It’s not just me then that isn’t clear on this 
defo not just you! 
but it’s all good as long as we know what we mean ourselves
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For me I count day 1 as the day after chemo, when thinking about side effect management. But I think the unit counts day 1 as treatment day.
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Maybe if everyone here in this marvellous group refers to treatment day as Day 1, at least we’ll always know what each other is referring to
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I was told that Chemo Day is Day 1, too.
Is Wednesday always ‘chemo day’…I don’t think I’ve seen anyone say a different day of the week?
Chemo nurse told me Day 1 is the day you have chemo so my day 1 is Tuesday…
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Same as the others for me - told at the unit that chemo day is Day 1 of the cycle 
I clippered my remaining hair off last night and head was so cold I had to go to bed in a hat! 
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Oh no @rbf I’m expecting that this week - nice half term treat for the kids 
I did buy some plain black hats from Amazon which I thought would be good for bed/around the house…and ordered a new woolly hat for outdoors - thank goodness it’s winter!
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Defo a good idea to have some for round the house, I haven’t taken mine off yet, feels so draughty!! Agreed - the silver lining to this cloud is definitely that it’s winter and we can wrap up!!
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@rbf you look well cosy 
Just had my bloods taken from my port before my first chemo on Weds. I’ve been getting more stressed about it and had a couple of nightmares last night about the nurses messing up the cold capping so its clearly all playing on my mind. But having been into Oncology for the second time, I feel calmer about it all. I just want to get on with it now so the anticipation ends.
@star25 good luck with your first chemo today! Please let us know how you got on when you can xx
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Do you know it’s going ok. I didn’t know what to expect at all and it’s been ok. I’ve had all of it pushed through now and am currently defrosting from the cold cap for 90 mins.
Ask anything you want x I have been such a mess up to this.
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Great news @star25, you are on the journey now! Glad its been ok so far. How have you found the cold cap?
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It’s been fine. I had two paracetamol half an hour before. It was cold to fatty but not as bad as i expected it to be. I just had to try it and have everything crossed I think and don’t lose it all.x
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Great. Someone else said to me that the cold cap has been the worst part of the journey so far. I’m hoping I’ll fare like you with it. I’ll be taking paracetamol for sure before too
Glad you’re ok @star25 and first chemo going ok!
@Mairead_49 the anticipation is worse than the event but you can get told that a million times and it won’t make it easier! BUT you can do it, I hope Wednesday comes around quick for you xx lots of love 
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It probably was the worst part of today however it was absolutely manageable and it will be for the next 5. Honestly you are going to be fine. It’s the awful unknown that’s worst but today went well and was ok. I don’t know how I’ll feel in the next few days but equally I’ll deal with that. I don’t know what hospital you are but Derby had paxman machines. There’s a Paxman cooling group on Facebook ( American I think ) I took my own herbal essence sulphate free conditioner and the man wet my hair and applied it. I took a thick knotted headband for my forehead for after as I was very red. X
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Thanks @loupy and @star25 you are so right. I just need to get through the next 40hrs of anticipation and then I can just get on with it. I’m randomly cleaning stuff for goodness sake whilst I’m supposed to be working
@star25 yes I’ve seen the Paxman Facebook group which has been helpful. I’ve got the Faith No More Unscented conditioner to take with me as I’m very sensitive to smells and other people seem to gave struggled with the smells of conditioner with the capping.
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@Mairead_49 I spent loads of time cleaning and tidying in the run up to chemo. I think at some level it was about having control of something in my life, when you’ve little control over some other big stuff.
Hopefully you can get some good rest beforehand- far easier said than done. Exercise may help you be able to sleep?
It sounds as if you have done lots to prepare yourself, remember that you will have time after first treatment to tweak your approach/ get anything else you find you need etc.
Be gentle with yourself and try and do something you enjoy - whether that’s your favourite food, walk, spending time with a friend xxx
Thinking of you xx the anticipation is horrid, but like many of the horrid parts of this journey we are on - it will pass, it is only temporary. Breathe 
Xx
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Thanks @buggeringon xx
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I had to ring the red card number today, as the pains in my legs were awful last night, and pins and needles in my hand, feet and up my right calf 
has anyone else experienced this- it’s like restless less. If I’m moving around my joints are achy, but when I stop it’s awful (cried this afternoon from the pain) and then get the pins and needles and my heart rate goes up to 80- which is why couldn’t sleep again last night.
When I rang the number on my red card, she just kept saying well it’s a bit early to be getting pins and needles as you are only day 5 after your first cycle. Just prescribed me some more co-cosmo (which I told her hasn’t touch the pain).
Put my suzzipad mits on my knees and managed to drop off to sleep this afternoon. But it’s back now I’m awake and eating my tea. It started when I began the filgrastim injections, which I’m due to do my next one now.
Lady on the phone made me feel like I was making the pins and needles/pains in my legs and restlessness up 
she just kept saying well it’s a bit early for that. Sorry for waffling, has anyone got any advise as I’m so tired.
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