Hialeah I’m new here
I’ve recently been diogniosed with grade three breast cancer . Booked in to have a lumpectomy and then chemo and radio therapy .
I am new to the Berkshire area . Recently widowed and disabled with fibromyalgia . Really struggling to come to terms with the bees and petrified
Hi HG12 and welcome to the BCC forums
I am sure your fellow users will be along soon and in addition please feel free to call our helpline on 0808 800 6000 for further support from our team, lines are open 9-5 weekdays and 10-2 Saturdays
The following link will take you to the BCC ‘Just diagnosed’ page where you will find further support ideas and information which I hope you will find helpful:
breastcancercare.org.uk/diagnosis?utm_source=Homepage&%3Butm_…
Take care
Lucy
Hi Leah, so sorry you have had this news, i myself was diagnosed with Grade 3 Breast Cancer last Thursday and am also struggling to come to come to terms with it 
I am having 8 sessions of Chemo followed by Surgery and Radiotherapy so i’m having the Chemo first, but i know exactly how you are feeling, it’s such a terrible thing to be faced with, but if you come on here you will find all the ladies are amazing and really do go through this together, I have found this site has helped me hugely and you feel that you’re not alone, as having cancer does take to make you feel you are the only person suffering, but in reality there are so many people going through the same. I have to have my Scans on Monday so have the added worry of whether it has spread but again the ladies on here have been amazing. I do really feel for you especially just recently losing your husband, keep talking on here you will find it a big help, also feel feel to message me whenever you want to talk, big hugs xx
Thank you . I hope it all goes well for u . I have to have this op first the 6/8 chemo and the radiotherapy .
At the Royal Berkshire
take care Helen
hi HG12 in similar boat if that helps at all, having lumpectomy on tueday 18th june and lymph removal alredy know its there. Then the long wait for stagin and major panic about if its gone anywhere else. Im just 48 yrs old and all been a massive shock. Dreading the chemo hoping to hang onto hair gonna try coldcap. Cant believe im saying this after major panic ive had last few days but hang on in there , your not alone theres thousands of us. Feel free to keep in touch, i know how scary it all is x
Hi there,
sorry you have found yourselves on here! But it is a great place to chat with people who really understand what you are going through! I was dx oct 12 with grade 3 BC! I had lumpectomy and 2nd op as not cleared margins! Only managed 2 out of my 8 chemos as so poorly! Finished my rads 2 weeks ago! I also used the cold cap! Still very distressing as lost about 80% of my hair! But I was not given information on caring for my hair and it wasn’t fitted properly on first chemo! Make sure lols you insist on it being fitted correct and your hair is very wet and lots of conditioner! If you need more advice just ask as found out all the does and don’t to late! However, on a good note my hair is coming back , iwas able to ditch my wig 3weeks ago and I’m down to a thin Alice band.
HG12 im sorry that your having to deal with BC and fibromyalgia so big hugs to you! Hope you have lots of support around you! If you wanr to get anything off your chest just put it on here always someone to chat to who will understand!
It a hard journey ladies but you will get through it! I was advised to read " spoon theory " it helped me and my friends understand what I was going through!
love, hugs and xxxxx to you all
hi nottonerinotton (thats long) thanks for your advice with coldcap, and nice to know other people understand your fears and major major worries. Bag packed and surgery tomorrow lumpectompy and anc in afternoon hopefully this time tomorrrow that will be over. Then back in july for further surgery if clear margins to fix dip with muscle from back. Happy days! Then long wait approx 10 days for staging imagining worst. Plus need to get haircut as long, thick and curly , dont want it to short though. Do they give you advice on wigs etc? no ones mentioned any of this. Does your hair have to be wet when they put coldcap on? Do you get headache imagine so? Sorry so many questions, keeping my mind of tomorrow. thanks x
Hi I’m new as well. I’m awaiting my results on 24th. Leah I hope you are ok you sound like you are going through such a difficult time. Sending you my best wishes x
Hi lols
Thinking of you today! They will go through wigs with you once you know what treatment your having.!I also had long blonde hair! My pride and joy as everyone keeps telling me! I got a wig from NHS called Anya! Cost me £68 but thats because I worked! It had a fine net area to the front so I could clip it back just like my own hair and you could see that line in the front as it blended in with my skin! My hairdresser styled it just like my hair! Yes I hated it to start with and it wasnt my best friend! But it did look good and I grew to like it!
Make sure your hair is very wet and coated in conditioner! Buy your own Boots Fake range are good and very gentle! Smell not bril! Because I lost about 80% of my hair!! Looked like the mad professer !! I purchased Nioxin shampoo and conditioner when I was coming to the end of chemo and nearly four months on my bald patchers are covered with fine baby hair so stopped wearing my wig about month ago!! cost about £30 if ordered on line or if you have a good hairdresser they can get it half the price.
Best wishes Norms xxx
Lols!!! meant to say you couldn’t see the fine line in front!! Chemo brain as can’t say its because I’m blonde at mo!! xxx
Hi, I was recently diagnosed with grade 3 breast cancer. I have had a lumpectomy, slnb and had to go back in last week and get rest of lymph nodes removed from under my arm. Also my initial blood results came back with an abnormal reading for my liver, so after having a ct scan and ultrasound for that, I have an appoinment with a gastro consultant two days before I go back to see my breast consultant next week. I obviously dont like doing things by half!
