Yes Daphne thanks for the link to this latest Baum article. I have a huge amount of respect for his ideas and rememeber being impresed by seeing him speak somewhere…was it a Breakthrough through event a while back???
Leadie…strangely no I don’t feel bitter…angry yes about getting breast cancer at all…but I really think the terrible error may not have affected my prognosis. Sure I’m angry I got breast acncer but its that I loathe more than the misdiagnosis.
I tell myself strange maybe pluses about the misdiagnosis: like because of timing by the time I was diagnsoed in October 2003 I was able to have taxotere after surgery (having had AC before surgery…7 months earlier I couldn’t have got it at that time)…and I did get two and a half years in NED which might have been the taxotere…or might not…never know. I had an independent oncologist’s report who reckoned the misdiagnonis might have reduced my 10 year survival down from average 42% to 18%. I won’t live (bar a miracle) to 10 years now…but maybe I wouldn’t have anyway. I pursued the case doggedly…I didn’t have a compensation case because under Englsih law to get damages you have to prove that but for the negligence you would have had more than 50% chance of 10 year survival and I didn’t. So I’m proud of myself that I pushed for a Healthcare Commission investigation and a GMC case…though my little case was only part of a much bigger scandal. I was a witness in September 2007, 4 and a half years after misdiagnosis and I sat in this big room for an hour and half telling my story, with the shamed doctor listening…and I think he was sorry though I felt cold and distant towards him…or at least pretending he was sorry and apologising through his barrister to me probably saved his job, and I’d rather he had lost it. And it wasn’t just him…it was the whole system at the hospital and I am more angry with the senior managers who intially tried to cover up my case and belittled me during a local investigation. I did it so no one else at that hospital might have to go through what I did…it was cathartic for me.
Its great to see serious dicussion about screening on the boards and I am being a bit diversionary in telling my little story to a new generation of posters…its still cathargic particlulary at sad times when friends are dying. Daphne and I are are very old lags on these boards and its great seeing new names joining in on the debate…though I bet we all wish we were discussing something else.