some sleep in the end xx
My daughter 4 yr kicked me all night so I’m knackered today and gonna have a sofa Netflix day as she going to her cousins and my boys to their days …
bit love to all of you and have a restful safe weekend xxxx
Oooo truffle I feel your pain … I had piles which turned in to a tear ?
It was the worst pain ever … had to go to AE and they sent me home with ibrupropen and paracetamol!!!
Needless to say I was admitted 4 days later with neutropenic infection and now in zormorph and oromorph…
I hope the antis work soon my dear … nothing worse than toilet trouble ?Xxx
JUst catching up ladies and astounded by the amount of interventions and medical stuff you have all had to endure! its relentless, hope comes in the victories, the battles won! hope you are all feeling better x
Im just trying to adjust to this new world post termibal diagnosis, mum has been stage 4 since last August when the brain met was discovered but we are in new territory now. Feeling very sad and very anxious. Howled as I walked the dog this afternoon (noone around, promise) Its as if grieving already for all the things she is going to miss out on. I cant imagine teeling my 3 girls about their grandma, not sure how to approach it but will find a way when the time comes. She as ked me tonight if we would make our annual pre christmas get away and I said off course, and she replied thank you. She said ive got a few years? and I said I dont know.Shes asking in her own way. What torture cancer brings…
Sorry for being so morose,I hope i dont bring you all down. hoping for a more upbeat, spirited day tomorrow xxx
Hiya Nicky
Just reading about your two daughters in their 20s …I think its very important that they do realise you have a sell by date as I was 21when my mum died of bc after seven years on/off treatment …looking back I wasent ready to loose her and even at the end just thought there would be some more magic pills for her !! I also found out I was pregnant and everyone kept saying look after that baby now …life became about nappies and prams etc I realised that I never grieved for her and when I got dx with bc 28 years later …all the built up grief/ fear came out that I had stored up for so long and I’m sure hindered my own treatment plan and I felt very negative through it all but fast forward twelve years and I’m here hoping for the magic bullet like everyone.
Xxxxx
Carolyn, yes xx what you say is so very true.
Looking through posts on this forum, most of them create a record of just how rocky this cancer journey can be. There are ups and downs, but often the entries made by others teach me so many lessons, tips for me to use when I stub my toe, or fall over!
One thing that smacks me in the face, time and time again ( as I tend to keep getting lost) is that all the time any of us do have, or can be certain of, is right now this minute.
So we must take and live each day to the full, and as it comes. I know this sounds like platitude - but there is no time to waste, not on regrets, guilt or what might have been. Xxx
Moff, I understand your sadness… .but what if? What if Mum perhaps, were to outlive us all? None of us have a crystal ball xxx. Travel hopefullyxx
hugs, Moijanxx
Hello lovely ladies,
Apologies, I’m still in hospital & now my neutrophil levels are slightly low so I’ve been sleeping lots & haven’t managed to catch up on the latest. Just wanted to touch base to say I’m thinking about you all, hope your treatments are going well as can be & that I’ll be in contact again soon.
Going back to sleep now. ???
Much love, Lissa ?? xxx
Hi Lissa
Glad you are being looked after.
Wondered how you were doing
Lucky you can sleep xx not like some of us xx
Hope you feel better soon,
Hugs, Moijan???
Sorry, have been away all day at a dance competition with my youngest. Firts dose of reality since results. Thank you for your lovely words NIcky, your daughters are very lucky to have you and cherish you. Im going to have to learn to adjust to this new world I think and reading all your posts helps. Lisa, I hope you feel better, youare having some time of it xx Moijan, thank you, some much needed inspiration and positivity, hope you are feeling okay.
Carolyn, my heart went out to you reading your post, what a brave lady and survivor you are xx grief, and delayed grief are such powerful experinces.
Good night to you all lovely ladies, hope sleep comes all of your ways xx
You know, I’ve read through the last page of posts on here…and I feel pain for you all. ‘Rocky road’ is one way of explaining it, boy, it is testing and cruel and painful for you all at times. However, it is Moff1 apologising for being ‘Morose’ that I wanted to say something about.
I think it was Moijan who said about ‘living in the moment’, and whilst its hard to do that all of the time as inevitably fears will arise and thoughts will turn to darker places and you want to think of the future, it is an important thing for EVERY person to remember in living their lives.
I hope this doesn’t sound morbid, and sorry if it does but I hope you understand my meaning; there are people who are ‘perfectly healthy’ who go off to work and have a fatal car accident, or get on a plane and get killed, or who have a fatal heart attack when there was no warning. Living is risky, and none of us ever know what is around the corner.I’m not wishing all those things on anyone of course, but I’m highlighting that the difficulty is a psychological one of immense proportions for those with ‘a diagnosis’ of any condition that is deemed life limiting. Any of you could outlive the woman next door, or the man at the checkout who looks perfectly fine…but they are ‘blissfully ignorant’ of anything in the future and sadly you are not as its draw to your attention day in and day out with physical symptoms.
Here’s an example…someone I know really really well…was diagnosed with a terrible condition that was deemed terminal (not cancer incidentally). People rallied around, the friends of this person, and everyone said how terrible it was and some insensitive people asked about his life prognosis (!! yeah nice stuff to ask ey). A decade later he is alive and well, although clearly very disabled (and under the palliative care team for 10 years!). Meanwhile, sadly, some who questioned his life prognosis are no longer with us. It is the diagnosis that is so hard, it is what plays with your head.
I don’t know if this is heartening or not, and I feel a bit of a fraud on this thread as I am not in the same position as those writing on it, but I really want you to continue to have hope and happiness, because nobody knows answers and outcomes and often people can have the most extraordinary resilience and do so so much better than is expected.
I hope I’ve offended nobody by saying all this, you brave and strong women are simply incredible. Let me know if this does upset anyone and I will edit/remove x
Lissa and Truffle, dear ladies xx
hope you are both feelng a bit better?
Lissa, are you home from hospital now? Bet you are a bit tired?
Truffle, hope your ’ battle of the bowel’ ( golly, ive accidently coined a new term, havent I)
is improved…hopefully you are ‘washing down the water’ ( theres another!)
seriously, hope you are both dong well xx
Moijan?Xxx
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