@stevie86 and @shannon27 - I’m so glad to hear both your surgeries went well x
GA is so weird … you literally go under just like that and I always feel utterly confused when I wake up… it’s like my memories been wiped initially then I remember ! I was out about the same amount as you @stevie86 but it felt like five mins . I remember my anaesthetist asked me what I was going to do at home after my surgery … I just managed to say … “relax on and the sofa….and …. “ and that was it
@shannon27 - good grief what a mammoth time in theatre … that’s an epic surgery … it’s a good job there’s no conceit of tune with a GA … are you home yet ? X
@sam3 Hope you are well !! I had my medication meeting with my oncologist today and asked the questions needed xx my mind is a lot clearer now and I feel a lot more confident giving sbermaciclib a go xx I will be starting on the high dose because that’s just how they do it ?? But she says absolutely no problem lowering doses if I’m finding it rough and I can stop if I don’t like it xx she says in her experience it’s quite well tolerated xx
I’m also changing from tamoxifen to exemestane xx
I really hope you are feeling more positive now xxx
My mind is overloaded with all the different medications now !! Xxx
Hi, thank you so much for the update! I’m really glad you are feeling more at ease. I’m due to see oncologist on 29th to discuss. My oncologist is not very easy to talk to and she doesn’t seem to offer any sort of guidance which I find difficult.
Why are you changing from tamoxifen?
Did your oncologist say that it’s worth giving the med a go? When they say that it can be stopped if you don’t like it- is there an alternative or do you just go without. It makes me wonder what the benefits are thought to be. My oncologist said that I “don’t have to take it”. But it must be there for some reason?! I still don’t understand why we cannot start on lower dose. Did your oncologist mention hair loss? Xo
Hello everyone. I had my last radiotherapy today - didn’t ring the bell or anything and I’m not sure how I feel at the moment. I think I will miss the people I’ve met over the last three weeks. My poor body feels completely beaten up now. I’ve got medical oncology in just over a week to discuss the next trip on this journey - post treatment scans, Abemaciblib and the bone infusions. More than anything, I’d love a rest and some time to recover. But another milestone ticked off! I’m glad everyone is moving ahead a bit now. xx
Hello yes i got home yesterday its been so nice! Got a really good sleep last night! Makes a difference when you get home! Im just taking it slowly today was away for a nap, and away to bed early last night! Cant wait to get out small walks again my back is sore just with the way i have to stand!
Hope you are all well and @stevie86 how are you ? Xx
@flojo - well done on ticking off the radiotherapy x We don’t have bells on our units either and tbh , I didn’t feel like ringing a bell as it felt like temping fate if that doesn’t sound daft ?
It does feel like you can’t pause for breath on this journey doesn’t it . It’s very relentless
@shannon27 - glad you are home , you can’t beat your own bed ! I slept with a v shaped pillow for a couple of weeks after my surgery x
@sam3 I’m changing to exemestane because I’m being classed as post menopausa I’m 49!l !! I haven’t had any periods since August so she’s pretty confident I’m well in the menopause and exemestane is for post menopause where is tamoxifen is used for peri menopause xxx she said in her experience since she’s been prescribing Abemaciclib none of her patients have quit and about 10% have lower doses she’s not concerned with thinning hair it’s not common xx but this is her opinion and I’m sure each oncologist with have differing opinions !! Maybe pop into your hospital and have a conversation with your breast nurse often they explain things easier to understand and have a bit more time than the oncologist xx I find mine easier to talk to. Xxx
Thanks so much for your kind reply I’ll think I’ll wait - but am so eager to get some of my femininity back rather than bald and grey … I know it’s shallow but now the really tough part is over I just want to get on…
Thank you. My period stopped when I started chemo in November and as yet hasn’t returned. I’m 47. Not sure how long they will wait before deciding re my menopausal status
I did ask for a change of oncologist but that hasn’t happened so I’m due to see mine on 28th for a very awkward meeting I’m sure (as she knows I asked for a change). It’s good to hear you have had some reassurance I’m watching my hair grow slowly back and I just don’t want to lose it again. It probably sounds shallow but I just want to at least look more like myself, even if I don’t feel like myself!
Please let me know how you get on with the medication and I hope you cope really well and can feel relaxed around it xo
Morning ! Well
I’ve now got enough to
Actually have sticky up bed hair Personally this is not me … I’ll continue to wear my wigs until my hair is long enough and can be coloured. I feel naked without my long red hair
It’s grown really well! Mine is shorter than this and I didn’t lose it all - maybe the Letrozole. It’s such a personal side of you, isn’t it. I hate it and am also starting to hate a wig. But I think it will be months and months before it gets to a decent length…
Yes ive been sleeping with a v shape pillow and i got a wee love heart mastectomy pillow which i have been using as a head rest, didnt think i would like lying on my back but ive been good! Didnt move a muscle last night, and didnt even get up for a pee whichnis not like me !
Hope everyone has a good weekend
Ive not managed to go a walk yet still hunched over but been sitting out in the garden enjoying the sunshine reading my book xx
@sam3 that’s is deffo one of my worries xx I found the hair thing really hard !! I hate wearing wigs I find them uncomfy but I won’t go out with just short hair either !! Mines is coming in with a lot of grey so can’t wait until I can dye it xx I hope you get on better with the oncologist at your appointment xx hopefully she realises she is not communicating effectively xx and you get the answers you need xx
I’ll keep u updated when I start abemaciclib think it will be the 16 th xx tomm i have to go get a prostap injection !!
Im over needles
@flojo - I’ve always been hairy ! I was kind of hoping the hair would t come back as furiously as it has … I’m taking out shares in hair removal creams
@kimmy4 - I can’t get used to it . I love my long hair and I feel so old looking with short grey hair
@shannon27 - I hate sleeping upright in my back but I found the v cushion a godsend as I could kind of mould myself into it ! I still keep it on the bed for nights when all my joints are creaky and aching which seems worse since the chemo .
Don’t push yourself to do stuff until you are ready , the anaesthetic will take a week to leave your system completely and remember you’ve had MAJOR surgery ! X
I lost most of my arm and leg hair with the menopause and there’s no sign of it returning other than in the places I don’t want it! I also hate my short hair which is now becoming increasingly grey, even though I had very little grey hair before all this started. I would really like a fringe!! I hope you are doing alright. xx
Hi I’m not sure when I’d be due to start but I know it has to be within 12 wks of hormone therapy. Did your oncologist feel that it’s a worthwhile treatment, that it’s going to help? Mine was indifferent which doesn’t help when making a tough decision what is the injection for? I lose track with all the different treatments! Xo
cant wait to get home to get a decent sleep. It all went well its just such a major surgery it takes so long xx
my back is sore just with the way i have to stand!
I’ll think I’ll wait - but am so eager to get some of my femininity back rather than bald and grey … I know it’s shallow but now the really tough part is over I just want to get on… 
xx
I’m not sure when I’d be due to start but I know it has to be within 12 wks of hormone therapy. Did your oncologist feel that it’s a worthwhile treatment, that it’s going to help? Mine was indifferent which doesn’t help when making a tough decision 
what is the injection for? I lose track with all the different treatments! Xo