Feeling better than I expected after my first op, I am now feeling sore, tired and getting more depressed after this latest op as the days are going on. I guess its fear of the unknown as I have been told I will need chemo, radiotherapy and hormone therapy. It just seems to be one step forward and five back.
On a more positive note, I got my long hair cut up to my shoulders (in preparation of maybe loosing it all )and it takes years off me, I should,ve done it years ago lol
Senga x
Hi Senga!
I’m in a similar position to you, except that I’ve had a mx and am going in next week for node clearance, which I’m not looking forward to at all. I’m going for CT and bone scans this Friday, and have been told I’ll have chemo, radiotherapy and hormone treatment after my surgery.
I was really hoping for the best when I went for my results after the mx and had convinced myself the cancer wouldn’t have spread to the lymph nodes, but of course it had - at least to the ones they removed at the same time. My tumour was Grade 2 but 8cm so they’re obviously throwing everything at me!
I feel as though I’ve been hit by a metaphorical truck, and after feeling great for the first week after my mx am now tired all the time, depressed and fearing the worst, so I know how you feel.
I’m sure we’ll get through it all though - roll on 2014…
Annie x
hey big hugs ladies! its such a hard journey we have to go on and no one truly understands us except the ladies on here,
The tiredness is such a battle as are our emotions! take note of what your body is telling you and rest! I hate not being in controller of my body but have learnt not to fight it and rest! We actually went to friends a few weeks ago and I got so tired I took myself up stairs and got into their spare bed!!! When the fatigue kicks in I need my bed!! But I didn’t want to spoil the party!!
you will get through it but take each day at a time! Be gentle on yourselves !
Best wishes.
Norms xxx
hi norms im back from hosp, thanx for cold cap and wig advice. arm feels like ive been to dentist for injection but got good analgesia. No sleep in hospital so cant wait to go to bed with this attractive drain insitu. Op was a relief and felt very calm at last felt i was taking first step on ladder. Lovely dip from lumpectomy which will be corrected at later date but can live with that no prob.Important thing for node clearance and i have noticed in one day is to do exercises they show you with analgesia on board it really helps. Off to bed now i was told to take it easy and for once im sooo tired im listening. hanx to everyone for suppport and im around for few days with my handbag as not good luck out and about, hopefully all out monday. x
meant not good look not good luck analgesia still on board!!!
Hi lols
so pleased it all went well! I was amazed at how quick I could do the exercises to! Wait till analgesic wears off lol!! Your boob sounds like mine! I have quite a large scare and indentation . I needed second op as didn’t clear the margins! Nipple is starting to turn in! But like u not worried as going to be corrected in a few months! My BC consultant said he would give me thirty years boobs! So def looking forward to that! Not that I can remember what my boobs looked like at thirty! Hehe! Hope your lymphs are clear! Everything crossed!
Good girl you make sure you do listen to your body! Fatigue during chemo and after rads is so hard. I have no choice but to listen to my body!
hope you sleep well,
Norms xx
Glad all went well, Lois - just don’t overdo it with the exercises, gently and gradually does it!
Annie x
Hi slept well already know it went to lymph wen had biopsy, just have to wait for full staging 1st july, trying to stay positive somehow feel a bit better now lump out. Drain clunking everywhere when went to loo this morn, but my sons girlfriend arts and craft teacher has made some really pretty drain bags (adjustable0 . They are washable so when all over il leave em with bc nurse for some other one of us!! Going to have shallow bath now and OH going to wash my hair whilst ive still got it. Hes a bit heavy handed so prob have headache all day make me forget arm, shoulder pain though. Only time get really panicky is when i see how close lump was to lymph but consultant assured me wont change anything still got same treatment, just got to trust them. Being a nurse and this dx is the worst know too much but not enough!!!. Hope u all ok and hav a peacefull day . Ive decided to hav one big worry when i wake up then its got to go away for the day i want a bit of me back and its better for my family. Might not work but gonna try, looking as it as well its happened and i cant change it so make best of it, why should we have to change its just a hiccup and we will all move forward. Right off for bath Thanx for replies mean loads xx
Lols
how’s the head after OH washing the your hair! My hubby is heavy handed to so wouldn’t let him or anyone near my hair once I start chemo! And if anyone went to touch it !! Not good! Lol.
I’m the same with the district nurses! My consultant said its worse for me as I know to much! I went back to work last week! Thinking now it was probably to soon but hey will get through it!! Also have chemo brain!! Not good!! After leaving a patients house I drove home instead of back to the surgery! God help the pts
i felt a sense of relief after my op knowing it was out of my body!
Take one day at a time, be gentle on yourself and I’ve learnt to go with my emotions! It’s a scary journey!! Will it ever be over ?? I don’t know but it is getting easier!
Norms xx
head ok he was quite gentle really but wont let him do it when chemo starts. Glad uve said its gettin easier with emotions had wobble again today. bcc nurse suggested i speak to gp about some antidepressants whilst in this mist, phoned gp and they phoned me bk to discuss and asked if i had sucicidal thoughts had to laugh said NO had major thoughts that want to stay alive!!! Got months supply and then review, so id better get my act together. Was so good this morn like a rollercoaster now, fixated on how close lump was to lymph convinced every node involved now !!! Im not allowed into wk on chemo due to wd being some medical pts with shingles, chest infections etc so going to look at helping some charity etc anything to keep busy. Live near swansea so theres plenty out there. y one big worry a day didnt work but il try again tomorrow, all hang in there, just a hiccup xx