HI ANY BODY LIVING IN MILTON KEYNES,I JUST HAD SURGERY AND WAITING RESULTS,WOULD LIKE TO TALK TO ANYBODY WHOS GOING THROUGH THE SAME .
Hallo Karen
I live in Milton Keynes too. I’m a few weeks behind you though. I was diagnosed on 3rd September and am due to have the op in two weeks time on 27th.
The waiting time for the op seems almost unbearable at times.
Is waiting for the results evenn worse?
Best of luck to you.
Hope its really good news.
Hi the wait for the results is the hardest,im very sore and swallon since the op.good luck with your op. karen
hi how did you find it,did you find alump my was a mammogram no lump just a shadow. karen
It was picked up from a routine mammogram on 16th August. I was recalled for another one on 27th August. Something unusual was showing on the mammograms so they did an ultrasound scan and a triple biopsy that day. I asked then if the consultant thought it was cancer and she more or less said she thought it was. I wasn’t too shocked when I got the results on 3rd September. I had a tiny sort of hope that maybe it wasn’t, but I knew soon as I was lead through the door on the left at the breast clinic that it was cancer. The wait for the op seems so long and then to be like you waiting for the results from the lymph nodes is to come. I was under the impression that the radiotherapy could be done in Milton Keynes so wasn’t too happy to know I’d have to go to Northampton (a town I don’t know at all).
I just want this thing out of me. I’ve been told that I’ll probably lose the nipple as the carcinoma is so close to it.
I’m not so much worried about that - I’m just so scared of dying - some of these stories on this site are so heartbreaking, especially for the young women with children. It just seems so unfair.
When do you get the results?
Hello Mouseybrown and Karen,
You are at the beginning of your journeys and I wish you all the best, please read some of the inspiring stories on the good news threads, there are plenty of them to give you hope and inspiration. You will “meet” some wonderful people here to help you along, it is not always bad news, although it is difficult to believe so at the moment. The waiting is definitely the hardest part, once you know what you are up against it will be easier. I know, cos I’ve been there, as many others have too.
All the very best to you.
Maria x
Hi Karen and Mouseybrown- Marial is so right: most of us on these forums have been there and got the t-shirts- and come out on the other side.
I too was picked up on a routine mammo (2 years ago) I had no lump, no signs etc.etc. but when I was recalled, guessed that it was cancer.
Like you, after surgery and SNB I then had to wait for the results to determine how bad it was and what treatment I was to have - in my case the wait was nearly 3 weeks of which by far the longest part was the 2 and a half hours in the clinic ‘on the day’.
I had been led to believe that it was likely that I would only need rads but unfortunately learnt that I needed to have all my nodes removed and chemotherapy as well. My surgeon - when I eventually got to see him, was really great and arranged for me to be operated on again the very next day as I was so fed-up; my results weren’t good but it was that awful wait that really got to me.
If you have to have it, chemotherapy is not nice - but we all get thro’ it and beyond it and most of us are able to put it from us and get on with our lives.
There’s no cure but I refuse to see myself or be defined as, a cancer ‘victim’. I think I’m just as likely to be run down by a bus or get heart disease or whatever as to die from my cancer.
I do agree with you about the distressing number of younger women with BC - my own daughter is one of them but it is now 8 years since she was diagnosed at 32 and she has coped magnificently with bi-lateral mastectomies & recons 2 lots of chemotherapy and is very busy with her 2 young children, her job(as a nurse) and generally getting on with her life .
At first you think it life will never be the same again but it will- though YOU will never be quite the same person… All the best and good luck with your res
Hello Moseybrown and Karen.
