Hi,
Waiting for my diagnosis to be confirmed SBC with bone metastasis. Life doesn’t seem real and I am terrified. Glad that I have found this forum to share.
Hi Michy1
Sorry to hear of your diagnosis. I was diagnosed in March this year so it’s quite new for me too. Your right it is terrifying but there is so much support and info on this forum to help you through it.
I felt so much better once I had a treatment plan in place. Mine is ER+ and is in bones, liver and lungs. My treatment is Ribociclib, letrozole and zoladex. I’m also on Denosaumaub which is a bone strengthener.
I hope you get a treatment plan sorted soon. Good luck
X
Hi Michy,
I’m so sorry that you find yourself here but warm welcome to you xxx Its a horrible thing to have to go through getting a diagnosis.
I was diagnosed with secondaries in January 2019 where it was found mets had spread through my spine, pelvis and ribs. A few months after that, the Oncologist was concerned that there was a few mets that had spread to my liver, so my treatment was swapped.
Since being on Capecitabine (over a year now) I’ve had great results in that there is no further concern about my liver (no sign of mets) and the mets in my bones remain very stable. I live a good life, working full time from home in a busy job, manage to get out for short walks every day and generally enjoy myself.
I get some side effects from treatment (skin issues and fatigue) but its actually incredible how much better I am than I was when they first found the secondaries! I have plenty of days where I hardly remember I have cancer and life goes on. Many people live with this disease for a long time and although the fear and anxiety of the future never goes away, I think you find your own way of adjusting and learning to live with it.
There are lots of people who live a very long time with secondaries too, as you will see from this forum and other places on the internet - none of us have any guarantee but the positive stories are definitely there so don’t give up hope xxx