Aw thanks sadie. Was just going to refer posters to our thread myself to save me typing another long post.
Ladies thanks for your support, sadly I do have brain mets Mynews is in more detail on the TN thread, as Sadie says.
Tina x
Tina
I so very rarely post on these threads now but do look in regularly. I have checked the threads today because I have been thinking of you and was willing for you to come back and say that it wasn’t the worse. Thinking of you (and all you secondary ladies) at this horrible (the word doesn’t do it justice) time.
Karen xx
Tina, so sorry to hear your news. I don’t often read the TN thread, but have paid a visit there this evening and I am so sorry to hear about your brain mets - although your attitude and outlook sounds amazing. I really hope the WRB isn’t too awful and that you can manage to take Capecitabine alongside.
Sending gentle hugs
Lesley xx
Dear Tina, there are no words, I’m just so bl**dy gutted for you. Is gamma knife an option? A friend had gamma and it was less draining…but all the luck in the world…I think, I hope you will find Capecitabine a much kinder chemo too. Lots of Love, Belinda…xx
Dear Tina,
I’ve just logged in, have been to your other thread and seen your news. I am lost for words and can only begin to imagine how you are feeling.
I do know people who have had gamma knife and others who have WBR,of course neither is something you want but both treatments are able to produce good results. I hope you will get the chance to talk about the pros and cons and get whichever is the most appropriate for you, it sounds as if your team are on the ball.
Your family must be in pieces and I can understand you wanting privacy but maybe you are right, support might be forthcoming if people know the situation, I hope so anyway!
Can’t say anything to make you feel beter but sending you love and hugs and will be remembering you in my prayers. Wishing you strength Julie xx
hi tina
i have just logged on and i am devastated to hear your news. This disease angers me so much. Words don’t mean much- i just wish we could all wake up from our nightmares and be disease free. my thoughts and prayers are with you x
Tina
I don’t have words for this, so I can only send you hugs.
CM
x
Dear Tina, I should have mentioned in my posting a few above this one…Capecitabine is a chemo that crosses the blood brain barrier so you will be giving those mets a double bashing. Apologies if you already knew this.
Take Care, reading all the support for you, both here and on the trip neg thread shows how much you are one loved poster here. Wishing you the best of results possible.
x
Tina, so, so sorry to read your news… nothing I can say… big hugs.
You are one amazing woman.
Oh Tina, you are having such a cr@p time and my heart goes out to your and your family. It’s the news that you had braced yourself for but no less devastating. Take courage from all the ladies that have had WBR or gamma knife for brain mets and that,and the chemo combination, will work for all your mets.
Big hugs
Nicky xx
Hello ladies
I just want to say I’ve been overwhelmed by your support over the last few weeks. Thank you so much you are a wonderful group of women, all with your own problems but you are still willing to help + support others. Thank you so much.
I am updating my news in the triple neg thread in a min so if u would have a look on there, it saves me typing a long post twice.
I am digging deep + just praying the next round of treatment buys me some precious time. Whilst there is some hopethen I will hang on to positivity.
Love + thanks to u all
Tina xxx
Tina,
Your positive attitude really shines through and I’m sure it’ll help you get through this next round of treatment. I really hope it’ll get you better results than you dare hope and lots of that precious time we all want for you and your family.
Big hugs, Angelfalls xx
P.S. Capecitabine is very “do-able” for most of us. Come and join us on the Cape/Xeloda threads.
Gingerbud, just want to say sorry.