I was diagnosed with idc 3 weeks ago. Although screened annually due to family history the cancer did not show on my mamogramms. Fast forward, core biopsy showed grade 1 idc and ultrasound showed 8mm. I was led to beleive that this was all good and unlikely to be in the lymph nodes. Had lumpectomy last tuesday with snb, and shock, horror it
was in the nodes, so my surgeon took the rest of them out. I go back on Wednesday for results, but cannot get my head round the spread so quickly , has anyone had anything similar happen to them, any advice or words of wisdom would be much appreciated. I don’t know how i’m functioning a the moment.
Since posting this i have had some lovely replies thankyou and want to reply but the website wont let me grrrrrrrrrrrrrr
hi mickey
i just wanted to add the waiting is the worst part
when you get a treatment plan things start to carm down and get a little easyer
there are lots of ladies on here where it hit the nodes me being one of them
things do get easier hun
alison xx
Hi Mickey,
Sorry to hear about your diagnosis. I was told they were only going to take 4 nodes out before my WLE surgery but when i went for the results they told me they’d taken all 25 out, which were all involved, I was absolutely shocked. There are loads of ladies with nodes involvement, just like Alison said. Try not to worry too much about the nodes issue, at least they have taken them out. The fact it’s only a grade 1 and a small tumor, that’s positive news, so just think of it that way…
Hope all goes well for you…
My diagnosis was different to yours, grade 2 and 19mm but still relatively small, my ultrasound for my lymph nodes was clear and they weren’t expecting to find anything but found a micro met (0.4mm in size) in one of my lymph nodes so like you ended up having an ANC, was also terrified of getting the results but the rest of my nodes were clear. Having been using this forum for a few months now it’s evident that there seems to be no logic to it, there are ladies with very large grade 3 tumours with clear nodes and others like yourself with small grade 1 with affected nodes. I was devasted to learn one of my nodes was affected but ultimately it means your nodes were doing their job and trapping the ba*****d! Also try not to think of it as getting your results, but more like finding out what your treatment plan will be, once you know that you’ll feel more in control and much calmer, and please don’t panic if you have to have chemo, it’s certainly doable, I was borderline for chemo but opted for it for my own peace of mind that they’d got it all.
Please let us know how you get on.
Take care
Lydia x
In addition to the support and help here please feel free to call our helpline team for a chat about your concerns, the number to call is 0808 800 6000 and the lines are open during the week 9-5 and Saturdays 10-2
I am posting a link to the ‘newly diagnosed’ section of the website where you will find further support ideas and information which you may find helpful:
Just wondered if anyone else had a grade 1 cancer with lymph node involvement? I need some positive stories
as I am climbing the walls waiting for the results. Michelle x
Hiya Michelle…well mine was grade 3 cancer plus 25 lympth node involved and er negative and mine hasnt spread! and apparently grade 3 is more aggressive… so im sure if i had clear results …you will too… …x
As you know I didnt want to know my results but the new onc who i saw today wasnt going to give me any choice lol. i had my CT scan a month ago too… xxxx
Could anyone tell me how long is an acceptable time to wait between lumpectomy/mastectomy and the meeting with the consultant for the pathology results ? I am having a serious sense of humour failure here trying to get an appointment and this is private health care (lucky to have through husbands employers). thanks michelle
Hi Michelle,
I was diagnosed with DCIS with a 90mm spread. Iam now 6weeks post mastectomy and LD flap recon and thought that was the end… until I got the pathology results back 10 days ago that they found a 30mm spread within the DCIS of IDC. They have graded me a 2 and am also er positive. I had a sentinel nodes procedure done before the big surgery where they removed two nodes. Thankfully this came back clear.
They recommended on the account for my age having chemo was the best ‘insurance’ option. So, they last 10 days have been fairly pants. But, I know iam not alone thanks to the beautiful people on this website .
I now know that i should have met with my surgeon at least 2 weeks after surgery and not have been told as an outpatient when i went into get my seroma drained. They plastics team thought id already had my meeting and i got told rather hastily…
Try not to worry. easier said then done i know.
fingers crossed
x hannah
Hi Michelle,
I had a lumpectomy and sentinel node biopsy privately, on a Saturday morning and was given some information the next morning when the Surgeon visited me. More detailed information was given at an appointment the following Thursday.
loula
That was really quick, where were you treated if you don’t mind me asking? It will be 10 days for me which seems like 10 years! Did you need further treatment? Michelle xx
after a wle and lnb its normally 4 weeks .i waited 4 weeks then i had to have second op for anc then waited 2 weeks i am grade 3 but my lumptomy was clear and i had 1 positive node but they took 11 out and they were clear but am having chemo nxt week and then rds am very scared like you but like kb said grade 1 is very positive as grade 3 is aggresive and i have been cleared just having the horrid stuff to mop it all up xxx good luck and let us now how u get on huggs xx
Michelle,
I had a WLE and SNB in April last year privately (again due to fabulous private health insurance). I went to see my surgeon at 3pm at his consulting rooms to be marked up with the dye etc for the SNB, then went across the road to the clinic where he operated at 5pm. He came to see me after I had come round about 7.30pm, gave me the new that there were only non viable cells where the tumour had been and that the SNB was clear. I went home the following morning, stopping for a pub lunch on the way. I then saw him the week after to check the scar etc. And then didn’t see him again for 6 months which was my first annual mammogram (October last year). Will see him again in October this year for 2nd year mammogram. My tumour was grade 3, 45mm and I’d had chemo prior to WLE and had rads after. I finished 12 months of Herceptin in Feb this year.
Hope that helps you put your treatment into context.
Sam
…x