Hi everyone,
This is my first time on here, I have been reading everyones stories over the last few days and find them so interesting and helpful, everyone knows where they are upto and what they have to go through, I was diagnosed on 04/08/10 with grade2 BC in the duct?? is this what they mean by DCIS??, I had a lumpectomy and some lymphnodes removed on 20/08/10 but i am now waiting for results, i know I could ask my BC nurse but i struggle to get hold of her. I have a loveley family and great friend but find it difficult to talk about things with them for fear i will upset them and i dont want them to think that BC is all i can talk about even though it is all i think about.
so sorry to sound so negative but really am struggling with this.
Take care everyone
Vicky x
Vicky - I am so sorry you are having to go through this and that you had to wait a long time for a reply this evening. You will normally get a response really quickly, so please don’t be discouraged from asking any questions or having a rant if you feel like it. You will get a tremendous amount of support on here if you want or need it.
We all understand how hard this is for you and the waiting for results is truly awful. In answer to your question, it could either be invasive ductal carcinoma (IDC) or ductal carcinoma in situ (DCIS). You would have to ask one of the team looking after you to find out for sure.
Have you long to wait for your results? Please let us know how you get on.
Good luck.
Ann x
Hi Vicky,
So sorry for you to have landed on here your head will be all over the place and it is only natural to want to talk about it all the time, it will take a long time for it to settle down in you mind and for you to be able to consentrate on other things.
When you go to the hosp you could write down a list of things you want to know or questions you want to ask, if you are anything like me my mind just goes to mush when i have to have results or anything like that.
Once you know where you stand you will feel a little more in control, it will be natural for you to be frightened, that is something everyone with a dx of cancer goes through, infact a whole bag of emotions and you feel as though nothing will be right in your life again but it does get better as time goes on.
Once you have your head round everything and you feel the need to talk to someone, the haven or maggies centre or someone from mcmillans is a good way to start without feeling you are worrying or even boring your friends and family with it, not that i think your family would think that, i think most of the time it is just us who feel that way.
I hope you get the best news you can hope for when you go for results and please let us all know how you got on.
Thinking of you
Reneexx
Hi Vicky,
As above, welcome to the Breast Cancer Care discussion forums, you’ll get lots of really good support from the many informed users of this site I am sure.
After reading the posts above I thought the BCC Resource Pack may be useful for you so I have put for you below the link where you can order one. All BCC publications and services are free of charge.
Resource Pack
breastcancercare.org.uk/search-results/*/changeTemplate/PublicationDisplay/publicationId/82/
If there is anything you need to ask, just ask away either one of the users will help you or one of the BCC Facilitators will try to point you in the right direction. If you need to talk to someone in person, then there’s the BCC helpline for you. Again calls are free, 0808 800 6000 lines open M-F 9-5 and Sat 9-2
Take care,
Jo, Facilitator
Hi Vicky just wanted to say hi and wish you well for your treatment. I didn’t get much support from my BC nurse either, couldn’t get a hold of her and was really disappointed as i had really high expectations but i think they have so many people to look after they struggle a bit. I did speak to a mcmillan nurse at my hospital and she was great. The help line here is really good too and like renee said the cancer centres. It is a frightening time especially waiting for results. And it is hard knowing how much to say to your family and friends, i found that they let me take the lead in how much i wanted to talk about it. It does take over the landscape for a while and the people who love you will want you to talk and feel supported so if you want to talk to them. One of the positives to come out of having cancer is the support you get sometimes from really unexpected places.
Good luck with your results let us know how you get on.
Love Jaynexxx
Thank you so much for your kind words, I will keep you posted as to my results which I think I will get on Friday?? It really is good to talk,
Thankyou all so very much again for your replies
Take care
& thinking of you all x x
hi all i to have just been diagnosed with bc 20/8/10,i have my operation on the 6/9/10,i am trying to be as positive as i can but find it very hard to accept that it has happened ,i keep a smile on my face but inside im so scared of the op mackiiii
Hi mackiiiii
I can understand you being scared of the op, I dont think its anything anyone would choose to have. What op are you having? Is it lumpectomy or mastectomy?
Julia xx
Hi mackiiii - It is only natural that you feel as you do and most of us have been where you are now. It is good to be positive, but understandably difficult sometimes. Just take one step at a time. Try not to read too far ahead on here because it can be very scary and much of it may never apply to you. You will get lots of support and information on this site, so if you have any questions just ask and someone should be able to help you - or just have a rant, which really helps as you can express your true fears without upsetting anyone.
Good luck with your op.
Ann x
Hi Ann, Renee, Jo & Jayne
I hope everyone is doing ok and keeping well.
I did get my results on Friday and they are I think as good as they can get I had 4 lymphnodes removed and they were clear and the lump removed had good clear margins so as the breast care nurse said I no longer have cancer, I still have to wait for treatment, BCN said she thinks i should have 20 sessions of radiotherapy and then Tamoxifen I can live with that. I do think what you said Jayne about things changing when you get your results and an idea of the treatment plan how diffrent you feel because i actually feel quite normal again? I know there is still a long way to go but I do feel more stronger than when i first posted and was struggling with everything, but I do think it has helped so much coming on hear and reading such amazing stories and the courage that you all have.
I wish you all well
Luv & best wishes
Vicky xxx
Hi Vicky,
That’s such great news for you. Hope the radiotherapy goes smoothly and your life gets back into sync.
I’m really tired tonight and think that’s when the tears kick in. I’ve actually had a really lovely day with my friend and family, but tonight could just sit and cry!! Crazy!
An early night I think.
Hi Mackiii. I know just how you feel and it’s very natural to be so afraid. I had my op 16 days ago and it really hasn’t been as bad I thought it would be. I hope it all goes well for you. You will get through this. Let us know how you are.
xx
Hi Vicky
Glad things went as well as they could for you and you can get on with your treatment. It does help to know where you are with it all. Am just about to start rads too, got my planning on wed, let me know how you get on.xxxx
Hi Mackii
It is totally normal to feel afraid and you have just recently been diagnosed so are maybe still getting your head around it. I had my mx just over 3 weeks ago. I was really nervous but looking forward to not having cancer anymore. I can honestly say it was really okay, i was a little tender after and stiff. And am healing and recovering well. Let us know how you get on. Wishing you lots of love for monday. Jaynexxx
Blueyegirl
Iwas the same tonight, very tired and just sat and had a good cry always makes me feel better, and some sleep. Sending you a big hug xxx
Hi Ladies,
Thank you so much for your kind words and support.
Hi Jayne
Hope all goes well on wednesday for you, I dont think my Rads will start for another 5 weeks so you can let me know how you go on.
Hi Blueyegirl
I hope your feeling ok, you can’t beat a good day out with family and friend but it does end up taking it out on you though so i hope you had a good night sleep.
Hi Mackii
Hope all went well for you yesterday and you are not suffering to much today, just make sure you take things easy and don’t try and do to much.
Good Luck to everyone
Take care
Vicky x x x
Hi all
I am also a newby had WLI 10 days ago got appt tomorrow 8th Sept at Breast screen centre with Consultant for results of sentinel node biopsy. Little anxcious today hoping and praying I will not need further surgery.
Maggie
Hi Maggie
Just wanted to wish you well for tomorrow. Try to take your mind off it today if you can, i know it’s easier said than done. Hope ti goes well for you
Love Jxxxx
Hi Maggie,
Good luck for tomorrow, I know it is an anxious wait but every thing about BC seems to be a wait, but hopfully you will get good results and can then move forward.
Will be thinking of you
Take care Maggie
Vicky x x x