Yes thankfully I have my husband at home but he is at work during the day, my daughter is a district nurse so she took some time off for the first week which was good
Definitely improving each day and so glad to be home from hospital x
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How is everyone doing? I hope you are all getting there. My next chemo was delayed again due to the skin eroding over my portacath, had to have it removed and got antibiotics. They are going to put another port in in a few weeks once it has healed. So frustrating all the delays, just want to get to the end of chemo and get the surgery done.
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Hi. So sorry. Another step backwards but you will get there. As you say, itās very frustrating.
Iām ok thanks. Nearly six weeks past the end of chemo now and waiting to have the axillary clearance on 3 April. Feeling a bit nervous but just want to get it over with. My hair seems to be growing a little at the bottom and sides but not on top. Ok, I know itās early days. Iām very impatient. I have booked onto a LGFB hair care workshop on 9 April so Iām looking forward to that.
@jolly_bongo_owner How are you doing at the moment? Hope things are ok.
x
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Thatās good you are seeing a bit of hair growth, all small steps in the way back to some kind of normality 
. Wonāt be long now till your surgery, youāll be glad to get it over with. Hope it goes well xx
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Iām not sure how Iām doing at the moment. Iāve got 1 more chemo to go and I feel like I should be really happy! Just feel a bit lost really!
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@jolly_bongo_owner. Iām sorry. It is really tough. Youāve been through a lot and it takes its toll. I did feel a sense of relief when I had my last chemo but wouldnāt say I felt happy as it wasnāt the end of treatment. It was just something to tick off before moving on to the next thing. Iāve had a few wobbly days myself thinking āis this really happening?ā
I hope thereās someone who can give you a hug when you need it. It doesnāt solve everything but it helps. Take care. x
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Jolly_bongo_owner 
sending 
you got this this is part where you have to dig deep you know you can and weāre all 
pulling you towards finishing line 
much 
Shi xx
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I get how you are feeling. I have had so many delays with chemo, I have found it really hard but also not sure how I will feel when I get to the end of chemo. I will still have surgery, rads and immunotherapy to go so wonāt be finished treatment but think once chemo is done at least that box is ticked
Hope you are ok x
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when you might be ready any of you Fi look at the bcn moving forward courses they are online or in person Shi xx
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Thank you, looks like a good idea. I went in the Look Good Feel Better Workshop and it was very good
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@kitty3 How are things? Hope treatment is progressing.
@jolly_bongo_owner Hope youāre feeling a little better now.
I had axillary lymph node clearance two weeks ago. Surgery went well but I did develop a seroma which became hard and painful. Had it drained by the nurse today but Iām told it will re-fill and will have to be drained again, maybe another few times. Struggling with the exercises but Iām determined to keep at them to be ready for radiotherapy in a few weeks time.
Take care everyone. x
Glad your surgery went well, that seems to be quite a common issue having a seroma, hope it doesnāt cause you too many problems and you recover well from the surgery
I am having an MRI scan today then see my surgeon on Monday to discuss plans for surgery. I will be glad to know what/when itās happening. I have chemo this Friday then only one to go They have decided not to put in another port as they think my body may reject it so having to use cannulas which I am not overly keen on but hey ho.
I hope everyone else is doing ok.
Hope you can get surgery sorted out soon. Nearly there with chemo. Cannula not great for you but then I still have occasional pain in PICC line arm two months after itās been removed. Seems thereās no perfect answer. Let us know how appointment with surgeon goes. x
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Thanks, MRI scan done this morning so results on Monday
I think I am infamous in the hospital as they were asking me at my scan if I was the one who had the weird thing going on with my port lol
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Thanks @countrygirl1, I am feeling a lot better and definitely less lost! Glad your surgery went ok - apart from the seroma. Every small bit of exercise you can do will certainly help for the radiotherapy. I had my ct planning scan last week and start radiotherapy a week on Thursday. Itās a bit uncomfortable and I had 2 dead arms while I was being drawn on, tattooed and scanned lol 
@kitty3 youāre nearly there and the cannula isnāt too bad for 2 more treatments. They can give you a heat pad incase you think theyāll have trouble getting access. I had to have the last 2 infusions on my operated side because my other arm completely gave up after 9 weekly treatments and 4 x 2 weekly treatments.
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I was wondering how my veins will cope with the immunotherapy after surgery/ rads as I have still got 10 to go but weāll see, hopefully it will be fine
@jolly_bongo_owner You are getting there through your treatment, glad you are feeling a bit less lost
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@jolly_bongo_owner. So pleased youāre less lost! Let us know how you go with radiotherapy. Iām reading everything I can about it to be prepared. Think it will about another six weeks before I start which is good really because I definitively need time for seroma to go down, and to exercise. Thereās no way I can get into an uncomfortable position with my hands above my head at the moment. x
Hi ladies, how are you all doing?
I am just out of hospital, was admitted last week with neutropenic sepsis again. I am due my last chemo next Friday but have a meeting with my oncologist the day before. Not sure if i will be getting the last one, I am hoping not as I donāt want to end up back in hospital again 
I have a surgery date for 11th June, looking forward to that then moving onto rads
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Oh no youāve had too much bad luck, but its good that youāre out of hospital and on the mend again. Iām sure whether they decide to give you the last chemo or not will be in your best interests though and i hope everything finally starts to go more positvely for you.
I just finished my last radio yesterday - I only needed 5 sessions - and Iām starting to get some life back in me. Then Iāll be on the endochrine meds and infusions for another 5 years.
How are you doing @countrygirl1
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@kitty3 So sorry you ended up in hospital again. Itās been tough for you. Hope it goes well from now on.
@jolly_bongo_owner. Yay! Youāve finished radiotherapy. Pleased youāre feeling better now and can start to move on. Ok, I know life wonāt exactly be normal and you have the endocrine therapy and infusions and possible side effects to face but youāve done well to get through it this far.
I have been having ongoing trouble with the seroma and have had it drained three times so far (over three weeks). Itās been getting me down a bit and I think it might need doing again next week.
Saw oncologist on Wednesday and it wasnāt the woman who Iāve been seeing up to now. I didnāt find him very approachable and felt that he didnāt want to answer my questions. Came away feeling upset.
He is now referring me to a different health trust for radiotherapy and it will be 15 sessions over three weeks. I have to await an appointment with an oncologist there who will arrange it. Really hope the seroma has cleared up by then and I can get my arms above my head.
He also said that I should take Letrozole for 8 years and gave me a prescription so I could start straight away. I havenāt started yet as Iām also being referred for a Dexa scan and I want to wait to see what my bones are like now as I have osteoporosis and Letrozole can make that worse. Have already had alendronic acid (finished 5 years ago) and am on Adcal D3.
On the good side, my hair is starting to grow back more now but Iām still not brave enough yet to ditch the wigs and scarves.
We are all getting there but itās been difficult and Iām not sure how I will feel after rads. Donāt think thereās much follow up at hospital as far as I can gather. Think Iāll just be passed back to my original trust for yearly mammograms which Iām not confident about as I have lobular cancer which wasnāt found by having regular mammograms. Think itās my time to say Iām feeling a bit lost!!
Take care everyone and let us know how it goes. x
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