Hi Ladies,
Just cannot get my head together at the moment, probably the 3 months since diagnosis, such a very long wait, and still no further forward, other than 2 lumpectomies and gland removal ops. So my result is going to be upsetting either way, best l can ask for is a Mastectomy or if it is chemo that means it has spread. No wonder l feel in such a state. But thank you for all your support, it really does take your mind off yourself for a few moments
Maria, Hope you get good results. Hope you got my LONG message! xxx
Hayz Hope you get good results. l could kiss those lovely feet! xxx
Sandra xxx
Goodness me, what a lot of lovely hugs. I have had a better day today. THANKYOU, Alison, Hayz; Aqua, Dot, Monica, Val, Shenagh, Drabble, Anne, Welshgirl, m1yu and Sandra (sent pm and e-mail) I hope I haven’t forgotten anyone.
Here’s sending you cyber hugs back.
Love Maria ((((((((XXXXXXXX))))))))))))
PS Sandra, chemo, doesn’t mean it has spread, it is also to stop it spreading.
Oh Maria, l sound like the half empty glass!!
What l meant was…they are only going to do chemo first if there is any signs of it having spread from the scans they took. If there is no signs of spreading l will have the Mastectomy first. Sent you a pm (again) Lol!
Love the ‘boys’ us Mums and our ‘boys’ They look lovely, oh yes and so does Mum!
I have made you a special folder in my 'photo’s ‘Maria and her boys’
Gosh you were good thanking everyone by name! in my state of mind it would have taken me all evening
Love
Sandra XXX
Today’s the day. I will find out what my next move is.(1pm)
Hugs to all those waiting…one day closer…
Love Maria
Hi Maria
Thinking of you Maria, Lots of hugs sent your way ((((((((((((((((((((X))))))))))))))))))))
Love
Sandra XXX
Thanks everyone for the support…what we do without each other to lean on?
Val…Glad you’re on the mend. I hate to hear you’re down or unwell. xx :o)
She…thanks Hunni…hope someone can help you out with your pigskin recon soon! You must be desperate to get a date now you’ve made your decision! xx
M1yu…how’s the FEC going? Hope it’s not being too nasty to you…but hoping it’s being evil to those pesky mets!
Sandra…the feet! Lol! Still don’t know how I managed to get my 3 to sit still long enough to get that pic! I love wee kiddie feet! So cute!
Maria…Wishing you all the luck in the world for today! I get my results tomorrow morning…eek! Lol. Funny how when the time gets nearer you start to wonder if you do really want to know!
Sorry if I’m missed anyone…I’m typing this on my phone, so can’t go back to check! Chemo hasn’t left me with much of a memory! :o)
Good Luck to anyone else waiting on results this week!
Hxxx
Hi there everyone,
Apparently they are nasty little buççers and need zapping, with 3xFEC and 3x tax starting next Tuesday, 11th May. They are putting in a PAC the day before. I’m feeling OK ( you lot, knows what that means) I think I’ll dye my hair bright red before it all falls out.
Thanks for all your support, and I’ll be thinking about you and your results tomorrow. Now I’ve got to think about a new heading for a new post, although I think we all need cyber hugs where ever we are in our battles.
Love Maria
Hayz - Thanks for asking. FEC gave me a very hard time and I was very ill for about a week, but I’ve recovered now thankfully. I’ve already noticed a positive effect on my lumps, so all the sufferings have been worth it. Seeing onc on Wed to get his permission to carry on with FEC No. 2. At the mo, can’t see he’s going to say NO.
Marial - Hope your chemo goes well, I’m having my FEC No. 2 next Wed, 12th May - a day after you! So will be thinking about you. My onc did say I was very UNLUCKY to get the whole packet of side effects, so hoping you are luckier than me and it’s kinder to you.
For those who are still waiting for scans and scans results, hang in there… you will be another day closer!
Take care xx
Hi Maria
Another hurdle over! Oh well another chance to go shopping, re wig!
or are you going for scarf, hat and the just you look!
Yes, really pleased you are feeling OK! Lol!
At least it is over with for today, and you can plan ahead
And yes you must think of a new heading for your post, or l might miss you!
Love
Sandra XXX
Hey Ladies
Maria…I had 4 FEC & 4 Tax for my Primary…can’t say I enjoyed it, but it was certainly doable as they say! I dyed my hair bright purple before it fell out & had it cut very short…had a bit of fun with it! lol
I had the lymphoedema clinic today & my BCN shouted me in for a chat…I panicked a bit if I’m honest! She asked how I was & the usual pleasantries before saying she had my CT results!
Says obv my onc has to put her clinical spin on it in the morning & she’ll have a poke around at my neck, but the CT showed that my head, abdo & skeleton are clear, raised node on the left looks reactive & the diseased ones on the right have decreased in size & density!! She thinks that my partially numb face is due to radiotherapy possibly damaging some nerves (small price to pay!)…all in all it’s looking positive! At last! I’ve never had any positive news since diagnosis!
Will still freak out when I’m waiting to see my onc in the morning, but I’m feeling soooo excited just now!
Hoping everyone else gets some good news too!
Hxx
Sandra,
I have wig from last time, but I have not had the courage to get it out yet. Going to buy some exiting hair dye first though !! Purple or pink or bright red. What do you think ? (having seen photos !)
Hayz
Where do you live ? I thought it was bank holiday today ! Great news, hey, the poison is working for you.
