I was only thinking the other day that I donāt think i could go through chemo again. If an extra two rounds will benefit you, maybe itās best to get it over with.
I have full lymph node clearance after this (I have to wait at least six weeks to recover from chemo), then radiotherapy, then hormonal therapy. A proper holiday would be lovely but will hang on for the time being. Might book a short break if I feel ok after last chemo.
Hi all, glad some of you have the end in sight or at least past the half way mark
I got my paclitaxel, carboplatin and pembro yesterday after missing last week due to my neuts being too low. Glad to tick another one off the list
We had already booked a holiday for the summer before all this happened and have decided still to go, itās to Spain so a short flight
Wow @sallychloe thatās great. I could barely get out in December - a walk around the block left me huffing and puffing lol. Iāve never heard of Guadeloupe - had to google it but it looks beautiful. Iāve been looking at the Azores for an island hopping holiday. Again, quite pricey, so probably not for this year as Iāll have to save.
@countrygirl1 I hope the lower dose helps with the fingers. Iām on paclitaxel next and itās one of the side effects too. Is it constant or does it come and go? I have only 1 week of radiotherapy as well as hormone therapy to ālook forward toā after this too. Not good that you have another op to come after all this but youāll get there xx
@kitty3 how many more do you have left? I hope you can get away to Spain for the summer - it will be a lovely, well deserved break for you xx
I have 5 weekly paclitaxel (with a week of carboplatin and pembro included during that , then I go on to 4 cycles every 3 weeks of EC with pembro. So still a wee bit to go but getting there
I think we all definitely need a holiday after this, I am hoping to get my surgery by the beginning/middle of June so should be ok to go on holiday towards the end of July
Well, it sounds strange but I have numbness AND pain in fingertips. Started about 10 days after first Docetaxel and has been the same for last couple of weeks. Itās there all the time. Difficult to do up buttons, press anything (I can manage to flush the loo without asking for help ), undo clips on dog harness. Just using hands in general really!
Not everyone gets this side effect with a taxane so you may well be ok. . x
Country girl please let your team know about the neuropathy in your fingers before your next treatment if you have not done so already, they should be monitoring this anyway Shi xx
Morning - how are ypu all feeling? Yesterday I had my first of four paclitaxel infusions which went fine apart from intermittent mild heat sensations going through my vein. Was told it was nothing to worry about and if it started to burn then let them know straight away. Today Iāve woken up with a hot pink face and my eyes are itchy and watery. Oh the joys! X
Hi. Hope youāre not having a reaction. We can never be sure whatās normal and whatās not! I do get a red burning cheek (only left hand side for some reason) each time I take dexamethasone but that goes off a when I stop taking it. Also getting very watery eyes all the time. Iām using eye drops but donāt know if thatās helping much.
I had my second docetaxel (5th chemo) on Tuesday and not doing too badly apart from feeling really tired and having horrible taste in mouth which seems even worse this time. Managed a walk yesterday but today I just want to lie on the sofa. I should make the effort I suppose. . Take care. x
Iām ok thanks Shi. Rang in and they just said itās quite common for a couple of days after imfusion but to keep an eye on it and contact immediately if my skin gets worse and and starts to peel or blister x
Yeah youāre right about not knowing whats normal or not and i keep looking on macmillan and breast cancer now websites for what is normal lol. Listen to your body - you dont need to go out for a walk every day and its not going to harm you having a day on the sofa xx
Hi @sallychloe. Did you get it confirmed how many rounds youāll be having? Hope you were ok after the last one and managing to keep up the walking. The brisker the better in this weather! Going to make a cake now. Ok, I know itās not good for you! Only an occasional treat - honest! x
Hi @countrygirl1 - doing ok thanks, just keep counting down the weeks. I get my 9th of my 12 weekly paclitaxel tomorrow so not too much still to go, next week will be paclitaxel, carbo & pembro then just 2 weeks of paclitaxel then onto EC & pembro.
Still get a lot of stomach issues and they discovered today I have thrush in my mouth so starting antibiotics for that Hopefully that might improve my taste a little bit.
How are you doing?
Hi. There has been a lot gone on by the sounds of it. Hope things are settling a bit with your hands? @countrygirl1 and @jolly_bongo_owner ?
I was unwell last week so had to delay chemo until today. Better now for round 3. What a battle it was to get into my car and point it towards the hospital when everything in me did not want to!! Iām here now just waiting to go in.
My consultant said that most research carried out is done on the basis of 6 rounds but she would be happy if I made it to 4 at least. I guess her professional opinion v we donāt really know.
They are going to change the antisickness again to see if that helps more. I wonder if there is an alternative to the injections-filgrastim- Iām always hitting a brick wall after day 3 which could be stopping the steroids or starting injections?? Forgot to ask when I spoke to her grrhhh. Perhaps the ward will know.
I need a treat for wearing my big girl pants today cake sounds good. What are you making? Xx
Back on my 1st cycle, coming off steroids made me hit a wall too. I spoke to my onco and she gave me a lower dose for 3 more days although i only took the lower dose for 1 day and that sorted it out for me. Iāve also been taking just the 1 big peg-figrastim injection up until this cycle when they prescribed 7 daily filgrastim. Phoned the chemo nurses after 2 days and was advised to stop taking my filgrastim as I was in too much pain throughough my whole body and had difficulty walking. Theyāre going to tell my onco to put me back on the original one. I dont have a bright red face anymore but my thumb and forefinger on each hand are feeling really strange and more sensitive when i touch things or use them. Nurses rold me to talk to onco when i have my clinic.
), undo clips on dog harness. Just using hands in general really!
. Take care. x
thanks for letting us know 
cake sounds good. What are you making? Xx