Hi ladies
I’ve had a really rough few days trying to get to grips with my diagnosis - 2cm invasive grade 3, clear nodes - now worrying about further results Friday on hormone status - feeling so scared for the future, for my son. Still having backache. We have just moved and I can’t get enthused about new home. Just don’t know what to do x
Morning Lilneenz! Waiting for results is horrible! Nothing much else to say! Friday will come (I know it feels years away) then you’ll know what’s what, and you’ll manage it. Sending hugs. Debbie xx
Thank you xx
Sorry to hear how you’re feeling at the mo, lilneenz, but the uncertainty at this stage is always so difficult to manage. It will move on.
It’s good the nodes are clear & that the hormone
status results will help complete your treatment plan to get the little sod dealt with.
With all this going on, its not surprising you dont feel enthused about your new home, you have enough going on to deal with, but that will move on.
I think we’ve all experienced various aches & pains when going through this stage, its normally the anxiety niggling the body.
If you haven’t already, is it worth looking at counselling support? Your team can advise on this.
take care
ann x
Hi lilneez , the whole waiting is the worst time , once you get some kind of plan and idea of whats going to happen fears do get easier .I was so worried about my 12 yr old son when i got my diagnose , but he has very much dealt with things so far .i have a very large tumour with lymphs involved and due my 3rd chemo next week , its not been easy but it is doable . Good luck with all your other scans maria xx
Have had two terrible days/nights with feeling terrified and like im in a bad dream. Have left it too late to phone the helpline. I’m so worried about my backache - even though my nodes are clear could it still have spread ?? No one to talk to as everyone is telling me to be positive
hi lilneenz
Its most likely the anxiety & tension you are under waiting for Friday which is behind the back ache. With clear nodes there is not evidence of spread, even if nodes were affected, it still doesn’t mean its spread further.
The results on Friday will clarify your treatment plan so that you can move forward.
do take care
ann x
The be positive thing is not helpful really is it when you are c****g yourself ?It is very uncommon for secondaries to be diagnosed at same time as primary breast cancer ,anxiety and stress cause all sorts of scary symptoms .
Thank you for the replies - I managed to sleep a bit so feeling a little better this morning. I think the nightimes are the worst. X
the middle of the night is the worst time .
I’ve heard it referred to ‘the hour of the wolf,’ which seems apt!
ann x
Oh it’s just horrible - does this really get easier ? Xxx
Yes it does ,somehow you reach a place were you can deal with the fears and not let it dominate your life.You will feel better after Friday when you know what happens next .
As Jill says, yes it does.
x
Thank you ann and Jill.
I’m trying to keep busy today and going to get out on the sunshine. I’m going to try not to think about my back - I’ve had it since before my diagnosis, about 2 months. I have to keep reminding myself there are thousands of other women going through this right now and I will get through it !! Your replies have really helped me x
Hi
I was diagnosed last thursday invasive lobular, small…had mri yesterday …results are later today…I was a mess waiting results altho warned pretty sure it was…it was found by accident on ultrasound when looking at surgery for large cysts, so big shock
…Im taking one thing at a time now and focussing on that…very confused with the hormone side of things !! i was told only find that out after surgery…today i will know if any more showed up…try and do one thing at a time, hard i know as our minds go out of control…here if you need to chatx
Good luck with your results Millie.They can usually give you your Oestrogen status from the biopsy but the HER 2 status usually comes after your op when they have anslyised what they have removed That’s what happened to me anyway .
Good luck Millie and thank you for your message xxx
Hi sorry to jump in on but I was just diagnosed yesterday and waiting on further results next week after a vaccum.biopsy today. As I’m need to all this what does the hormone status relate too? Does that determine what treatment is given? Hope Friday comes quick for you I understand exactly how your feeling as I’ve got until next Thursday to wait and it’s pure he’ll waiting and wondering xx
After all that stressing, no results were there ! Apparently they will phone with the er one today but the her2 won’t be yet.
Also found out that my 2cm invasive tumour within the 5cm DCIS, is multi focal !!! So apparently lots of little tumours within the DCIS - why didnt they tell me this last week - also saw on the bit of paper she was holding, lympho vascular invasion !!! I asked if I had this and she said “oh yes, but only in the breast”!!! Needless to say I am now cr****g myself about multi focal and the likelihood that it is her2 !!! Scared, worried - I just wanted to have something positive to hold on to today. Also it’s now 3 1/2 weeks after surgery and my oncology appt is not until mid April !!! Then it could be a further 31 days till chemo - so it could be over 11 weeks before I’m in treatment - even scarier !!! Any advice, help or reassurance greatly accepted xxxx