Thankyou for the encouragement. Last time I just had EC, so I was wondering whether the F made much difference. As for the tax, that will be another hurdle I’ll cope with when I get there.
Thinking about you both tomorrow. My only appointment tomorrow is coffee with a pal. Yuppee.
Love and hugs Maria
Hi Maria,
Oh yes, brain!!! l do remember you saying you had a wig from last time! silly me.
Well l think with a face like yours…you would look good in any colour, think it has to be something ‘loud’ if you are brave enough! not me! never put a colour on my hair, so not going to start now! What about something to match your car…don’t tell me you have a boring black one…or perhaps Grey!! or do they call it ‘silver’ now. either way not bright enough, purple sounds good to me with a pink tip.
Enjoy your coffee tomorrow, you deserve it.
Well done Hayz, any chance l can swap my bcn for yours, l have one that is lovely, but the other never makes eye contact, always worries me, but at least others have said it, so makes me feel better!
Ok Maria, l hope that was clean…does the ‘F’ make any difference!!
Hugs to one and all
Sandra xxx
Sandra,
I had a great laugh at your last post. My car is white, so I’ll see what I can find. I’m too old do do anything realy mad,although I have a wild streak hidden in me somewhere, we’ll see.
As for the F, no, its not rude there are different combinations of chemo and last time I had EC, this time it will be FEC.
Love Maria
Wow Maria and Hayz
Red and purple hair - rebels or what! Good on you both! Though saying that, up to a few years ago I used to colour my hair red, blonde etc and I’m Indian! Given in to salt n pepper now though still have my hair very short!
xx
Hey Maria
Yeh, it’s a bank Holiday here in Scotland too, but my Lymphoedema Nurse still does his clinic & one of the BCN’s are always there in case they’re needed…the Chemo unit was eerily quiet tho!
LOL…go for the mad hair! I got mine chopped & dyed a weird colour so I wouldn’t be as upset when it started to fall out…my hairdresser thought I was mad when I said…‘Make a right pigs ear of it!’ PMSL! it worked…I wasn’t that fussed when it went…although I have to say I hated having to straighten my 10 year old sons hair when I had none! ;o)
I imagine if you’ve already had EC then you’ll know what to expect? I think the Epirubicen (sp) is the one that doles out the side effects! I found Tax much, much easier to cope with & I only had a few days each cycle where I was fatigued.
Hxx
Thanks Hayz
You realy do make me feel better. I didn’t sleep much last night thinking about the tax, it will crop up just before I go on holiday, so now I feel relieved. Anyway just one day at a time…Good luck with your onc
Hi Aqua
Great to" hear" from you, hope things are going OK.
Sandra, Big day eh, just got to get though the moring. All the best
Hugs to everyone of you ladies out there, especially those waiting for tests, results, ops or chemo or anything esle, like getting better.
Maria
Hey Maria
A wee tip for the Tax if you’re having your first just before a holiday.
It can cause some very uncomfortable bone pain (especially if you need neulasta injections too), but they can give you painkillers to deal with it. I was told that they normally like you to have a cycle too see how you are, but I had something planned just after my first, plus…why suffer if you don’t need to? I asked my Onc for painkillers from cycle one & she was happy to prescribe some Gabapentin for me…and it worked brilliantly. I only had 1 day each cycle (when the neulasta was kicking in) that I had some palpatations & some discomfort.
Hxxx
Thanks again Hayz, The doc did tell me all about the injections etc, but I did not take it all in. One step at a time.
hope you are feeling OK.
Love Maria
Hello everyone, I’m bring this up to the top because I need some more hugs.
I seem to be having a wobbly week, and stupid me didn’t want to upset anyone here by posting a wobbly message, but here goes 'cos I know you ladies will understand.
I don’t know what I need or want, I know all the theory, about “it will get better” and “I have the right to be wobbly” and “take or ask for help” and “can’t be strong all the time” and “there are people worst off than me”, but right now I feel SO SORRY FOR MYSELF, its SO UNFAIR (2nd time around, 2003 and 2010, lost my sister to bc somes years back, lost my husband last year, my handicapped son needs me and my Dad’s had just had heart surgery)
I expect I need a good cry, but I’m not much good at that either, I need to be in control.
Here’s hoping anyone reading this feels better than I have this past week.
Hugs to you all
Maria
Dear Maria,
Well l wanted to be one of the first to give you the biggest cyber hug ever, so hope it reaches you and stays with you. when l send my grandchildren a kiss, they tell me they put it in their pocket and save it for later, so you do the same with all the cyber hugs you will get today and tomorrow. And if you need more then just ask.
Problems never come in ones do they? You look over your life sometimes and think how much more can anyone take! you are obviously a lovely caring person and you deserve only the best. But sadly life isn’t like that. We have to learn to take the good times with the not so good times (I’m off again)
To have gone through this twice, and your dear sister, your beloved husband a son that needs his Mum (well two) and your Dad with heart problems, no wonder you have wobbly moments, think l would completely crack up!
But you are strong, just having a weak week!! but for goodness sake, look at the the problems you have given yourself over the last month, first your tree fellar, then your kitchen men! have you not got enough to cope with, not forgetting the starting of peachy mother
Give yourself a break girl. ONE STEP AT A TIME!!
cyber hugs still zooming over with lots of xxxxxxxxxxxxxxtoo!
Love you Lots, just wish l could put my arms around you! close your eyes and take in all the cyber hugs you will be sent xxx
Sandra xxx