I’m sorry I’ve been keeping quiet, but I needed a rest, had to calm my busy mind. I’m day 7 post chemo 4 (finished Fec ?), it’s nice to be able to say ‘I’m half way through this sh** „ and I’m ready to read all your posts about the dreaded T … I will catch up soon in the meantime I hope you’ve been all doing great, lovely ladies xxx
One more thing I’d like to share with you … I had an appoinment with my surgeon today, if no more cycles are delayed, I’m penciled in for mid May. I had a difficult conversation, had been mulling the thing over for a while myself, but today made a big decision and I’m going for a double mastectomy. The request will be discussed by the panel, I’m waiting for for an appointment with the psychologist, but the doc said I look like I know what I’m doing and have already done the homework
Now off to see what Ive missed for the past few days xx
Anadan, sounds like you have made your decision and are accepting of it. What a brave lady you are. Lots of ? and ? for you. We will all be around for you as you approach it all
Otter, how are your feet now? I couldn’t walk for about 2 days but the soreness is on day 8 now. I’ll be interested to hear what the Onc said when I go in tomorrow. Interesting that they don’t want to reduce things??
Hi ladies - hope today went well Lesley and you aren’t too tired out from the trip
Otter how are you doing on the steroids this time round? I decided to wait until I spoke to onc to take mine and glad I did as bloods were crappy and might need to be delayed. They are going to see if they have somehow managed to limp across the threshold tomorrow and if not then I have to wait! Will be third delay in a row. But I did get onc to agree that I just have steroids in the drip if I do have chemo and don’t end up taking any unnecessarily!
Fmb and JC hope everything is going ok for your chemo this week and very best wishes ?? to all the other November ladies
Hi ladies
Day 7 for me now after first T and still feeling a bit achy and fatigued but nothing too bad at the moment counting myself very lucky and hopefully I have avoided the neuropathy which some of you have suffered from, sending positive vibes to you and hoping that number 2 is so much kinder to you, it all sounds so awful ???
Oh Anadan you are such a brave strong lady, I’ll be here for you having gone ahead with my single mastectomy in April
Hugs to all Carole x
Hi Ruth I think I am the only one on this plan but I don’t get steroids pre-treatment on T I get them intravenously prior to the T and then have a course of them for 3 days after. So hopefully your bloods will be okay and you will be able to have your treatment this way. Fingers and toes crossed for you. Carole x
Good luck for today Otter, i start my steroids today ready for tomorrow
? everything goes ok for you and the same to fmb & Ruth ???
Anadan ? to you. Well done on finishing FEC, It’s a great feeling knowing you’re halfway there and well done on your brave decision and although we’ll be done with this blasted chemo, we’ll still be here for each other, holding hands ? as we continue our ? journey. ???
Enjoy your Thursday everyone. It looks brighter here xx ??
Happy Burns Day! I’ll be spending the day in the hills trying to catch me a Haggis!
Ladies the sore feet sounds awful hope it passes soon.
Good luck today Otter, 5 down woohoo!
Lesley. Good questions will be interested to hear the answers. They didn’t want any of my mums organs but she was riddled. I guess it depends what you go of???
Happy Burns Day Bythesea, was thinking of you as I ate my porridge and was wondering if it is too early to have a taste of one of my husband’s many malts with it. ?? Good luck catching a haggis ??
Anadan, it is great to hear from you. Like you, I am done with the EC, so just over the half-way point and it feels good. I am apprehensive about moving onto the fortnightly Paclitaxel next week as it is something new, but every day is progress. And I hope your decision is helping a bit in terms of certainty. I know it can’t have been easy. I think a lot about the bilateral option and vacillate depending on when you catch me. I will definitely explore it with my surgeon when we meet. As HarryFiddler says, there are a few of us November chemo starters whose path is slightly longer and who have surgery to come, so hands available to be held as and when you want to reach out.
Bythesea, have a wee dram for me and get practising your poetry! My daughter went to University in Scotland and this one was of her favourite nights of the year.
Yay! And double Yay for you Otter. I am so pleased. Well done and enjoy the post-chemo conquer moment! And, of course, enjoy dressing and addressing that haggis . . .
Rest up and hopefully the se wont be as bad this time around!
They hadn’t heard from the onc about my dosage, I may hear more on Tuesday but probably wont know for definite until next Thursday!!
This time next week, I will be in your shoes!!
Glad no reaction. Sun is out here, I should go and get a walk, but I’m awaiting as everyone recommended the individual lashes I am waiting in for a delivery!!
Thank you for all good words ? and holding my hand ? I really need it and you all are so kind and woderful ?
Otter ??? for you ? you’re nearly there ?
has Lesley’s question about us as organ donors been answered? Are we still good enough? This bothers me too ??
how are your nails on T? Please can you share what you use and do to help? My onco said nails get affected on T.
I really struggled with thrush and sore mouth previous cycles, but my sister managed to get hold of Caphosol, it does miracles. i have a pink tongue and can enjoy food again. It’s like a mouthwash, you can use it as often as you need to. Worth asking at your appointments if sore mouth is a problem xx
I phoned the organ donation line and spoke to a lovely lady, who went on to tell me she was where I (we) are now 10 years ago and she is just fine now.
I explained I had been on the register for some time and wondered how things stood now.
She said that things would be evaluated at the time, and organs/tissues would be taken as appropriate at the time.
I asked her about giving organs for research and she said that it was a new question now, if organs/tissue aren’t suitable for donation, do you wish to have organs given to research.
I answered yes to it and it’s there on record now. All my family are aware of my decisions.
My nails are holding up ok at the moment, growing quite quickly and appear very strong - but that might be the layers of base coat, varnish and top coat!! I haven’t put anything special on them, there doesnt seem to be the need at the mo - but this might just be me. I’ve been wearing dark colours since the start.
I was wondering how long we need to wear dark colours for? Presumably we have to get the chemo to grow out of our nails, from nail bed to tip?? Is this right??
Pah bread!!! I made another batch of that beeping ice cream!!!
Got creative tho and melted chocolate then coated the bottom of a water ballon. Then popped balloon and spooned in ice cream. It’s in freezer for tomorrow’s treat Mmmmm! Otter I’m using Jennifer young nail oil. My sister bought it off macmillians, not another bunch of flowers site. Nails are lovely. I only painted mine for my surgeon appointment. Wanted her to think I cared about my appearance so she would do a better job ha! But my nails have never been better xxx
„ and I’m ready to read all your posts about the dreaded T … I will catch up soon 
xx 
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