Thankyou for your responses to my post. I feel much more hopeful reading your posts, thanks again Lisa xx
Lisa,
Another Lisa here, diagnosed 3.5 years ago with Liver, Lungs and Bones. Had taxotere did not work, Navelbine had in 2000 on a trial with my primary so went straight on to Capceitabine and have been on it for 3.5 years and am doing really well, life is normal, I have my long hair back, good immune system, got rid of my lung mets and liver mets on its way out too, with bones stable.
No one would ever know I was mouldy on the inside. Try and go for Capceitabine first, there are loads of us with success stories and the side effects are so much better than other chemos. Up to your oncologist of course, but I would always recommend it. p.s I am now 37, first diagnosed at 27 with primary.
Hope this helps too.
Lisa
Hi Lisa,
Thanks for your positive response to my post, it gives me hope.
I had FEC when I was first diagnosed with breast cancer in 2005 & had Taxotere when I had my first recurrence in 2008. Obviously they haven’t worked & I don’t think the Navelbine is working as I feel like my breathlessness is getting worse by the day. I will be seeing my onc on Thurs so hopefully she will be able to recommend something else.
Lisa x
Hi, I’ve never used the forums before so am very new at this. I was initially dx in March 06 (at age 46) then with secondaries in bone Jan 08. Was told y’day that it’s now in liver and lungs. Don’t know what to do! Hated chemo before and always said I wouldn’t do it again but have a couple of weeks to think about it. Would appreciate any advice.
Hi Hoppy,
I know exactly how you feel regarding the chemo. I had 2 recurrences of breast cancer before I was diagnosed with secondaries so I have had FEC & Taxotere & had terrible side effects with both treatments.
I am currently on oral Navelbine & the side effects are nowhere near as bad. I haven’t been sick from this chemo & you don’t lose your hair (unfortunately I have lost my hair anyway from the WBR)
I am due for a scan next Thurs to see if it has helped at all(fingers crossed).
It might be worth trying?
Lisa x
Hi Lisa,
Thanks for that info. Was looking at some of the other posts too. I was on my own at my consultation on Weds and I can’t remember what I was offered! It all gets a bit much when they are telling you this stuff eh? My Onc did print out a leaflet on Capecitabine though which I’ve seen mentioned quite favourably. I really need to look into it more but seems like I’ve been on the phone non-stop since Weds night. Also think I need to change my life-style quite a lot! Thanks for your help and hope to get to use this sight more in the future. Hoppy xx