Mrs Fingers, good luck, I hope the wbc picks up quickly. I can imagine how you feel. It’s so frustrating that there’s nothing we can do to help it along, isn’t it?
Lou45, good luck for today. I hope it all goes to plan. Thinking of you ?
Love to all, keep warm, it’s getting colder (My head gets so cold now it doesn’t have it’s normal frizzy ringlets/curly mess covering it).
Good luck to everyone for today! Another day closer ??
Cold head sucks hey Fiona, I used to have really long thick head and never really got it when people said they get cold heads ? … I sure do now!!!
Elliesmum
Yes halfway through EC then tax to go sounds so much better if you break it down here , Emend seems to be helping I don’t feel so sick and fingers crossed haven’t vomited this time
I hope your bloods pick up for today Mrs Fingers
And 100% with you on the cold head it’s a shock even more so if the wind gets you xx
Well i went in at 9 this morning as told for picc and chemo would you believe they said it should be tomorrow it fully booked today as you can imagine i wasnt happy so had a few words with the person who told me to go today only for them to argue saying they said tomorrow i said my brain not fried that much give me some credit anyway long story short i got them to do chemo today they managed fine got to go back 12th dec for pic and treatment, so third one done i half way next one is starting the T lets see what side affects that brings on what joy ?,
Thanks fiona for thinking about me i the same think about you and all our other lovely strong ladies and how you all getting on, hope you okay, i still dont like this rollercoaster we all on still want to get off but i know we need to stay ?and ride it out together ,
As for the cold head its not nice i purchased 2 chemo sleep caps of amazon they very thin and soft when i first shaved my head i slept in one made a big diffrence and the other i would wear round house but i not to bad now as think my head getting used to it infact i find its my ears that are more cold now ?,
Stay ?, and warm dont about where you all are but here in midlands it real cold so my fire having a good blast, might even have a little kip ?,
Oh Lou, it just doesn’t seem to go well for you does it? But goid news they did the chemo today, even if you didn’t have the picc line fitted. As you say, it’s one more ticked off the list. Let’s hope you feel ok over the next few days ??
Well, day 5 of my 2nd cycle and it’s injection day but I got so freaked out I couldn’t do it so hubby’s been promoted ?
And I had to call the helpline because the vein in my hand where cannula was is tender, phlebitis apparently. No hospital visit fortunately, keep it elevated, paracetamol and steroid cream. I was healthy before chemo, now my stash of NHS condiments is growing ?
Energy levels are pretty good at the moment, did a 3 mile walk this morning and got wet ?? but at least my head and neck were dry ? I think it’s my neck more than anything that gets cold. I’ve still got a patchy downy covering that doesn’t appear to want to detach itself from my head - maybe I will get to the end of my shampoo bottle ?
What a nightmare Lou! Thanks for the nail link Georgie, that looks worth a go.
So I went in today for a 2nd blood test. Chemo nurse reckoned no chance but my neutrophils had bounced back to just under the magic 1.5 number so they decided to go ahead with FEC no 2. Big relief!
Got home to find hubby has lit a fire so big brownie points to him. Feeling toasty warm.
???
Good work getting a walk in, Fiona, especially when you’ve had some issues after chemo number 2! Hopefully the pain from the cannula subsides quickly.
So sorry to hear about your PICC line dramas, Lou. How frustrating! At least chemo was still able to go ahead. Fingers crossed the next attempt is successsful!?
Good news on the blood count picking up, Mrs fingers. I’m very impressed! You’ll need to pass on your tips for getting your neutrophils up so quickly. I’ve been feeling a bit run down and have had a mild temp (not enough to call it in, but a bit elevated) the last few days… really hoping I get the all clear today for chemo 3, which is scheduled for Friday.
I hope the side effects are tolerable and that you are all keeping warm! ???
Oh aneebel ??sorry to hear you are in casa nhs again ??sending some your way and the famous may17 ???Bloods dance ( don’t ask me why but it always works and gets the bloods up) ???Please keep ???ask your onc to change antisickness meds, have you tried azekyo (think that was the one I was on) and metrochlopromide (again not sure of spelling) but they worked fine, also your reduced dose could be another persons full load as it’s all tailored to each individual, speak to your onc about everything Sending you big hug of Hope you manage to get a bit of sleep in between the monitoring darling ???Shi xx
Sorry to hear your in hospital Aneeebel fingers crossed your out soon and able to recover at home.
Good news on the lasteay blood test for you Mrs Fingers must be such a relief for you.
Thank you the advice for the nails! Must say while I’ll be pleased to tick off fec feeling nervous about t and what it holds! But at least it means we’re getting there!
