You’ll get there. Just keep ticking off those treatments. Sorry about stomach problems and thrush. There’s always something. The roof of my mouth is like sandpaper. That isn’t thrush is it? Does thrush involve ulcers? Hope the antibiotics work for you.
My hands are no worse so I suppose that’s good news. I do suffer from Raynauds Syndrome anyway so my fingers turn white at the drop of a hat - or the opening of the fridge! Have to immerse them in warm water to get blood supply back. Don’t suppose that helps in general. x
Oh, sorry you’ve been having such a rough time. It is difficult to force ourselves to keep going when we know what to expect afterwards. Hope you get some answers today to try to make things a bit easier from now on.
Chocolate mint slices. Shortbread base, a mint buttercream layer on top and then topped with dark chocolate. Luckily, I don’t have nausea at the moment! It freezes well so most (ok some) will be packed away. x
Hi @jolly_bongo_owner. That sounds awful if you could hardly walk. Sounds like you might have neurological problems in fingers. Maybe your dose will be reduced. Hope they can sort things for you. x
I’ve hit that same brick wall in the evening of day 3 of both my EC so far. Filgrastim or stopping Dexa. I have asked twice about it but it just seems to be one of those things. Keep taking the paracetamol for the 2 days before it starts to ease. My 3rd and last EC tomorrow. I wonder what Docetaxel will give me
Hoping your fingers are ok, the baking sounds lovely.
My mouth just tasted awful and my tongue had a coating on it.
Got my bloods done yesterday and got a phone call to say my white count and neuts had dropped a lot and were borderline and because I don’t get the filgrastim injections when I only get paclitaxel they want me to miss my chemo today in case my white cells go too low for next week. They are still going to go ahead with all 3 drugs next week so I guess that’s a positive
Don’t you just hate when you prepare yourself mentally and then it doesn’t happen.
Meant to have 3rd and final EC this afternoon. Tested positive for covid this morning. Tried a 2nd test hoping it was wrong. Annoyingly I felt fine. I am starting to feel achy. Might be that I was chopping kindling for the log burner this morning.
Ive had to miss my chemo this week due to pain and soreness in fingertips. Cant even open a ring pull or bottle. Nurse going to ask Oncologist in case she wants to reduce my dose. Only got 3 more to go, but the last few weeks have been hard.
My potassium is low, so have tablets for that and am feeling really tired.
Is anyone here on herceptin injection. I have it every 3rd week and it really affects my feet. Can hardly walk for the rest of the day and not sure if its a common side effect.
Hope they get your blood count up. Its a pain when you get there and they say you cant have chemo. Feels like such a waste of time x
I hope they get the pain in your fingertips sorted, hopefully the last few will be ok, you are nearly there
I am not on herceptin ( I am on immunotherapy) so unfortunately can’t help you there. That sounds so painful.
Fingers crossed for this week
So sorry. The treatment is bad enough without the added disappointments when things don’t go to plan. My dose was reduced last time due to neuropathy in fingertips. I’ve been better since then. Two more cycles to go. I also had to have a blood transfusion just before Christmas. I’m not on herceptin.
Whatever happens, the doctors will get things sorted for you so that you’ll be able to continue treatment. They’re there to make sure you get through it. Take care. x
Ahh, it seems like we’re all struggling at rhe moment - I’ve just had my next chemo postponed too! I flew through the first 4 EC with relatively few probs but since changing to paclitaxel I’ve had bad bone and muscle pain and also really painful fingertips and thats the 1st dose out of 4. The nurse i spoke to said she’s going to speak to my onco to see if i can be put on weekly paclitaxel instead of every 2 weeks. We’ll get there xx
I have for the 2nd week running, missed my treatment due to white blood cells and neuts
Wish they would tell me what happens now - how long do they let this go on for?
I have asked to see the oncologist next week
So sorry you’re going through this - it’s not fair on you to have to chase things up and have to ask to speak to your onco when you’re worried about missing treatments. I wish I could answer your question. Try and stay strong - we’re with you xx
Sorry this is happening. Agree with @jolly_bongo_owner that you should be told and not have to chase. You do need answers. Hope you get those very soon. x
Hi. How is everyone this week? Any updates on treatments or side effects.
I had 6th treatment out of 7 yesterday (3rd Docetaxel). Feel very tired but managed to sleep last night despite the steroids. Might try a walk later - or might not!
