Afternoon everyone!!
Still struggling & in bed, phoned the unit this morning - said everything sounded normal but could ask gp for sleeping tablets. Had egg mayo sandwich for lunch - I don’t eat egg mayo but it really hit the spot!!!
Lesley - you have a fine pair of pins in your gold suit!! Hope you & Annakarenina are doing ok.
Take it easy ladies and rest up as much as you can xx
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Hi ladies
Lesley, Annakarenina and Otter hope you are still doing okay and that the nasty SE are not raising their ugly heads.
JC hope you are feeling better soon, be kind to yourself, me I love an egg mayo sandwich
Feeling apprehensive as I I now only have 5 days left before first T, but have lovely dark navy nails, Epsom salts and udderly cream in the cupboard and the world of pain killers on standby, what could possibly go wrong ? ?
Hope you all have relaxing evenings and a good nights sleep.
Sending hugs and positive vibes to all ??
Lesley darling, I’ve answered your question on Oct thread ???
shi xx
Hi from sticky sweaty Australia!
I hope you’re all keeping nice and warm, while I do my best to stay cool. I’m doing bloods on Monday then, all being OK, back to the cocktail bar on Tuesday for my first dose of T. *cheery big girl laugh* Does anyone else get that thing where you race around trying to do EVERYTHING in the days before chemo? Also, you’ve been talking about daily injections. Which ones are those? I’ve just had one the day after chemo to stimulate my white cells.
Re claratyne, one of the onc nurses pressed a sheet of tabs into my hand as I left my first FEC and said ‘take these now’. Made a big difference.
Sleep well, rest up and thank you for keeping me company from the other side of the world!
Harryfiddler
Hello everyone, I am like you Harryfiddler pre-chemo. I am so grateful to be feeling ‘normal’ (or what passes for it) and pack the week or so before my next dose with stuff. I did find I overestimated my abilities before my 4th cycle and ended up tearful and exhausted after a particularly long day at external meetings, running round Central London buying things I could have bought anytime and then giving an evening lecture. Fortunately, I’d left the stage before the tearfulness kicked in! It was a lesson learned and when I was putting things into my diary yesterday, I was much more cautious about not filling every available minute with commitments.
Lesley, long may the travel continue to be smooth rather than vertiginous. I really hope it continues, but if the horrid SEs do arrive, remember we have got you and will be supporting you through the dips. I know how prepared and informed you are for what might come, plus you’ve got your crew here and the wise women who have gone before us (especially from the October thread) in your amoury. Hang in there my glitterly bodysuit wearing champion. xx
I’ll remind you if you remind me! Deal? x
Morning ladies,
Hope we are all fairing well x.
First night if injections for me last night and so far so good. Lesley I don’t think I really got side effects on t except the injection pains. Furry mouth crazy temps but bearable so maybe you’ll be lucky. Fingers crossed. Can I just buy Clarityn over the counter? Don’t want to be missing out ha x!
My injections are Filgraston anyone else on them???
Annakarenina loved the glitter body suit wearing champion!!!
Take care ladies and enjoy the weekend xxx
Hi all
I hope you all have had a good day with SE being kind to you.
I am starting my pre-chemo nesting with stocking the freezer with at least a weeks meals and ensuring all school uniform is clean and ironed and that the house has been cleaned from top to bottom.
I am too on filgrastim injections, green ones, and have been since the first FEC, 7 injections starting day 4 and only experience achy bones, just chest and arms, for the first 48 hours.
Have a good evening ladies
Carole x
I’ve discovered Riccola herbal sweets are quite good for a temporary relief of chemo mouth.
Just watched the Voice and am now off to bed. Goodnight ???
Hi harry fiddler
Based on my experience I’d say you’d be ok… as otter said, nothing like FEC and felt ‘nornal’.
Day 4 for me and still feel ok … bit of a twinge in one knee but nothing substantial … the scales have crept up though!!
Hope everyone is ok
Xx
Morning Harryfiddler just as Otter and Lesley have said I too was fine the night of & the day after the first dose of T. You’ll still be on your steroids - my se’s kicked in on day 4 - day 8.
Your job sounds a lot of fun - try and go for it, but have a plan b just in case ?
