Absolutely Lesley, isnt it amazing how different we are all handling the treatments!!
Xxx
Hi FMB hard to believe it is cycle 5 week! I agree with you about T - I still much prefer T to FEC as week 1 on FEC made me inhuman but the recovery isn’t there on T and that miraculous third week never appeared. It has definitely taken longer to get my taste buds back and eat veg and other healthy things and the fatigue hasn’t really completely lifted.
But it is still amazing that in 4 days time I will hopefully be able to say “Just one more left!”
Also T is definitely making my hair fall out after cold capping through FEC so ? here I come.
Am up on Thursday - Otter is that the same day as you? JC are you Friday?
… and what we mustn’t forget is that we might be heading into next 5 but we have had 4 and our bodies have had to deal with 4 rounds.
It’s a wonder we’re not being carried into round 6 in a bucket!!
So proud of all the brave ladies going thru this regime!!
xx
Hello everyone, so much to catch up on!
Harryfiddler, the more hands to hold the better. We will have round the clock hand holding given that you’re in a different time zone. It is great to know there is a small group of us who will be able to approach surgery together.
Loving the talk about food, weight and more. I had a session with the medical herbalist at The Haven this morning and I confess I didn’t find it great. The focus was mostly on food/nutrition and I did feel, however well-intentioned she was, there was a lot of unhelpful emphasis on eating/not eating in a certain way which when you’re mid-chemo and feel nauseous all the time is difficult to hear. I also couldn’t help thinking “if flaxseed and kefir are so effective, I would have thought the oncologists would mention it”. It also made a lot of assumptions about income, time, energy and inclination to buy organic, expensive products. I am sure it helps a lot of people, but for me it was not ideal. I am with Shi and will eat what I can bear when I can manage it for now.
In contrast, this afternoon, I did the LGFB workshop and having been a bit unsure whether it was for me, I adored it. As my eyebrows leave the building, or at least my forehead, and my eyelashes battle to survive, it was really practical, accessible and fun. If you haven’t done it yet, do book on. I really do feel a lot better for it. Like FMB8132, this was a real surprise in a good way.
Bythesea, I am so pleased you approve of LaBlast. It is quite hard to be grumpy and stay still I find when I put it on. I am sure I look ridiculous and will never ever come close to being anywhere as lithe as his friends on the video, but it is cheering, cheesy and exercise for those who can’t bear exercise. All of which works for me.
It is good to check in and hear how all of you who are progressing though the T-stage of treatment are getting on. I really hope your feet are better Otter65 and that everyone continues to keep on keeping on with minimal side effects and impact.
Until tomorrow. xx
Good afternoon ladies.
Day 5 for me on T and definitely doing better than FEC but I think I still have plenty of time to be bit in bum. No real aches yet just heavy legs and hips managed a walk out in what sunshine finally appeared today.
Good luck to this weeks number 5 ladies I hope check ups go well and that T is kind to you.
Have a good evening Carole ???
Morning Ladies, I love that our little group are on Chemo 5 already! Where has the time gone? Oh yeh, nausea, pain, hair loss, worrying, aching, injecting, wig shopping, coping!!! Ha nearly there x
Last nights surprise was spicy bean burgers! OH doesn’t know what’s hit him. In my head they always look better than they turn out but if anyone gets a chance mary berrys honeycomb ice cream is Amazing!!! Best ice cream I have tasted and sooooooo easy! Mmmmmmmmmmm!
Mwah! xxx
The ice cream is Amazing! And making the honeycomb is quite exciting, the anticipation if it will froth up or not! I don’t have a sweet tooth but you need to try it!!!
I’m thinking of doing macmillans murder mystery night. Might order my kit today! Any excuse to dress up and drink cocktails! Might even get to wear my wig. I’m still hanging on to hair so wig just looks at me longingly. Eyelashes are another story tho! Could count them in one hand, loving the lady garden tho! Not looking forward to that coming back :0(
I love the thought of false eyelashes, just don’t fancy ripping off the few I have left!
Good luck Lesley, hope you don’t end up with a “Waiter, there’s a fly in my soup” moment!
I have just found porridge oats in my fridge! Not sure if I’m getting confused or my mind is just busy with other things?
Keeps life interesting tho xxx
In haste, but this is for you Lesley to wish you luck with the false eyelashes
That is just how I think I’m going to look!
I’ll report back!
Ha ha love it Annakarenina!!!
