I do not usually participate in forum, I tend to read them and walk away.
I only discovered this site this morning and it already has helped me.
Before Christmas, I found a lump, I consulted my my GP. I was rather proud of myself, as I usually need to be in a bad state before I make an appointment. The GP referred me to the breast clinic, where I had a mammogram, a scan and a fine needle infiltration. Both the mammogram and scan came back clear. Only the fine needle was a 3. We decided for peace of mind to have the lump removed. When I went for surgery on Tuesday I was really serene.
When after the operation I overheard a nurse saying that I was not to go home until I saw the doctor, I got a bit suspicious. She indeed came to see me and told me that I would not get my results by post. I needed to come back to hospital that it was extremely important that I didn’t miss my appointment and that she was extremely sorry and walked off.
Both my husband and I came to the same conclusion even though the words breast cancer were not pronounced.
Since Tuesday I obviously have been distressed while trying to keep smiling at my kids. I don’t want to tell my family or colleague until I am given a detailed diagnosis.
This site has already told me a lot and I know I have a tough ride in front of me, I know I am not alone and that there is support out there. It is reassuring as I do not want my husband to have to carry me on his own throughout this ordeal. I think I have found my group. Thank you
vercors,
so sorry to hear of your ordeal, how awful to overhear yourself being spoken about, obviously the doctor may not of been able to tell you results there and then as ‘lump’ would of been sent to path’ lab…it still may not be bad news…but can completely understand whats going through your mind.
The waiting is awful, have you an apt., to go for results yet?
You will always find someone to talk to here and get alot of support too.
Welcome to the forums, I hope you that find the posts helpful. I am sorry to read you are having such a tough time at the moment, as well as the support you are getting from the forums you might find it helps to phone our helpline and talk through your situation.
The helpline is run by expert nurses who will be able to give you the most up to date information and sources of support. The number to ring is freephone 0808 800 6000 the lines being open Monday to Friday 9am - 5pm and Saturdays 9am - 2pm.
How dreadful for you - the not knowing is the very worst part of all this. I was fortunate (if fortunate is the word?) that following my mammo, ultrasound and fna - I was told to take my test folder back to the reception - get a cup of tea and the results would be ready in half an hour! Unfortunately nobody had told me that this would happen - and I had gone to the appt on my own.
My results were not good - I sincerely hope that yours will be. You are bound to be thinking the worst, and I know there is no point telling you not to worry - how many times have I heard that?!? Have they given you a date yet to go back? If not, I would suggest that you ring and ask for a date for the appt - they can’t expect you to ‘hang on’ waiting - and they have guidelines to follow.
Once again, I hope you do not have to hear bad news - however, should this be the case, as you say you have already found this site - it has been invaluable for me. I knew nothing prior to my diagnosis last November. There are tons of people on here all going through very similar experiences, who are only to ready to lend support and offer advice or just to listen (or should that be read!) You are definitely not alone and there is support here for you. Yes it can be a tough road - but when there are so many of us walking it - it gets a lot easier believe me!
Oh I bet your mind is all over the place. I think I would have rugby tackled her to get a few more details. I would ring and get an appointment asap. Believe me the waiting for most is the worst part, and the not knowing. I was told the same day, a bit of a surprise but at least I knew what I was up against. It may not be as bad as you think it is but don’t worry about mithering them It’s not them lying awake worrrying tke care let us know how you go on love Eileen
I have received my appointment date, it is not until next Monday. I am supposed to be away on holiday with my kids and I am now unsure of whether I should cancel.
I have been trying to get in touch with the consultant’s secretary but she is not in today. I have left a message with the BC nurse to get her advise and waiting for her to call me back.
This is very unprofessional- your Doctor/nurse could have put your mind at rest a little. Even if it was to tell you that they suspect something or not. All I can say is keep telling yourself-whatever it is IT’S OUT now. You have n’t got it anymore.
I am sorry you have had such shabby treatment. Can’t advise you what to do about holidays but you know what- you will have many more chances for holidays- believe it! Just think it is always better to know than not to know. I was actually relieved when they told me because I did n’t have to worry about was it or wasn’t it. Get on the phone and chase the nurse. They are notoriously bad at getting back to you.
I’m so sorry you have been feeling so anxious, understandably so of course. I don’t know if it’s the same for all health authorities, I would imagine it is, but results are never usually given over the phone - good or bad. I know this because I had to wait almost a month to get the results of my core biopsy last July (the breat surgeon was on holiday) and was told they only discussed results person to person. Also, I had to wait 2 weeks for the path results after I had my mastectomy in January of this year.
Please let us know how you get on, and I wish you all the very best.
All,
Thanks for your kind words, it was really appreciated.
Tracy,
Thanks for your message, I was told by the consultant that she would give me the resutls over the phone, as she was confident (before the operation) that there would be nothing wrong. The BC nurse has been very good, she told me that they have a team meeting on Wednesday and she will try to do whatever she can to try to get the consultant to see me by the end of the week. I also understand that they have a full diary and they might have other more important priorities. I need to understand that I am not the only one and certainly not the most worst off.
Debski,
You did not sound bossy at all. Don’t worry.
I am not worried for my holidays, as you say there will be plenty more but I find it not fair that I am ruining my kids’. They will have enough to put up with; having to cancel fun time with their cousins and grand mother is distressing me.
Once again thank you to everyone who send their support and everyone taking the time to read this.
Good night.
This is the first time I’ve used this forum and I just wanted to say thank you.
Today at 5 I have an appointment to get the test results from a biopsy in both breasts taken last week. My consultant has already stated that he believes I will be undergoing treatment for breast cancer and the biopsy will just confirm that.
My story starts last September when I first consulted my GP who refused to examine me saying it was because he was male. Instead I was then referred to a nurse who examined me and advised I had fibroids but had nothing to worry about. In December I returned to her as my lump had increased dramatically in size however was advised that this was due to the fact I had lost weight and it was now more notieable. I wasn’t even examined. However last month I returned again due to changes in my nipple - although I still wasn’t examined I was referred to hospital. My lump has increased in size from ‘a small boiled sweet’ size to about a third of my breast (I’m a C/D cup). I then saw my consultant last week and now I feel I’m in a completely different world. He advised me I should have been referred in September. Whilst underdoing ultra sound they found lumps in both breasts. I went expecting to be told that it was fibroids or a cyst and they would be removed/drained. Instead I’m advised that I will be undergoing treatment, I ask what for and he says “cancer” - shocked isn’t the word. Since then I haven’t been able to sleep. I have two young daughters and am devastated. However this morning I read this forum and have to say although I am waiting for this evening appointment with mixed feelings of both dread and also welcolming (I will hopefully have a better understanding of what next) I am also looking at it much more positively because of you. I now feel there may be light at the end of the tunnel. Thank you.
I’ll let you know the outcome of my appointment. XXXX
I am very sorry to hear of your diagnosis, it is an awful shock and I do feel for you. Please know that we are all here for you, I have found this site so helpful and the ladies on here very supportive.
As impossible as it must sound at the moment, try and keep positive.
Dear Vercors
As Tracy said we are all here for you, the day before i went in went to the gym got on the cycle and took my heartbeat up really high, i am sure it helped, get rid of some stress. Then later went out with some girl friends and my daughters to a "last supper " party ,had a lovely meal, a good laugh and a few not to many drinks.Was just how i coped with it.
Remember we are all here with you , you are not going on this journey on your own we are your fellow travellers and better company you will not find anywhere !!!
Lots of love and strength
Kate xxxx