New here and overwhelmed!

I just want to say “Hi” and introduce myself with my story so far……

In February, I found out I have a BRCA1 mutation. I had no signs or symptoms of breast cancer but due to the high-risk category I found myself in, I had a mammogram and MRI in April. The MRI showed up something that was ‘concerning’, so in early May I went back to the Breast Unit for a super squishy mammogram and an ultrasound. A ‘suspicious mass’ was seen on the ultrasound and I had a biopsy. The result was inconclusive, so I had to have a second biopsy. 2 weeks after this, on Friday, I had an appointment with my surgeon and was told I have Triple Negative Breast Cancer.

So, within a few months I’ve gone from finding out I have BRCA1 and planning for risk reduction surgery to actually having cancer. The BRCA1 news was sucky enough, but this Triple Negative Breast Cancer has kind of blown my mind and I’m feeling very detached from any kind of emotional response.

The mass is only 7mm, which is very positive and means it’s been caught early. Due to the BRCA1, I will be having a double mastectomy instead of a lumpectomy and this should happen within the next 3-4 weeks. I’ve been told I’ll be having chemo after the op.

I’m going to have a reconstruction at the same time as the mastectomy.

I don’t know what grade or stage the cancer is. I’ve seen lots of women posting about the grade and stage on other posts (I’ve been lurking for a bit!) and I know this is something I should have been told and it was very likely mentioned during my appointment, but all I remember is that the doctor used the word invasive many times.

I have an appointment with a Breast Care Nurse on Wednesday and I’ll make sure I ask her about the grade and stage.

1 Like

Sorry you found yourself here, but there is lot of support and nice ladies here.
I tought as they caught it early you will not need chemotherapy, they say invasive as it’s triple negative and after mastectomy they will decide what chemo you will have but hopefully you will not need it as it’s brutal.
My lump is 27mm so I am starting with chemo already 4 done (wipe me out) and two to go them mastectomy and radiotherapy.
Try to enjoy your time now go out and and go for walks and enjoy nice food.
Best of luck

2 Likes

Dear toad,

Welcome to the forum, the club you didn’t expect to join. We are here for you with love and support.

There is so much to take on board at the moment, however your breast cancer nurse will be able to fill you in with all the necessary, stage, and grades your appointment tomorrow. I would suggest you have a notebook and write down any questions you have, as we can be all over the place when there is so much going on. If you feel comfortable please take someone with you to the appointment.

This has been an enormous shock for you, take one day at a time at the moment. Be kind to yourself, take all the help offered.

Wishing you lot of luck going forward, with health and happiness ahead. Remember we are here for you.

With the biggest hugs Tili :rainbow::pray::rainbow::pray:

1 Like

Welcome to the club nobody wants to join! All the best to you for your journey ahead, you are not alone!

1 Like

Good morning, sorry you are in this position. This site and the love and support here will help you along. Sending you lots of posituve vibes. Hope the sun us shining for you today. X