And in the high winds forecast for tomorrow, I will probably look like this as well!!
Just realised none of my wigs have chin straps!!
Lesley, you could define your eyes with eyeliner too, just in case .
The honeycomb icecream sounds scrummy bythesea, but I would need someone to make it for me as I’ve really gone off cooking. I can’t seem to have a lot if enthusiasm for food. Maybe that’s why I’ve lost weight.
Harryfiddler, you need to keep an eye on your rash and phone your unit if it doesn’t go. Enjoy the sunshine - I am so envious at the moment as it’s dull grey & drizzly here.
Loving the photos ?
Well done Otter for today - I am going armed with questions tomorrow ?
Xx ???
??
Oh my, I turn my back for a few hours and the thread degenerates into blanked out content and Lesley in a spin of imagery. I love it!
Otter, I really hope the bloods turned out to be okay and that you are all set? And how are your poor feet?
Harryfiddler, it is just thrilling getting an insight into life in Oz with sun and warmth and being able to go outdoors without being rained on, frozen or both. How is that rash doing now? Did you manage to get it checked out?
Lesley, I hope you’ve had a quiet enough day today that you can be up at stupid o’clock for your long day in Buckinghamshire and thrive. Good luck with the lashes. We want to know everything.
Bythesea, I love your version of working at home. I also feel that vicariously experiencing the honeycomb icecream might be best for me and my ability to get into my clothes, but it sounds amazing. I have developed a mouth of ulcers and my best friend (a GP) immediately suggested ice-cream, so it can be medicinal. Really.
JC1262, take those questions and ask away - good luck and let us know how you get on.
I spoke to a volunteer through Someone Like Me today about surgery and my thoughts re: reconstruction (or not). She was amazing. It is such a terrific service. I also spoke to a volunteer before I started chemotherapy and she too was brilliant. I felt really understood, informed and heard. I also felt lucky to have access to such a service. It really is conversations like that one and those we have on this thread that make this pesky process bearable.
Hoping everyone, posting on and reading the thread, is having a good week. xx
morning all!
here’s a report on my false lashes adventure
I have never used anything like this before … they seemed to go on ok and looked ok I thought!
However, after a couple of hours in the car, the ends of one was beginnning to lift off.
I brought glue with me and thought about reapplying but tbh I couldnt be bothered… I still have some lashes left.
I wasn’t that generous with the glue and I think that is where I went wrong! Also it said to apply them when you have finished your make up … I would have thought it would be better before???
Any advice gratefully received!
Lesley just wanted to let you know you look amazing and immaculate as always glamour puss ??I’ve not used false lashes so can’t help sorry but you look sensational, hope the presentation goes well Mrs gold kick ass wearing ???lady ??
shi xx
Lesley, they look pretty good to me! My experience with false eyelashes has been poor. The only advice I can give is, yes put them on last and use loads of glue but wait till it’s nearly dry before sticking to eye! When I put them on the edges always lift. But I think I have tiny eyes and never trim them. I just re glue but it’s not as easy as it sounds! I went to a wedding with friends and they applied my £1 primark lashes. Best ever stayed on all night and almost made it till morning. Maybe it’s a two man job for fab results??? Although thinking about it I once bought those individual lashes and they stayed on for weeks and looked amazing! Take longer to put on tho xxx
You look fab Lesley !
I have no experience with false eyelashes but you look like you know what you’re doing, eyebrows good too.
Hope presentation goes well ??
thanks for all your lovely kind words!
I didn’t feel that great when I was getting ready at 5.30am!
You are right Bythesea, it was the corners that were lifting! I will have to be heavy handed with the glue next time… watch this space!
I think I might be getting a bit de-mob happy … back to Buckinghamshire next week and then a week after chemo 5 I am off to Berkshire?? But I’m going to travel the night before so I’m not doing too much in one day. If 5 is as good as 4 I should be ok … only time will tell… I know I am going to be paranoid about cleaning the hotel room though!
xx
Glad you saw your nice onc JC and a reduced dosage sounds like a sensible idea.
I’m going in for my flush tomorrow and have a few questions, but think they will direct me to my BCN … I’ll throw them out there just in case you know the answers
Organ donation - I’m registered - are my organs still wanted??
Body Massage - after a total lypmh node clearance what sort of massage can you have (prior to surgery they said everywhere but the left arm!)?
TN BC - what else/where else do I have to worry about?
Happy Wednesday peeps!
xx