Hi everyone
I am 33 years old and was diagnosed with Grade II lobular breast cancer on Wednesday 27th April.
The Doctor was speaking, but after the words ‘I am afraid it is breast cancer’ came out of his mouth I felt like I was listening to something that was affecting someone else, not me. I was floored and I was numb.
Is this normal?
I am going back on the 9th May to discuss the treatment further and it will give me chance to speak to them more about all off the random questions that have popped into my head that I have to ask!
The hardest part so far is telling people and seeing how upset they are and how helpless they feel.
I didn’t even know there was forums like this around. It is helping just typing this and I hope I don’t seem like I am rambling too much!
I just want to say, I have been reading some of th posts and it gives me hope and the strength to beat this.
P x
Hi P
So sorry you have had to join this club, you are in the best place for support and advice here. I was Dx 2 months ago , believe me it does get easier once you have a treatment plan in place , At the moment you must be feeling very worried and this is how we all felt at first, I remember the early days felt like this is n’t happening to me I’m not ill ! But with the help of my BCN and the lovely ladies on here I have come to accept things and that I need treatment to fight this disease,
The waiting room is an awful place , be kind to yourself and keep your chin up.
Sending you a big hug , I’m sure loads of ladies will respond soon , its a little quiet on here at the moment,everyone will be enjoying the sunshine .
Stay strong
Jean.
Hi
i was diagnosed with lobular, grade 2 in November and have just finished my chemo (thursday). Because of the nature of lobular i had/have 4 lumps so next step is a mastectomy. I say had 4 lumps because i can feel that at least 1, if not 3, seem to have disappeared and the other is a shadow of it former self.
I’m not sure how much you know about lobular but its the 2nd most common. However, because it doesnt show itself for a while the lumps can be bigger than the other types, but take heart - grade 2 is a positive in this new, parallel universe you have found yourself in! Because it’s lobular you will have other tests - i had mri, ct and bone - all came back clear - and this bit is tough because of the waiting.
As has been said, the waiting is without doubt the worst part and once you know what you are dealing with you will find you feel better, we have all passed through this bit and understand and remember the terror. I promise it will pass and become easier once you begin your treatment.
You will find your own way of telling people -mi was a bit of a blurter at the start but have calmed down now and take the ‘need to know’ approach.
Best of luck Poppy, keep posting on here - it has and is helping me through this. Feel free to send a private message if you think i can help or explain more. x
Hi Poppy,
Marvellous people on here so there’s always plenty of ways to let off steam/have a sob/share what’s gone well or otherwise.
I was diagnosed in Feb with grade 3 her2+ 2.3cm lump that hasn’t spread anywhere else (that we know of) so I’m working through chemotherapy (which isn’t too bad so far after 3 lets of it) and then surgery and then herceptin for a year. Oh plus having sentinel node biopsy and a portacath put in so they don’t have to play ‘hunt the vein in the Ann’ any more. 
Let us know how things are going??
Ann x
Hi Poppy,
I can remember how my surgeon told us, just three weeks before you,“I’m afraid I have the news that you didn’t want to hear”.
I stayed quite strong in that appt, even joking with my OH that if I had to have my right boob off that he would be married to an Amazonian.
The first appt with the oncy was very different; I felt really sick as he discussed the regime I’d be doing because I was so scared of chemo. But I’ve been through one round and still here!
I haven’t actually told many folk; immediate family, very closest friends and 3 people at work on a need-to-know basis; everyone thinks I’m on short-term sick cos I’m “in hospital”. If I go in wearing a hat then my cover’s blown
“floored and numb” - yeah, that’s about right. I feel that at times I’m either despairing, angry, or just in denial. There seems to little else to feel right now.
You DO have the strength to beat this, even if you don’t think so all the time. We are all in this sh!t together so keep posting as I may need you at some point!
Ninja x
Hi - It all seems like a film, something you watch on TV and then you wake up and realise it really is us going through this P**. I dont know how we do it - I just know we do because there is no other option. I sent a text round everyone I know as I wanted everyone to know without having to cope with their reactions. I dont want tomorrow to spoil my today.
Love and hugs
Sadie xx xx
Hi Poppy
Sorry that you’ve found yourself on here. It is totally normal to feel like you do. I remember when I was told I had BC I thought he was talking about someone else, and even now I feel that I’m looking at myself as if I’m in some sort of soap opera! You can get through this - waiting for results is truly horrendous, once you know what is ahead you can get on with it. I had MX and immediate recon, chemo and am now on RADs and I can’t quite believe that i’ve done all this and how well I’ve coped - I’m quite proud of myself and you will be too!
Keep posting, don’t google, write all the questions you have down to take with you to your next meeting. Be kind to yourself, keep busy and don’t let this take over you!!
Rachelx
Hi poppy,
Sorry to hear you’ve had to join our club.I remember when i was diagnosed with bc 6 weeks ago it didn’t feel real. it takes time to adjust, but when you do adjust and talk to your bcn things start to get a bit easier to accept.I googled at first and then found this forum and got some great advice from people going through the same thing. I now have a very positive attitude towards this and I feel good about myself and it shows,so you take care of yourself and keep your chin up girl…It does help.
Anne x
Hi all, i was diagnosed a couple of weeks ago with invasive breast cancer, i’m 36 and still kind of in shock. Been to hospital today for pre assessent for op on 18th May, kind of starting to sink in abit now i think. I’m quite frightened of getting lymph nodes op and then waiting on results. 2 weeks is going to seem like a lifetime. Got results today from hormone biopsy and has come back all negative so no hormone tablets for the next few years which i;m pleased about although she did say that i may have to have chemo now 
Hope to hear from you with similar stories
Penny x
Hi Poppy, i was diagnosed with cancer of the left breat last week. I was so positive it was a cyst because the lumps painfull, but when the doctor said cancer, i heard nothing more…i was totally numb. I am keeping positive though, an d hope you are too. best wishes, joanieb.