October 2017 radiotherapy

Thanks Optimissy, that’s reassuring and makes sense. I’ll mention it on Monday xx

Thanks Helena, really appreciate the reassurance xx

help anyone! my legs gave way today outside the house im so fatigued my husband had to drag me into the house and layed there in the hallway till i could get up then went to bed to sleep this kept happening after my 2 operations on a worse scale ended up in a and e twice i was like a rag doll coulnt speak and couldnt move any of my limbs went back to normal when i got rest how on earth and i gonna get through the rest of rads im very frustrated and not a happy bunny anymore can any one help im drinking more water maybe im expecting to much from my body xx

Big hugs to you little fairy, this fatique is not nice, i actually feel like a zombie, really didnt expect it to hit me like this, things can only get better i keep telling myself x

littlefairy, I think you should take it a little more seriously than that, and phone your GP.  Even if it is “only” fatigue, it shouldn’t interfere with your life to that extent.  Phone 111, as it’s weekend, and see what they say.  They are, after all, more medically qualified than any of us, and rather safe than sorry.

 

Cathy

Thankyou fairy, im so glad i took 3 weeks of to recover, i definatley need it, for me i found the operation so much better to deal with, i was up the next day feeling sore but ok,  radio seems to have different ideas, firstly i didnt imagine i would get as sore as this, the sorness gets me quite down, i havent wore a bra in a week, and i cant see me getting one on in another week, i actually rang my nurse as it was stinging underneath my boob when applying cream, i was worried i was doing the right thing as my boob has started sheading skin, im told keep applying and all normal, my insomnia has gone now, and im normally in bed by 8 as my eyes are closing, and i sleep till 8 the next day, so getting plenty of sleep now, 

the blood tests will check out if im getting aniemic apparently i hope not xx cos right now ive had anoth of hospitals xxxx little fairy is feeling grumpy :womansad: so im gonna go and have dinner and eat and all will be well with the world again give me food and im happy xxx 

Had my lumpectomy on 30th Aug and today was my first session of radiotherapy  - 1 down 19 to go.

 

Not sure if it’s just psychological or not but my left boob is definitely feeling hotter and different. I didn’t think I would feel anything until after I’ve had a few sessions?

 

I’ve been smothering my boob in the cream they gave me, I’m not sure I’ll have any left by tomorrow!

 

 

Thanks ladybowler.

 

I’ll remember to moisturise tomorrow before I leave for the hospital. 

Thankyou all for your replies, im hoping i turned the corner today, boobs not looking so aggressive today, im glad you have an appointment to get checked out fairy, im sure i read in leaflets i was given radio can cause anemia in some people, hope your feeling better soon fairy.

 

Hugs to all

 

Debbie x

Hi fairy, yes im sleeping loads, im ready for bed by 6 lol, but drag it out, i normally go between 8 and 9, i usually wake about 2, read for an hour then sleep till about 8 or 9, its totally unheard of for me, but i guess our bodies need the sleep, i wake and dont feel ive had 12 hours, still feel tierd lol, big hugs too you xxx

 

Im so glad your tests were ok xx

Hello October thread ladies :smileyhappy:

Just checking back in to report on the last two weeks after the end of rads (my last one was on the 9th).  I had 15 rads and 4 boosts, and both boob, armpit and collarbone lymph nodes were cooked.

Up to the last week of rads I had pretty much no symptoms but my boob got a bit pink.  By the last few days, my nipple was pretty red and tender to touch.  I kept drinking and moisturising, and as everybody told me, it did get sorer and redder the week after the rads finished.  Eventually, I had a nice burn under my boob, across my collarbone up to my shoulder, even a little red bit on my neck, and a couple of sore patches in my armpit.  As the week went on, I kept moisturising everything and my nipple got that sort of dead skin you get after sunburn which eventually came off and everything there felt a lot better.  Then the skin under my boob went brown and started to peel a bit.  Collar bone stayed red and rather tender, and then my op scar in my armpit opened again and started to weep a little.  Kept on with the moisturising (I was using the Lionsleaf calendula cream) and nothing got any worse but I did abandon my underwired bra and my tight sports bra for about a week and just wore a snug crop top.

By last weekend, I could see everything was calming down and started to heal. It now looks like bad sunburn at the flaky skin stage and even the armpit scar has calmed down - if anything, it looks better than it did before rads because the pinched skin look has disappeared and it is now flat but a bit pink. I’m back in my normal bra again too.

Saw my oncologist for my sign off meeting on Tuesday - that’s me finished completely now (I turned down the Zometa), I don’t need to see him again until a check up next year.  

I feel back to normal and delighted that I can say goodbye to hospital visits and treatments.  I’m just trying to work out the best approach to keeping a TN cancer away now,  popping turmeric and CoQ10 (really helps the energy levels) like it’s going out of fashion, I am Holland & Barrett’s best customer!

Hope it is helpful for those still trekking in every day for rads to hear that it does heal up and get back to normal in the time scale we were told :)  Good luck everybody and the end is in sight!

 

love Hwin x

hello ladies i now finish rads on 1st nov because i missed one they are putting an extra one on the end,my 5 boosters start tomorrow ,the last 2 days i have gone to rads on my own my own choice though and i allways let my husband know when i have arrived and when im comeing home so he doesnt worry,the booby feels like its sunburnt now red and itchy more so around nipple area around the scar trying my hardest not to scratch it good job the nipple pad is on and havent worn a bra for quite sometime now more comfortable without it,after i got home from rads  my enery levels took a nose dive drunk loads of water today and slept for hours ,it seems i spend more hours asleep than i do awake i will be so glad when i dont have to do this anymore no more hospitals no appointments no more tests ,because i felt so rough with fatigue yet again i turned some music on went to bed and cuddled up to a pillow to comfort myself which helped ,i want my life back xx 

I’m joining you with the fatigue. One more day to go and suddenly I am wiped out! Lying on sofa as soon as I get home!
Egg x

Monkey12, Charrboyles and EggG

 

Whey hey you have all finished your rads today, thats it all over no more active treatment and you get your life back again from today.  Be careful over the next couple of weeks and carry on with your regime, a special set of bells for each of you.

 

Helena xxxxx

bell.jpg bell.jpg bell.jpg 

 

 

Might be a bit ooud with al these bells ringing :slight_smile:

well done to all the ladies who have finished rads today take care ladies and take it easy an emotional day for you all,ive got 3 more left and find the fatigue the most frustrating and distressing that i cant do everything i want to do ,i just wanna be back to normal again ,i went to go shopping then i just couldnt do it im exhausted and it just comes over so quickly only cos i over did the housework i felt completly invisible to everyone was just buzzing around doing there shopping and there i was struggleing just to walk back to the car with my husband helping me ,thats when i feel so alone because people cant see that im feeling like s**t and sruggling i just wanted a big hole to open up and swallow me it makes me feel weak and useless and just cryxxxx little fairy i just wanna be like everyone else doing normal things 

Dear All, thanks for your good wishes I am indeed done now! Have been weirdly tired over last couple of days, starting to feel a bit more normal today. Was glad of extra hour with clocks going back!
Helena thanks I will keep on moisturising and try and rest!
Love to all, Egg x

hi ladies can any one help i  have       a big sore patch that has lots of little bumps under skin what is this and does it mean im gonna blister in that area has any one had this i would be very grateful for any help or advice please xxx little fairy i have got 2 boosters left but its not in this area 

Benandflo

 

Oops I am so sorry I missed ringing the bells for you yesterday so extra special bell ringing for you today.

 

Helena xxx bell.jpg

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