@sam3 my plan is to be on Letrozole for another 4.5 years… With regular mammograms and the odd MRI. I am also hoping to get on a trial at the Churchill Hospital in Oxford (TRACK-ER). My oncologist promised that when I finished Abemaciclib he will enroll me as unfortunately, I am the perfect candidate.
https://www.royalmarsden.nhs.uk/trak-er
I am worrier like you and giving up control was very hard so I understand how you feel. Though, I was always advocating for myself and asking lots of questions. My oncologist wasn’t very happy with me but who else will stand up for us… It’s good to have someone with you at the appointments as sometimes you can miss something…and always be prepared like with what you want to ask. Write your questions in advance and prioritise them…it’s really helpful as in this way you feel a bit in control too…it’s our lives, our bodies…
I am really worried now about being on my own and checking myself for secondary BC symptoms…so monitoring is really important for me…the trial I mentioned is about having regular blood tests for the circulating tumor DNA…as when you catch it on CT or MRI is already too big…like the resolution is 4-5mm if you know what I mean…
Counselling really helped me dealing with a lot of things and also I’ve been trying to do mindfulness but am not very successful at it… though, I will keep trying!!
Take care. Wishing you all the best for the future. Xxx