Hi all
I thought I’d start a new thread so that people didn’t have to read through all my previous wordy posts!
Quick update - diagnosed on 13th Nov, 43, mother to three boys. Consultant said non-invasive tubular carcinoma. Lots of shock, meltdowns and sleepless nights!
Then they thought they saw something int the other breast, but what it was that the mri was showing different pictures in each breast. So had my ultrasound yesterday, which showed that it was a typical picture for someone of my age with lots of hormones floating about, phew.
But - it’s a rare form, the doctor doing the ultrasound said that it was 10 years since she saw this type where it’s under the skin (anyone else had this?). So they have no idea how to treat me, which means my treatment plan is not going to be as quick as I would have liked!
They give in one hand then take from the other! The doctor doing the ultrasound asked me whether I had been given any information on where I could go for support after I had told her that I hadn’t slept since the diagnosis without the aid of sleeping tablets - No I answered - so she gave me a couple of local places that offer therapy etc. I explained to her that each time I tried to call the nurse, she was never there, the secretary to my consultant never called back, so felt a bit in the lurch.
The next day, the breast nurse called me and we had a really long chat. She explained that she had to cover another nurse’s post (so of course I felt bad for moaning/expressing my needs). Anyway she was fantastic. I told her about my concern of becoming addicted to the sleeping tabs, she then reassured me that once I know what is happening, I will feel a lot more in control and will be able to relax a bit more (pretty much what I am reading from other ladies’ posts). Anyone have any experience of this - did any of you resort to sleeping tablets? Were you able to stop?
She then said that when I was discussed on the panel today, they were talking about the possibility of me having a lumpectomy, rather than mascectomy. However when I first went to the consultant on diagnosis day, he said he’d want to do a mascetomy as a lumpectomy would disfigure me due to my small size and the fact that it’s right on the aerioli (is that how it’s spelt). I don’t want to be disfigured - I would rather they took the breast - or would I? What’s better? (to be alive, I know, but you know what I mean)
Does this now mean that I will need radiotherapy???
This is so traumatic, isn’t it? How are we supposed to concentrate at work? I feel so tired right now - like I’ve been punched in both eyes! I’m in a new job too, so I really have to be on the ball, I got my diagnosis about 2 weeks after starting! They’ve been fantastic, I’m really lucky on that front.
Right, enough typing - you’ll get bored if I carry on!
Thinking of you all.
H xx
