Hi
I was diagnosed on Tuesday.
It was a shock because the GP thought my ‘lump’ was just fibrous tissue… and the consultant kept repeating that ‘I really don’t think this is anything to worry about’ - he said he was 90% sure.
Well, it turns out that the lump I could feel was fibrous tissue, but there was another 10mm cancerous lump underneath!
I think the reality is sinking in now, and my mind is going into overdrive
I know that I have IDC, it’s 10mm, grade 2, er+
It tested borderline for HER2, so that needs to be repeated.
I’m scheduled for WLE and SNB next Weds.
I’m bracing myself for more bad news.
I’m having phantom (at least that’s what I hope they are) pains all over…
Full results not until 19th July. How on earth am I going to get through to then?!
Sorry for being so ‘down’, but reality is kicking in:-(
Hi Luvvie66
so sorry you’ve had to join us but you’ll find a lot of support on this forum. You’re in the worst place possible at the minute, the waiting room really is the pits. Every one of us on here has been in the place you’re currently at, terrified of what they’re going to tell you and fearing what the future may hold. Like you I had pains everywhere and feared it had spread, I think we all do that, I still do. I had a 19mm lump, grade 2, Er+ and like you was borderline her2+ which proved to be negative once retested. I had a WLE and SNB and a micro met (less than half a mm in size) was found in 1 lymph node so I had further surgery for a full axillary clearance, i’ve now had 5 out of 6 chemo’s with 15 rads to follow. Don’t be frightened if you need chemo, it’s not pleasant but is more than doable. Once you’ve had your treatment plan you’ll start to calm down and go with the flow a bit more, but I appreciate at the minute that seems a long way off. Keep your chin up.
Take care
Lydia x
Hi Luvvie66,
Sorry you have to join this club but it is so friendly and helpful, you will have lots of questions so just keep asking!!
It is such a shock and it’s very difficult to keep everything under control, I too just couldn’t believe it!
Once you have your plan in place you will feel calmer it’s the fear of the unknown until then, so keep posting, best of luck to you on the 19th, and lots of hugs coming your way, take care xx
Hi Luwie66
I to have recently been diagnosed but with ILC.
Im waiting to hear when my mx is. Its all this waiting i cant stand i just want something to start happening grr. My oncologist said she would ask the surgeon to phone me but if he doesnt she will defiantly know by friday!!! Friday thats another week gone by grrrr
Lets hope all this waiting around stops soon
take care
Anne xx
Hello LUVVIE66, We know just how scared you are but I am pleased you have found the site. A great place to get support. We are a friendly bunch and want to help if we can. It is scary but once you have a treatment plan in place I hope you will feel a bit better.
Cyprusanne, The hanging about waiting for testa and results is the most difficut thing to deal with as your mind goes into overdrive. One suggestion do not google as there is so much out there that does not apply to you. Keep posting on here and we will try to help you and Luvvie66 get through this.
I hate the waiting too. Love Val
You`ll find the strenghth to cope,hope you have good family support,i would be lost without my family around me,the waiting is so difficult,agree with Val,once you know whats what you can begin the fightback.good luck,
love Di.xx
I’m really sorry that you have had to use this site. However you will get loads of support and help full tips.
Try and keep busy and only go to this or NHS sites for info. Some of the information out there is more scary than true and some just plain lies.
Your dx may not be as bad than you expected, keep in touch and let us know how your getting on.
Glo
Hi ladies
The waiting is the worst part. I too had aches and pains everywhere and decided I was riddled with the stuff! Turned out to be irritable bowel due to the anxiety I was under! Had my surgery this week and after feeling so scared for what seemed like a lifetime I was ready for it once I had been given a date. Obviously still waiting for histology but I already know about lymph nodes and had clearance done. My tumour was approx 12mm by 14mm a grade 2 IDC and ER+, waiting for HER2 results. Chemo and rads are next. It does get easier and as everyone says we are here for each other.
Good luck
mandyj.x
Hi Ladies
Thank you SO much for your replies and reassurance. Whilst I hate to think of anyone feeling like I do at the moment and going throught this horrid process, it comforting to know I’m not alone.
Chascat, I am worried about Chemo - strangely it’s not losing my hair that concerns me, it’s the nausea and sickness that frightens me. If it gets me through to the other side, then it’ll be worth it.
Cyprusanne, I hope you get your date soon. At least I know my date - it might be a wait away but I have got something to focus on. I hope you get that clarity soon x
Mandyj, I hope you are recovering from surgery, you’ll have to let me have any post surgery tips - we sound like we are in a similar sitaution at the same time…
A couple of you have mentioned not to Google… Guilty! I have scared myself to death by articles with statistics and gloomy outcomes. Now I’ve found this site, hopefully I can information and support without going into a blind panic
Take care everyone, I’ll be keeping up to date with all your progress and will let you know how I get on
S x
Hi as chascat said, chemo is totally doable, I’m due my last lot this thurs. just eat heathly, always talk to your onc as they can give you pills for sickness, mouth wash for ulcers. There is always something they can give you. I took my sickness pills whether I felt sik or not, but to be honest I haven’t bothered with them since my 2nd session. Drunk lots of water as it helps keep your kidneys heathly, eat well. I showeredtin aqueous cream every day to stop cracked heels. Put dark nail varnish on as chemo can be uv sensitive so potentially cause nails to lift. I have been absolutely fine all the way through, so don’t worry too much about it. It’s so reassuring when you can feel your lump shrink away as the chemo blasts the crap out of it!
Hi Luvvie66
Welcome to the BCC discussion forums, I’m glad to see that you’re already getting some good support from the many informed users of this site.
To help you along I have put for you below links to a couple of BCC’s publications you might find helpful. If there’s anything you need to know just ask, nothing is too trivial here. For added support our helpline team are only a free phone call away 0808 800 6000, lines open Mon-Fri 9-5 and Sat 10-2.
www2.breastcancercare.org.uk/publications/diagnosed-breast-cancer/breast-cancer-you-diagnosis-treatment-future-bcc44
www2.breastcancercare.org.uk/publications/diagnosed-breast-cancer/resource-pack-primary-early-breast-cancer-bcc145
Hope these help. Take care
Jo, Facilitator
You are stronger than you think. Hold on to that thought, and try not to panic. Before my diagnosis, I found a lump but both a mammogram & an ultrasound came up clear so I know the shock you’re feeling when suddenly everything changes.
My advice is to ask lots of questions & do your research so that you are fully involved in all the decision making process. Also, surround yourself with people who are positive and don’t be afraid to ask for help.
You can do this, believe x
When I was diagnosed I was also terried of feeling sick. Feeling sick makes me cry, I told my onc. She said she would ensure that I didn’t feel sick at all. She gave me 4 different types of anti-sickness, including Emend which is the best. You sometimes have to shout for that as it is expensive.
But make sure you take them even if you don’t feel sick, that’s the best way for them to work.
And make sure you tell your onc if something doesn’t work, you don’t get extra medals for suffering.