NICE decision to not recommend abemaciclib with fulvestrant for routine use on the NHS

We are incredibly disappointed with NICE’s announcement today that abemaciclib with fulvestrant, a treatment for certain people with secondary breast cancer, has been provisionally rejected for routine use on the NHS. breastcancernow.org/about-us/media/statements/we-respond-draft-nice-decision-not-recommend-abemaciclib-fulvestrant-routine-use-nhs?utm_source=forumo&utm_medium=website&utm_campaign=campaign&utm_content=120221niceresponse

Patients currently receiving this treatment will not be affected by this decision, however unless this draft decision is reversed, it will not remain an option for new secondary breast cancer patients in the future.

We are calling on NICE, drug manufacturer Lilly UK, and NHS England to work together to explore every possible solution to ensure this treatment can remain available on the NHS.

NICE has launched a consultation on this decision. We urgently need your help to make a compelling argument to NICE about the importance of keeping abemaciclib with fulvestrant available. If you have received this treatment and are happy to share your experience of having this treatment, please email the Campaigns team on campaigns@breastcancernow.org.

I’m currently receiving ribacilib and fluvestrant. My last two scans have been good as in everything is stable. For which I’m very grateful. I don’t have any side effects to speak of. When I first heard this news I was devastated to think this treatment could be denied to others with my diagnosis.