November 2024 chemo starters

5 in the end, after being told 15 initially

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@flower5 ooh that’s good xx it’ll be done really quick !!! Hopefully you have minimal side effects xxx

I had the same convo about abemaciclib regarding a holiday at the end of May, but the oncologist was happy for me to start afterwards. x

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I tapered off my lansoprazole - cut from 30mg to 15 mg - took that for a couple of weeks - then every other day for a bit. I think you can get reflux by stopping quickly- but it should settle as your body adjusts. :crossed_fingers: :heart:

Thanks, this is clearly what I should have done! Gaviscon will be turning a record profit from me this year!

Reflux is horrid - could you go back on a low dose and taper off? Take care

Hello ladies - Happy Easter … how is everyone ?
I’ve been away visiting my mum for a week and just got back last night x

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Hi @arty1
Hope you are ok? I am currently in Florida & my daughter just came 2nd in the All star worlds cheerleading championships! I’m so proud of her & all of the team!
I am away with 30 cheerleaders plus all the parents & coaches & it’s been difficult for me I’m not gone lie.
I still haven’t lost the pre chemo weight I put on & also am conscious of having hardly any hair & having to wear wigs as i don’t feel comfortable with anyone seeing me like this & I had only just finished radiotherapy aswell so I’m having to be very careful in the sun!
I got a bit upset earlier because as a celebration for getting silver in the worlds every cheerleader & parent decided to jump in the hotel pool but obviously I couldn’t because my baseball cap wig would have come straight off :pensive:. I felt like crying :sob:. Just want to feel like myself again but it feels like that’s never going to happen :pensive:. Just 1 of those really difficult days I guess! Sorry for the depressing negative post. I always try to stay so positive but I have found this so difficult!! Xx

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Hello @shelbylou81 and @arty1

@shelbylou81 thats amaing well done them :clap: youll be super proud!
Well done you as well for getting out there and doing all these things go help! I know what you mean about the wigs i dont like wearing mone i just feel so self conscious wearing it! I think because i know its a wig i think everyone else knows, i have 1 i wear its really blonde so i wear a black wee hat thing on top of it or else i feel it looks to wiggy.

But give yourself time about your weight and allow yourself to have a cry, i was on my way down to more end of treatment scans yesterday and had a cry on the way down for some reason when i get to the hospital i dont want to cry. But yes allow yourself to cry things will get better, its a massive thing we have just been through and its alot to process :heart: but we will get there xx

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Hello im doing well hope your alright ?

Just had my end of treatment scans and the guy said theres been an excellent response to treatment so left me feeling happy yesterday had a glass of wine and a chinese to celebrate :partying_face:
Now just waiting on surgery to find out the pathology xx

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Happy Easter. How’s your mum doing now? And how are you?

I’m ok thanks. Struggling a bit with Letrozole at the moment - trying to find a time of day when it doesn’t interfere with my sleep big time! I had my radiotherapy planning scan this week (I think I got lost in the system as when I phoned, there was a bit of panic) and start treatment on 30 April - still 15 blasts…

@shelbylou81 that’s brilliant! And that’s an amazing achievement on your part to get on a plane and go to Florida with lots of people!

I agree, @shannon27 I feel really self-conscious with my wig, but I’ve been into the office this week and I don’t think people noticed. Also, at the hospital, the radiographers were surprised when I told them it was a wig. So I think it’s probably more us than anyone else…That said, I can’t wait to get rid of it. My hair is growing back but still really short - nearly ok to go out in public, I think!

Take care everyone. It feels a bit lonely at this stage so good to hear how you are doing. xx

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Yes definitely,i cant to get rid of them. I cold capped and kept 40% of my hair but it started growing back between my last 2 cycles. But i want it to grow quicker :laughing: i lost a lot around my crown and front so once its all a decent length i can get it cut into pixie cut! Cant wait not to wear hats etc.

Whats next with your treatmeant xx

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That’s good you kept 40%! I cold capped for most of them but then gave up so kept around 20%. My hair is getting a bit bushy at the back but it’s the front I’d like to see grow a bit to cover my forehead a bit! I was a brown/blonde and it’s really quite dark so far.

I’m on to radiotherapy the week after next. What about you? xx

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Aw yes i heard it was good for the regrowth so stuck with it, but my hair naturally is strawberry blonde so i can see it coming but it just doesnt look very thick yet.

Im going for surgery on the 15th of mah double mastectomy and diep reconstruction. Then i need radiotherapy aswell cause i had 10cm of dcis then continue with the jags or kadcyla depending on the pathology xx

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Oh gosh. You are getting there! I had a mastectomy in September so the surgeon is going to chat reconstruction at our next appointment :grimacing:

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Aw wow you have a lot of dark hair :grin: im having the diep as i need the skin for my nipple area. But they seem to push the diep with me i think cause of my age xx

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What date was your last chemotherapy xx


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@shelbylou81 Fantastic News about your daughter !! Brilliant stuff ! Well done to you to for getting out to Florida … I’m impressed x
I do totally understand and resonate regards weight and hair … I look in the mirror and don’t recognise myself , I’ve put two stone on and I was already overweight so I actually look fat now and I’ve had a few good cries about it … it seems like my metabolism has literally ground to a halt and just isn’t burning anything at all …

I think it’s also all the treatment , it feels like it rips our identity away …once it’s all over … we can lose the weight … we can do it x

I had to work today and wore my wig similiar to my hair … a clever camera angle and I don’t look like a potato :rofl:

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@flojo your hair is coming back so fast !!
Sorry you are struggling on the letrozole :cold_sweat: My friend is on it and hates it … are you allowed to use magnesium balm for insomnia with the letrozole ?
Good to hear radiotherapy is soon …it will be nice to get that over and done with x

@shannon27 I’m so glad to hear the treatment response is excellent , a very well deserved Chinese and wine I think ! Your hair has done really well with the cold capping , I’m sure the crown area with grow back quickly x

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