I have 10 injections after each chemo starting on day 2, so I still have 22 out of a total of 60 left!! My poor belly ???
Xxx ?????
Hi Harry fiddler,
I ended up at a concert the night of my first T. I had thought it was the day after but anyway. It was fine. Mine was a ceilidh band concert, I was seated which made it easier and I wasn’t pressed up against germy people ha! I think you’ll feel fine just don’t catch any bugs!!! And enjoy x
I’m day 5 today and feeling a little bagged up so if anyone has a moment I would appreciate a little poopy dance please? Really starting to worry about centre parks trip next week. I’ll be going from peace and quiet just the two of us and dog to full house of family!!! Argh not to mention all those holiday park germs! Freaking out!
No real injection pain tho so hoping to be lucky just a few twinges!!!
Happy Sunday xxx
Job sounds fab harryfiddler!
And it’s starting to sound as if T may not be as bad as FEC, I know don’t speak too soon
I have a parents evening the night of my first T, OH is insisting I stay home just in case I crash like I did on FEC and draw attention to myself ?
Off to watch son play rugby.
Happy Sunday everyone xx
Have you tried some senna - I was similar around day 5 and took some. It helped ?
I found center Parcs helped me as a change of scenery and I even enjoyed the ?. I kept away from the spa and the swimming, I played a little badminton, mini golf and 10 pin bowling using a lot of anti bac. I had rests in between - it was lovely being out in the open among the trees and breathing in the fresh pine air. I live in north London so getting away was good for me. Have fun!! ??
Xxx ?????
Thanks jc, poopy dancing did the trick. It’s all the people I’m worried about, including family!
This might be a bit premature but now that only two chemos to go. I should have surgery middle of march then 4 weeks of rads I’m starting to think of the end. Will it ever? I’m thinking my usual May Ibiza trip will be a no go but what about June July plans??? Or should I just wait and see and go back to eating the elephant one bite at a time???x
So good to log on today and see people are doing okay on the whole. I am not on T (and my T will be Paclitaxel rather than Docetaxel) as I am on a 4+4 cycle regime, so don’t have much wisdom to add other than a supportive cheer and hug for you all.
Day 3 after my final EC and although I am definitely more in the tunnel than out of it with feeling spaced out, tired and a bit nauseous, so far it is nowhere near as bad as the last cycle. I am sure the stress/excitement/busyness of Christmas must have had an effect. I managed a bit of exercise this morning and put my makeup on which always makes me feel more human even if its actual impact on making me look more human is limited.
I think the afternoon might be v. quiet - perhaps a bit of telly and a good book. I am home alone which in itself is more therapeutic than I probably ought to admit, especially to my long-suffering family.
Stay well everyone. xx
morning all
my aches and pains cut in last night, spent quite a while in a lovely hot bath and then an early night with paracetamols and nurofen. So far all very manageable, but I’m sure that there is time for that to change!!
My jaw is aching, the soles of my feet are sensitive and I keep getting shooting pains down my legs, but I am still shuffling around the place! I also feel as if my nails are going to ping off!
Not sure if I will bother getting dressed today though, think it might be a jaunt from sofa/bed/bath etc.
The weather here is awful too, high winds, driving rain and it’s not going to get light … so rather reflects my mood.
No nausea, and everything is moving well (if you get my drift) so I feel sort of ok … still concerned that this T is going to bite me on my bum again though!
hope everyone is ok
xx
Hi Lesley,
Sounds like your aches started the same amount of time after first dose of T as mine. I had them for 5 days and found it difficult to sleep with the pain.
I had a high temp of 38.5 just over a week after T and was hospitalised overnight for observation.
Other side effects: my nails also feel like they are about to ping off, i have a rash on my face which has just come up, I’m losing my eye lashes.
Strangely, my white cell count has shot up so i stopped the injections on the advice of the hospital.
I have my onc appointment on friday so will discuss the SEs.
Have a great week all xxx
Definitely the gift that keeps on giving!
Pottered about a bit and worked a bit … now feel very old and fragile!
Sofa calling …
Take it easy Lesley and have that pajama day ?
Hope T is kind to you tomorrow harryfiddler and sleep well ?
Weather horrible here too, looking for a break in the clouds so I can get an afternoon walk in ???
Wishing everyone a restful Monday x