I live south of Milton Keynes so all my treatment hasn’t been at MK hospital. Initial dx was at Stoke Mandeville surgery at High Wycombe, back to Stoke Mandeville for chemo and then over to Oxford for radiotherapy. Quite a tour of the area! The waiting for results is always the hardest part. Once you have a treatment plan it all seems much more doable. I don’t know what your hospital is like for help groups etc but I didn’t find anything around me so have relied heavily on this site for support. I have travelled my “journey” with a group of ladies going through similar treatments at the same time at this has been a real lifeline for me. Please pm me if you want to. I’ve been through wle and snb followed my mx then chemo and rads this year. Just coming out the other end! Best wishes to you both.
hello,
I live between milton keynes and northampton, all my treatment has been in northampton, the radiotherapy unit there is very good and the staff were brilliant. also its not too difficult to get to from MK . Hoping this will help in a small way, sending you my best wishes.
Annie
Hi Mouseybrown,
Went to have under my arm drained on Friday at MK Hospital and the BC nurse had my test results earlier than I expected. There was no trace of any cancer cells in my lymph nodes or in the marging that they took around the lump. Still got to have RAD but there is hope for us all. Keep your chin up. karen x
That’s really good news. I bet you are so relieved.
My op is due on Monday. Most of the time I feel OKish, but Sunday was a bad day for me. It’s the fear mostly.
I am having terrible night sweats since starting the tamoxifen.
When do you start radiotherapy?
Hi Mouseybrown,
Yes I am very relieved.
I went to MK hospital today to the Oncology Clinic were they explained RADS to me. One of the breast care nurses was also there, the support they offer is fantastic. The Doctor said that I need to go to Northampton for a CAT scan probably in 2 weeks time where they will measure where my tumour was and the distance of it from my heart and lungs in preperation for RADS. The RADS will probably start a week after that.
I am still experiencing a lot of discomfort under my are but the infection has started to go now and the fluid retention is much less than it was last week. I have had it drained twice now and will prob have to go again at the end of the week.
I know it’s not easy but try to keep your chin up. We all think about the worst outcome but you need to stay positive, you could have some good news along the way.
hi i wil be thinking about you tomorrow,hope all goes well let me know how you get on karen x
Hi Karen,
Had the operation on 27th September. I was admitted at 8.45am but didn’t go down to theatre until 3.30pm so was starting to panic that they weren’t going to do it!
I get the results on 13th October. I’m surprised how sore it feel under my arm. I had it drained yesterday but it seemed to fill back up again almost straightaway!
Have you got an apppointment yet for Northampton Hospital?
Hi Mouseybrown,
The day of your operation sounded a carbon copy of mine. Don’t worry about the soreness under your arm, it will go away. I had under my arm drained 5 times over 2 weeks and wondered if it was ever going to stop. I feel much better now.
I go to Northampton this Friday the 8th for my CAT scan and hopefully they will give me the date that my RADS will start. I don’t think it will be long as my operatation was 4 weeks ago and my wound is healing nicely.
Stay positive, talk loads about what you are going through as it really does help and let me know when you have your results.
Karen.
Got my results on Tuesday. Unfortunately they found two other small cancer lumps in the margins. The surgeon offered me the choice of amother lumpectomy or a mastectomy. I immediately opted for the full MX and will have op on 1st November.
I got a phone call from my sister this morning and she’s really upset me. She went throught this 5 years ago and is fine after a lumpectomy. She says that she has done a lot of research on the subject and that I should definitely not go for the full MX. She says that it is far too drastic.
All I know is that I couldn’t bear it if it still hadn’t been caught with a second lumpectomy.
One good thing is that I won’t need radiotherapy as there won’t be anything to focus it on!
hi iam also a new member but dont know how to start new post could someone help?thankyou
Hi Mouseybrown. Sorry to hear that you need further surgery. This is exactly what happened to me. I chose the mx and when the results from that came in I’m glad that I did because they found two more very small tumours that previously had not shown up on any scans. I will pm you. Take care.
Hi mousybrown, I chose the mx, glad I did as three out of four quadrants were affected by the BC, now I don’t have to worry they missed anything and avoided numerous ops. I had immediate LD recon and no radiotherapy. Very happy with my choice!
Hi fairyqueen
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Best wishes
Sam, BCC Facilitator