Hi
this is my first posting to a site like this. I was diagnosed with invasive lobular breast cancer on 12th January following a routine re-call from screening just before Xmas. I was totally shocked! Since then I have been to some very dark places - I keep trying to be positive - everyone is very reassuring but I have a nursing background and a very active imagination. I have had my appointment with the surgeon and had an MRI yesterday and will have results from that on Tuesday. I have been reassured that it has been picked up early and I should have a good prognosis - but I am still unsure. I couldn’t feel a lump but since the core biopsy it seems huge to me now - they said it was about 18mm. I also feel really dizzy and wheezy which my husband is saying it is my emotional response.
It is good to know that there are others out there feeling the same.
Hi there Hedonist
Welcome to the discussion forums, I’m sure you will find them a great source of information and support.
If you feel it might help to discuss things, our Helpline are great listeners, they can also direct you to other help and support and discuss side effects and treatments with you.
They’re open Weekdays 9-5 and Saturday 9-2 so do give them a call if you feel it might help.
0808 800 6000.
We also have a really useful resources pack which has lots of information to help you understand your diagnosis, test results and the various treatments available. It can be ordered via this link:
I’m sure others will be along shortly to offer their experiences and support.
Best wishes.
Louise
Facilitator
Hi Hedonist,
I’m so sorry you’ve had to join our club! 
I was diagnosis with invasive lobular carcinoma in October 2010 and looking back, I don’t which was worse all the waiting for results, treatment plans etc., or the treatment itself!
Hang on in there! You’ll get lots of support here on the board and BCC has some wonderful resources that you can download or order for free.
Remember that there is no such thing as a silly question, if you need to know something no matter how trivial it seems, it’s an important question! 
Nymeria x
Hi Hedonist, exactly 2 years ago today I was diagnosed with multifocal, multicentric invasive lobular carcinoma in my right breast aged 45, what a shocker as I only had a “thickening” and after FNA, Mammo (clear), US and Core Biopsy had the diagnosis. It’s very common to have aches&pains after all the tests& investigations, I was sore all over and my breasts hurt, too, and probably suffering from shock! Since then I had mx with immediate LD recon, chemo, more reconstruction and now tamoxifen. My second annual check up found no evidence of cancer in the remaining breast. I am sure your medical team will do their best to look after you, explain your options and offer guidance&support via a Breast Care Nurse. Phone the helpline for support and information. There are lots of great ladies here to share their experiences with you! Sending a big hug & reassurance. Take a step at a time and be kind to yourself. xxxx
Wow - thank you so much for the quick response. It is very reassuring to know that you are all out there and understanding this unexpected journey xxxxxxx
Hi Hedonist, I was diagnosed with the same form of cancer as you on January 6 and had a mastectomy and all my lymph nodes removed just over a week ago.
Like you, I found the wait to find out how it was going to be treated terrifying but as soon as the diagnosis was confirmed and I found out I needed an op then I really felt much happier. The op went well and I was surprised how little pain I have been in since then.
I don’t yet know what other treatment I need except that I have been told chemotherapy is usual with this sort of cancer and I’m looking forward to getting on with that if that is the case.
This is an amazing website and the people here give so freely of their time, comfort and advice, I don’t know what I would have done without it, especially in the very early days between the doctor finding a problem and me having to wait two weeks for a hospital appointment.
It all seems a long time ago now, but was just a month. Look forward to seeing lots of you on the forum.
KC
Hi Kitcat .
Hope you are feeling better after your op and good luck with your recovery and on going treatment. It does all seem to happen so quickly and yet at the same time feels like the waiting is endless. I had my diagnosis confirmed on 12th Jan following routine screening and then had to choose where to have treatment. That was quite a difficult decision to make when you have very little to help you decide. I then had to wait for an appointment with the surgeon, then MRI Friday. I will get a date for surgery on Tuesday and can’t wait for it to be honest. One thing I haven’t done yet is tell anyone other than mys husband and that is difficult. I didn’t want them to worry - I wanted to be able to tell them this is what I have got and this is the treatment - but again not sure if I have done the best thing.
Any way take care and big hugs . H xx