Hi i was diagnosed just 2 weeks ago and found today I have invasive ductile cancer. Looking likely I will need a masectomy due to numerous lumps on the bottom part of the breast. Getting mri to confirm if it’s elsewhere too. I’m just curious of people’s ages, children and what sort of treatment plan you all had, and how people have managed after a masectomy with small children. I’m 38 with a 5 year old and an 18month old. X
Hi Melia,
I’m sorry to see you haven’t received a response yet. I’m sure other users will be along soon to share their experiences and show support.
Best wishes,
Bonita
Hi Melia,
I was diagnosed 5 weeks ago and have started my chemo already. I am 37 with two boys aged 10 and 7yrs.
I have grade 3, invasive ductile cancer, triple negative and in my lymph nodes but not spread elsewhere. I have 1 large lump 5x3x2cm and several smaller ones so will definitely be having a mastectomy but am have 8 rounds of chemo first.
I told my children the day I was diagnosed - my eldest took it the hardest but they are both doing quite well considering. My hair started to fall out yesterday which I think is hard for them, although my youngest wants to shave his head if I go bald so I am not alone! Xx
Thanks happy bouncing I’ve just sugar coated it with my 5 year old will tell her a little more once op is confirmed. You sound so brave with the chemo I’m really hoping I don’t need it but if it’s needed I’ll have too. Ah that’s a lush thing for your boy to do xx
Hi Melia I’m 42 with 3 kids - 10,8 and 2. I’ve been diagnosed with invasive lobular but am waiting on MRI and more ultrasound etc to determine the exact picture. I was told at my appointment 3 weeks ago. We’ve told our kids- worst thing ever! I’m so worried for them and that I’ll not be around for them all. Xx
I’m actually 41 but my phone keeps on aging me!!! Xx
Hi Melia, I was 39 when i was diagnosed with triple negative breast cancer in January 2015. I had lumpectomy, 6 chemo (fec-t) and 19 radiotherapy doses. I’ve no children. My husband was brilliant during my treatment. I was fortunate to have a Maggies centre nearby too. I found the surgery recovery not too bad, chemo i didn’t like the fec part of the treatment, i had quite a few side effects, ( tiredness, mouth ulcers, muscle weakness, nausea, hair loss, ) but not everyone gets them. Radiotherapy at the western general in Edinburgh was pretty straightforward. The thing is about cancer treatment is that each of our bodies act differently. A few people are fortunate enough to not get many side effects. I wish you all the best with your treatment.
Hi, 45. 22 year old and 19 year old boys. Used to run 25k over the course of the week and weight trained 4/5 days a week. Don’t smoke hardly drink and no family history so diagnosis knocked me off my feet to say the least. Finding support on here is incredible and much more informative than other sources.
I was 38 when I was diagnosed. ER, PR, HER2 +. 41 now. Went through with lumpectomy, chemotheraphy, radiotheraphy, and Herceptin. I am currently having Zalodex (each month) and Tamoxifen daily. I will be removing my ovaries next month, and with that, I will not have to go through with Zalodex anymore, and I understand I may have to swap Tamoxifen with AI. No children sadly, but all is well.
Hi was first diagnosed in 2009 aged 40 with grade and stage one. Diagnosed in 2016 age 47 with secondaries. I’m nearly a year on from secondaries x