Not really posted in here much. On the 11th December I was diagnosed with IDC + DCIS, ER/PR+ HER2-, I have had so much testing. Ultrasound said the mass was 37mm, Mammogram 45mm and MRI 56mm. I have had 2 under arm biopsies that have both come back clear. Due to the size of the mass they said I need a CT scan which the consultants words was it had come back clear but they had seen something abnormal on liver, said it wasn’t noted as suspicious which needs an MRI scan. Had the MRI yesterday and now awaiting results - scared to death now that it has spread to liver anyone else had further testing and it came back clear x
Hello. I totally sympathise with the amount of testing you are having. It feels never ending at times but it’s reassuring that your team will have a really full picture of what is going on to help them plan treatment.
After my biopsies came back positive for lymph node involvement I was sent for a full CT like you and I was also told good news it’s clear but they’ve found a nodule on your lung and thyroid. I thought how is that a clear CT then? But apparently the nodules weren’t suspicious but need further investigation just to be absolutely sure. I had another CT on the lung nodule and it was deemed to be nothing to worry about and they re-scanned it again 3 months later and it was still ok and stable. I had an ultrasound on the thyroid nodule and again all was fine and will checked again later this year.
They really do go for a belt and braces approach and check everything just in case. Waiting for results is the worst but hopefully it will all be fine. Best wishes for your treatment going forward, once it starts it feels like you’re actually getting somewhere x
My CT scan for radiotherapy planning showed up a nerve tumour just beside my spine. I was sent for an MRI and although I’m a doctor and knew that these things are usually benign and they told me that.., I was really nervous until I got the results. The radiographers told me that they find things like this all the time and actually benign liver cysts are one of the more common findings. A friend who was diagnosed with prostate cancer had this exact thing and was completely thrown off course by it but it was fine.
Hold onto the fact that they have told you it’s not suspicious. They are just being thorough in case anything shows up in the future ( hopefully not..). Unfortunately it’s all part of the rollercoaster. Scans nowadays are very good at spotting benign growths all over the place that have probably been there for years.
Thank you, I am trying to hold on to anything positive so them saying not suspicious I keep thinking it isn’t but then as soon as I think something positive I’m scared it is bad news and I am just getting my hopes up.
I was diagnosed on the 11th December and since then had repeated biopsies under my arm which came back clear, I had the breast mri which shows lymph nodes large on the opposite side so had to have the biopsied which came back clear. I suffer with eczema bad so they think this is the reason for the large lymph’s.
I am currently waiting for the liver MRI results and also the results from my California to see if chemo is needed. Obviously they have told me if the lymph’s are removed and positive then chemo will be required. I was originally told on ultrasound that the mass was 37mm, mammogram was 45mm and MRI 56mm, the ultrasound was done first followed by 3 biopsies before the MRI and was quite swollen so wondering if inflammation has been measured. Not a clue just trying to make myself feel better as 56mm seems big to me. Just so worried it had been there ages and the thought of it spreading just scares me so much.
I also had something spotted on my liver at diagnosis in 2024 during the breast MRI. I also had a liver MRI and it revealed liver cysts. Totally benign and common apparently. Hopefully yours will be too.
I really hope so, I have no symptoms of liver mets but also read early symptoms there isn’t any. Thank you for your reassurance, so many lovely people in here all going through a rough time all on the same path but all different stories and treatment.
My breast cancer was picked up on my routine screening mammogram. Triple positive, IDC and DCIS. Initially was told the IDC was 18mm. MRI scan revealed it was more widespread and scattered. The BC Nurse rang me with that news and informed me that two indeterminate areas had been seen in the other breast so I’d need further biopsies. When I saw the surgeon later that week he discussed the need for the CT scan and that it can be like opening Pandora’s box. Mine revealed a cyst in my liver. The biopsies confirmed DCIS.
This part is the hardest. Gathering information, more investigations, more results all mended to make a plan specifically for you. X
Yes -! my PET/CT scan failed to find my 23mm lobular recurrence (4 years after lobular 5cm, nipple sparing mastectomy, node clearance silicone implant reconstruction), recurrence only diagnosed by eye and by histology ), but found areas on liver and in colon. Both of these were clear on further testing. I was terrified when I went for the liver scan because she was going over and over same area and silent. Eventually I said how much that was scaring me. She said she was doing that because she couldn’t find anything.
All feels things can change so quickly. I have just been for my pre op this morning, surgery booked for 6th Feb for Masectomy but if some th ing comes back on liver test and my onco score comes back high then it will be chemo. Still not going to know until next Thursday, then if surgery a week to get my head around it.
anyone else had further testing and it came back clear x