Hope you all have a positive day, I have number 3 today and have been up most the night with a cheeky monkey toddler.
Does anyone have older children, more teenagers? How are you finding they’re managing everything? I have a 14 year old boy and his finding it so hard
Sar_ah, good luck for today, I hope it all goes well ???
Aneeebel ??? I hope those blinking neutrophils are starting to perform. Stay positive, we’re all here for you ??
I had a bad day emotionally yesterday, my poor hubby was greeted with tears when he came home. It’s the realisation that there’s no turning back now, chemo has started to change us with the lack of hair etc. I’m only 2 cycles in of 6 and am dreading my next FEC, especially as my vein is still tender. This really is a pile of pooh (I can’t find the emoji) isn’t it?
You lovely ladies are amazing, so strong ?? We will beat this together ? I couldn’t do it without you all ?
Oh no aneeebel! Hope you can escape soon.
Good luck Sar_ah. My kids are a bit younger, 8&5 so they are quite matter of fact about it, probably because they don’t appreciate the full ins and outs.
Fiona, yes it is a pile of poo and the hair loss is certainly a tipping point for me. Anyway, we will come through the other side!
???
Sorry to hear some of you are having a rough time of it just wish we could get threw with no side affects or problems it is defnatley ?,
Fiona as for the emotions its not nice is it they just suddenly creep up on you dont they i am the same at least your husband there for you i dont have a partner so unfortunatly its my son that cops it but he understands and is realy good with me ?,
Sarah good luck for today, i know what you mean i had my final fec tueaday just dreading what the t brings especially coming up to xmas i have an 18 year old son and he as been great we talk about everything thats going on and wont let me do a lot runs to shops for me if i need anything,
Good luck to all who have treatment today or tomorrow hope goes well,
Stay ? everyone we will beat this together stay warm and keep them heads warm too ??
Best of luck today, Sar_ah! I will be sending good vibes your way. Tomorrow is my last FEC too. While the unknown of “T” is a bit scary, I’m pleased to be getting the final FEC out of the way. Hoping I’ll feel less unwell and sick ? after this round!?
I’m so sorry, Aneeebel, that your neutrophils are misbehaving. You really have had a rough ride so far! I agree with Shi and all of the other wonderful ladies on here; you can do this and, if a tweak is needed to the chemo or your other medication, then so be it. We are all here to help you get through it! ???
I hope today is a little better for you, Fiona. It is indeed an emotional rollercoaster - and one we can’t really get off! ? ?
Thinking of you all. Sending gentle hugs and warm thoughts! Xox ???
Hi Sarah my son is also 18. He was quite tearful at home, but I have found out about that he didn’t tell any of his friends or talk to them about me st all. My daughter, on the other hand , used her friend network well. Is it possible to get your son help through a counsellor at school? There should be someone for him to talk to. Kxx
Aneebel ???wonderful news you are home ??? let the tears out beautiful, can’t speak for everyone but they do have a habit of catching you unawares and before you know it you are blobbing and snot dripping out your nose, but it is ???it’s part of this journey of ?, speaking of ? hope botties are settling ???Shi xx
Thankyou Shi…it is ?? and scary and you’re just plodding along and the emotions come out and bite you on the butt…???
Anyway…onwards and upwards…
Thank you for always oozing positivity…you make me smile xx ??
Aneeebel I hpopenyour doing ok, it’s so hard when it just suddenly hits you and it sounds like you’ve had a pants week to say the least, my finger and toes are crossed for youvthe this week will be a better one. Totally agree with Shi we need to let the tears fall sometimes thinking of you xx
ElliesMum, how did your last FEC go? They changed my antisickness and the gave me steroids a different way which seems to help! Im finding the steroids awful, I don’t sleep for three days, anyone have any tips?
Thank you for your advice re my son ladies. This cycle (so far) he seems to be managing at home much better, we’re pretty open about what’s going on and with an unbelievable amount of pushing his getting counselling at school now! He would accept anything else. The school have been so unsupportive it makes it so much harder, his behaviour really suffers on chemo days and there ongoing way of managing this is throwing him out of classes! Three out of five classes on Thursday sorry for my rant there!! He would be unfair to say that he is not a very spirited boy! But it makes me so sad, his still just a little boy
Sar_ah how awful of the school, I’m speechless!
With the steroids I struggled during round 1, awake on and off all night…now I’ve found a groove with them. I make sure I’ve taken both doses by 12 noon (1 at breakfast, one at lunch). I then have an afternoon nap (which I was told not to do!) and I’m ready for bed any time from 9:30-11 and I sleep through. I think I was so tired during round 1 as I was only sleeping 4 hrs a day. I was probably over tired. So for me the nap has helped.
X