I agree I thought we were all entitled to voucher - I was offered one at my first chemo but had already bought one so they contacted the shop for a reimbursement . I think it was worth around £100 xx
I have bought one from a local wig specialist on sale or return as I am cold capping.
I received a letter from my local trust telling me that I was able to get one but it would cost me £70.00 as I didn’t tick any of the boxes ?
Your Mcmillan centres at your hospitals also have a good stock of pre used wigs that you can purchase for a donation, so worth popping into there too as they will really help you and are so kind and understanding. ??
shi xx
I have a wig appointment tomorrow and was told I would only pay the prescription charge (£70) for a wig.
Saw the pharmacist this morning at Maggies…she thinks it is more usual for people with HER2+ cancers to have 3x FEC and 3x docetaxol and herceptin so will chat to onc on Wednesday. It’s really hard to have to make a decision when you don’t know what the different cocktails do. She was lovely and explained that they don’t like to delay the herceptin. I feel better having been able to ask lots of questions. She suggested I ask my GP for Venlafaxine for the sweats, if that doesn’t work then there really isn’t much else. Xx
Manadecs have you jumped on earlier thread like May or July who could assist you a bit with their experience for your type of bc, they are further along the journey and are all so very lovely on those threads, I know they will help if you post on their thread. ??shi xx
I am her2+ and I’m in 6 x FEC then Herceptin and 20 rads. I was initially told that I would have Herceptin along side chemo but that changed by the time I had oncologist appointment. Each area seems to be different.
Thank you all, Lesley that’s put my mind at rest about Simply Wigs just got a bit worried after reading some reviews. I’ve been told I will get a voucher but not sure for how much, just want to be prepared. xx
I’m on 6 FEC-T’s, no one had mentioned herceptin. I was told I would probably be on 5 years of tamaxaforin (?). I guess a question for my next onc visit.
?
??
Hi Shi…I haven’t looked back yet but will do now. Having too many options and opinions gets confusing and leaves me feeling what should I do fir the best.
Hi Chaffinch…when my surgeon told me that we now had clear margins after 2nd op she said I needed it alongside but onc gave me options. I thought he said the docetaxel and herceptin bad for your heart but pharmacist said it’s the E bit of the FEC that’s bad with it. I wonder how they each make their decisions if pathology is the same. Did you have any positive nodes? It is all very confusing and a lot to digest. Xx
That’s why I’ve advised you to post to May or July ladies, they can give you some advise from further along then you can arm yourself for any questions for your onc. These threads and all the lovely ladies on them take the ???our of the journey and keep us all safely wrapped in love and a very special bond ???shi xx
Hi Otter…we sound very similar, one of my two tumours was different to the other. It’s only been the last few weeks that I knew there even was different types of breast cancer, I was blissfully ignorant of it. I’m going to read the other months threads though and see what ladies have had. Xx
My cancer was found during a routine mammogram, so early it wasn’t even a lump!! It wouldn’t have been discovered if I had gone 6 months prior. Unfortunately it had turned type 3 aggressive plus I had areas of pre cancerous calcium. So I had mastectomy in July, only having chemo as belt & braces due to high oncotype dx test followed by hormone treatment.
JC, lucky they caught it early! I’d say if you’re going to be on tamoxifen then yours was considered er+ As that’s what they use to treat that (I’m er+ too)
Otter I’m wondering if yours was also er+ rather than her+ I say that because you haven’t been offered herceptin and had the oncotype test. They only usually do that if you test negative for her receptor. If you were her+ chemo would be a definite and you would get herceptin (that’s what they told me).
I’m with you Otter - just going with what I’ve been advised by surgeon & oncologist as I feel they know more than me. But I still go armed with questions if I feel the need.
I agree it’s all very confusing, probably because we’re in different positions under different hospital trusts xxx
I far as I understand it, only people with HER2+ tumours have Herceptin. It’s the magic bullet for HER2+ which is aggressive and before Herceptin it had a higher recurrence rate.
I had no node involvement
Nor me - I had about 8 removed and it hadn’t spread ?
??
I was also told that they will only give herceptin with chemo. So if test came back as her+ you have herceptin and chemo which is why I don’t think they then do oncotype test as you’ll already be having chemo.
Mine was her- which is why they did the oncotype test to see if I would benefit from chemo or not.
Morning all
Pre chemo 2 checkup for me this morning and despite my isolation I have woken up this morning with a stomach king headache and a niggle in my throat … let’s see what the bloods reveal???
I’m going to be asking about my wig voucher and also about my complementary treatments
Sorry to not join in the conversation last night - I was knackered and also not on that treatment pathway.
Hope all last weeks ‘2’ ladies are all ok - no news is good news???
It’s #givingTuesday today … I’ve just set up a page on FB for Breast cancer Care - this site has been invaluable for me … hopefully I’ll raise a penny or two. The blokes in the office have said that they’ll #givepink for me!! All of them with pink lipstick on!!! If I get a photo I’ll shate!!!
Have a rocking Tuesday! xx
That should be stonking headache … my stomach is fine ???
Morning all ?
Lesley and other chemo 2 ladies good luck for this week. ?all goes well for you. Hopefully Lesley your temp is ok & you get through to treatment.
Hope you get your voucher & treatments, it all helps.
Love to see a photo of the guys with pink lipstick??????