You havnt upset me bless you!
I’m upset for you!!
With a few things now it really is postcode lottery of what you can receive and it’s so wrong!
From injections to some hospitals not providing cold cap! it just blows my mind and it’s not fair!
@jolou you must be feeling the chemo part of your journey is slowly getting closer 
well done you!!! Keep Going you’ve got this!
i switch to EC on cycle 5 too and not gunna lie slightly nervous! 
@tigress42 with my cycle it’s slightly different as having weekly paclitax and three weekly Paclitax carbo and immunotherapy.
I would say my worst day is day three!
However i just started cycle two on wednesday and yesturday i was floored! and today still feeling urgh! but not as bad as yesturday also i’m not convinced these anti-sickness are making me feel worse so i’m trialing a today without
@rbf wow u are smashing it well done you!! I’m gutted i cant work but having it weekly is not practical also i cant be in my job as a practice nurse the infection control is just not worth it 
Anyways back to arts and crafts to entertain to my bubbas 
as they are now on half term!
Take care everyone 
xxxx
@cass2 don’t say sorry and don’t worry about upsetting anyone on here - I can’t speak for others but not sure it’s possible 
, I got given more injections after my WBC dropping I can’t believe how different areas work so completely differently surely they learn from each other?!
@tigress42 love the project!
Hello all, not posted for a while as spent a little time pretending it’s not about to happen…
Hope everyone is ok as can be today, and that at least some of you had a bit of nice autumn sunshine like I had here!
FINALLY got a date for my oncology appointment ( next Tuesday) ,after much chasing up. Will be nice to have some idea of what they are planning for me.
After reading all your stories I’m still unable to decide about this hands and feet thing (compression/ ice packs etc)
I’m scared of the neuropathy thing. Is it only a worry on certain chemo regimes or all?
I suffer from numb feet in winter when it’s cold and when I have too tight shoes. So the idea of doing something to make my feet numb in order to stop numbness seems contradictory, or is it? Although many things seem contradictory these days though, don’t they ? Making ourselves very ill in order to get well etc…
Hello @nib32 you’ve been in my boat too… firmly trying to forget all about it. The potential for peripheral neuropathy as really eaten away at me over the last few weeks after hearing I had to swap from Paxlitaxel to Abraxane, as even the consultant said will see how we go due to neuropathy side effect. Hence the Amazon order of suzzipads, and compression gloves and socks.
Read on another forum that Abraxane that is slow release so cold capping would be a waste of time, so guessing that is the same for the suzzipads. But I’m doing them anyway, and keeping them on for an hour once I’m home too (swapping to ice blocks from the freezer). I can’t put the mitten on the cannulated hand, so will be interesting to see if I develop it in one hand and not the other (if I get it). I’ve done a bit of reading in scientific papers and it down to your physiology too.
Squeezing stress balls daily was a recommendation when I had a melt down on the lady at the other end of the phone from MacMillan the other day, or anything keeping your hands busy…… I think I’ll have crocheted you all a Christmas tree by December 
Half term for me next week… so glad my husband has the week off. My daughter is in bed, been floored by a virus and throwing up/fever all week. My son is coughing and spluttering everywhere. Just hoping I’m not feeling too shitty next week… I’ll be on day 5-12 then, so they will probably be off doing outdoors things without me.
Peace and quiet for me 
Oh no your poor children and i pray nothing spreads to you!!
This juggling with germs and bugs is tough isn’t it!!
yh mine are on half term next week just an insect day today!
Hubby working so not sure itl be peace and quiet for me haaaaaa 
I’ve planned things at the start of the week when i’m hopefully feeling well before treatment again on wednesday!
Pray you stay well and ur kids get well soon and embrace the peace and quiet whilst u can! xx
@tigress42 I have stress balls too, and those Chinese temple ball things that you twirl in your hand. I got these to stop my finger joints stiffening up after stopping HRT , but have been thinking they would prob help mitigate neuropathy too.
I had my 1st EC chemo monday. Had the meds to take day 2/3 and day 4 yesterday had Pelgraz 6mg injection for my tummy.
Has anyone else had this and had side effects. Woke this morning and I feel all achy and sore upper half of my body. Anyone else experienced this? Xx
@tigress42 we can have a Team Oct set of xmas trees which we take to all our appointments until after xmas 
@kjg well done on getting your first done! I see lots of mention of people taking Clarityn to help with the pains which can be caused by the Filgrastim and Pegfilgrastim (Pelgraz being the brand name of Pegfilgrastim). The suggestion according to Chat GPT, is to take a 10mg tablet one day before the injection, and continue for 5-7 days after the injection. Clarityn is the brand name for Loratadine so you can buy cheaper versions rather than buy the Clarityn brand.
I just took my hubby out for a pint! We sat in the beer garden all wrapped up cosy and it was a little bit of normal. 🩷 I had a medicinal pint of Guinness. Soooo good to have a reminder of normal Friyayyyys. Have a lush weekend.
TC #2 on Wednesday arghhhhhh😵💫
@lumpybyebye that’s ace to find a way to have some normality within this shitstorm 
Thank you. I will look into this. 
Xxx
@emilyxxx hope you are doing ok. Your journey, op etc is different to mine - so have no first hand experience to share - just wanted to let you know you are not alone xx
This thread moves fast. I need to catch up. @lumpybyebye glad you could enjoy the normality of a beer garden pint🍻
I am on day 9 after EC and feel a lot better, climbed out of chemo hole. I have had some pain in my back and chest which i think is bone pain from the jabs. I mentioned this to my nurse at my picc flush today. This set off a chain events with me having bloods, ecg, chest xray told off and refered to CCU where i spent the whole afternoon. I have raised blood markers for a blood clot and i am being treated for a pulmonary embolism as a precaution until i can get a CT scan next week. I feel fine though and the pain has gone, i still think its bone pain in the sternum from the jabs. At home now eating chocolate to cheer me up.
Have you seen any mention of a better time of the day to do the injection? Was thinking evening so if I do get bone pain (oh the joys) hopefully I will sleep through it 
Will be getting some Loratatine tomorrow.