Hi, sorry to hear about all the bum pain going on. I haven’t had that but horrid indigestion, bloating and dry salty mouth. I am on day 2 of no shower, pj’s and bed rest. I have done my filgrastim injection this morning and I am trying to muster the energy to get a shower and put clothes on. Hoping to feel a bit better by chistmas but don’t want to raise my expectations to high.
We are all going to get through this together, better days will come xx
@Mairead_49 oh my goodness, I am glad someone has said it! lol so gassy!
And the pain going for a number 2 has been horrendous! I have been trying sudocream, feel like a baby having to put sudocream on.
@nib32 shards of glass is the right description! I am glad to have read all of this as don’t feel alone in it now. I thought it was just me.
Also my mouth is painful, defo been eating less today as just can’t bare the pain in my mouth and then when I need to go to the toilet. Man I hate fucking chemo!
A little tip, I smear vaseline on toilet tissue before wiping, stops friction pain!!
Thanks all for your responses, it’s definitely making me feel less alone in this. I feel like my admitting my bum issues has enabled everyone else to put their hands up - It’s a sub group - Bums Anonymous 
I felt like things were improving yesterday, but 5am this morning had me literally screaming (as quietly as I could) on the toilet as a bowel movement had formed into a less soft one. Quite a lot of blood on the wipes and tissues. It’s just bloody miserable.
Those who have struggled with this - has there been improvements once you changed to a different chemo drug? I’m hoping the change from EC to Paclitaxel will help.
For those suffering, some things that have helped me:
Hope this helps someone but if you are experiencing the same as me and have questions you don’t want to put on here, feel free to msg me.
Ugh I’m laying awake still, having been struck down with horrendous nausea allll day today, and it is not lifting at all 
this is really awful!! Taken all the meds I have here and nothing has helped at all 
@dilly have you tried covering your feet in Vaseline and then cling film over - I used to have a crack (way before chemo) on my foot and doctor told me to do this every night and it did clear up, it’s so painful though 
perhaps if you do this to the other foot too it will stop it from getting too bad?
Sorry to hear about all the bum issues 
I’m hoping I don’t get this…..off for my little Christmas present of paclitaxel no2 today….been awake since 4 with the excitement 
@rbf I’m sorry you are feeling so rough. I’m extremely thankful I haven’t had nausea so far. Have you asked for different antibiotics nausea meds? I know it can sometimes take a while to find the right medication for you individually.
@loupy are you having weekly Paclitaxel? If so, how have you found it so far? My first one is tomorrow and I’m praying it’s better than EC
Thanks @loupy, that’s a good idea x
I spoke to the unit about half hour ago and they are going to try to contact my consultant and see about switching up meds 
absolutely miserable 
@rbf hope they find something for you that works - that’s was my worse side effect on chemo it’s miserable 
@Mairead_49 I’m on two weekly paclitaxel - i would say it’s different to EC, I can’t say better or worse it’s hard to explain. I haven’t had the complete crash out that I had on EC but from the day I had it I felt hungover and that remained until day 10ish with some other side effects too - the weekly one is meant to be easier I think but by the time I learnt that it was too late to change and it would have been difficult for me to get there every week as you can’t drive as it puts you over the limit!
Hiya. I had one hell of a time in round one and I know exactly the pain you describe. I spoke to my oncologist and she prescribed me with Laxido which is helping. Tastes like wallpaper paste, but then doesn’t anything these days!
Hope it helps. x
Round 4 of EC has been brutal with the fatigue. I have been in bed for most of the last few days. Can barely sit up. I hope this gets better tomorrow. Hands, feet and mouth are sore. Cant stop crying
Oh @nastynork I’m so sorry
If you are having trouble sitting up, maybe you could call the emergency number for advice, because that doesn’t sound right x
Bless you. How has this compared to your prior rounds? EC is not easy.
@nastynork so sorry to hear this. I too had a really tough time after EC #4
I hope you feel better
The fatigue and soreness is worse than previous rounds. I know it can be cumulative but this sucks. I cant do anything. Sorry, feeling sorry for myself today. x
@nastynork you’re allowed to feel sorry for yourself
I think we put up with so much, soldier on, put on a brave face, and then sometimes it all gets too much.
I really hope you start to feel better better soon
Sending love @nastynork I’m so sorry you’re going through this. x
Dont read out loud … whisper voice. This is day 7 after #4 and I feel ok!!! Even went to the cinema today for epic Avatar. Shhhhh. Feeling optimistic.
@nastynork so sorry to hear you’re feeling so poorly - you can feel sorry for yourself it’s allowed - especially on this chat we have all been there! Sending lots of love 
@lumpybyebye love it - so pleased for you, not been to cinema in ages might take my daughter in twixmas if I feel ok!
So round 2 of paclitaxel for me yesterday - sixth session of eight chemo - I’m getting there…what a long slog though! I’ve been awake since three - think that’s the joy of intravenous steroids that should have gone in at 12 but unit was so busy my infusion didn’t start until 2.15! Apart from that all good at the moment off to pick the food shop up from M&S said it had to be ordered from there in case I was poorly - any excuse 
Lots of love to everyone xx