Newly diagnosed triple negative and mind blown

Thank you. I may invest in the book and have a look for the Facebook group although there seems to be a lot of groups! I’m wavering between trying to learn as much as possible and then being terrified when I read at the moment. I have a CT scan and another meeting this week and am impatient for them both this last week of waiting seems to have gone on forever.

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I completely understand and it was some time after my diagnosis that I felt ready to learn more. I’d recommend the Triple Negative Breast Cancer UK and Ireland ( TNBC) Support FB Group. Some of the American ones are just a bit bonkers and also quite religion heavy which I found a bit off putting. The UK one is really supportive and informative and totally not terrifying. Good luck with your scan xx

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Hi there. I’m sorry to hear about your diagnosis. I was diagnosed with triple negative in November 2023 at 44. I am now cancer free so wanted to share my positive result.
I was told it was grade 3 and my interpretation was that meant it would be a bit stubborn!
I had chemo and immunotherapy. Then a lumpectomy and radiotherapy. At my first review after the first cycle of chemo/immunotherapy they could already say it was responding because the lump was smaller. That was a great boost. But I would say take each stage, even each day, one at a time. It’s tough going but try and hold onto the positives. But also good to have someone who you can have a good moan about it all with - or use this forum. All the best with your treatment.

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Thank you so much for taking the time to share your journey with me May1. I had my CT scan this morning and have my next appointment tomorrow. Like you say I need to think about just one day at a time instead of letting my brain race to the future it’s hard though as just keep thinking about my husband and kids etc but really needed to read this today :blush: and huge congratulations :tada: on being cancer free x

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