@Mairead_49 that’s positive to hear, thank you.
I have bald patches around the side of my head by my ears and a very obvious receding hairline across my forehead.
I can also feel sparse areas underneath the back of my head.
Eyebrows have really started to thin but annoyingly my stubborn chin hairs are still appearing! I think it would take a substance of nuclear proportions to kill those buggers 
@poptart Hair!
I started with,a pixie cut from shoulder length. Put up with scalp pain for two weeks and had a number 4 all over! Most hair thinning and loss was just before c#2. That’s when foo went to a comb over but zero hair everywhere else on my body except my hobbit toe, lol. Eyelashes and eyebrows have thinned but only 1 cycle left. I’ve been using Loreal lash serum on brows and lashes. My hair is now about an inch all over and growing! Desperate for hair dye - the grey. Fuzzy on top but new growth were it was thin / gone. Hat then cap until summer. Crowning glory it is not but a most excellent short back and sides. 
EDIT
On sale less than £10. Similar to UK lash but cheaper for our chemo budgets. 
@lumpybyebye that’s good you’ve had regrowth before the end of chemo. What drug are you on now?
My eyebrows have thinned but thankfully I had powder brows done (semi permanent) after diagnosis so they look fine. Eyelashes have thinned but I wear glasses so they’ll probably help distract from that.
Haven’t had to shave my legs for a good while although they feel stubbly. Arm hair still seems normal.
The most hair I’ve lost is from my bloody head which I’m putting through cold capping!
Hi, I’m in the December thread despite cold capping after two rounds of EC I lost so much hair on Sunday I had hubby shave the rest off! I feel relieved but now lost as to cold cap or not,I’ve two more EC then 4 paclitaxel, my paclitaxel is every two weeks so I believe long infusion times? @lumpybyebye are you cold capping or is the regrowth without?
Thanks xxx
@emilyxxx I am cold capping! Bloody sore first 14muns with valdy head but it sion passes - use a surgical cap from ward. After the initial shed it started growing again! @Mairead_49 I’m on 1 more round of Docetaxel and Cyclophosphamide along with bisphosphonate Zoleric Acid being chucked in!
Today I got called by Southampton Hospital to come next week for pre Radiation meeting to sign off on trestment. Tgey want me to start asap after chemo!!! So much for recovery window. Told me minimal break between the two makes it more effective. Quietly shitting it.
Basically, the side effects of chemo will hit with new effects of bisphosphonates along with hormone therapy and cdk starting and feck it, go on have rads as well.
Whelmed.
Kx
Interesting @lumpybyebye I have been told I have a month’s break after chemo before radiotherapy starts. I’ve already had my mastectomy though so my treatment is adjuvent to reduce future recurrence risk. If you haven’t had surgery yet it makes sense that it’s more effective to keep blasting the cancer. Get the fecker gone hey!
Thanks I will persevere on Friday for round 3 and see how it goes!
@Mairead_49 All trusts are different with their protocols. I had my surgeries in August. Healed but no feeling under my arm from Aux clearance abd my arm shoulder to elbow is either weird numb supersensitive or flashing pains, v sore.
21st Jan is the Radiation consultant. I’m requesting minimum 4 wks from last chemo 28th Jan to start active rads so 28th Feb, ish. That’ll give me the usual 3week cycle and a bonus week. I’ll have to go for scans and assessments before treatment so the plan has to be all organised and booked in. It may take 5 / 6wks. They go for sooner rather than later.
Interesting how different everyone’s plans are, so individual and dependent on trusts also!
My trust has huge delays in radiotherapy so mine isn’t expected until at least March, despite being referred for it aaaaages ago… I am a little concerned about its efficacy so far after surgery (July ‘25!) and chemo..
I didn’t cold cap through TC chemo, lost all my head hair but have some baby fluff fuzzy regrowth already 
although am very sad that my eyelashes are dropping out like there’s no tomorrow this week, the left eye is pretty much bald now and the right one not far behind 
I also had semi permanent brows done before I started chemo so they still look fine
Afternoon,
I feel utterly rubbish. Day 7 post #5TC and the GI issues are awful. Loss of appetite - trying to eat small amounts. Problem is within 5 - 10mins of eating I’m getting gastric dumping, Bristol 6 or 7 (not a 6/7 joke) I then have nausea, cramping and zero energy for hours. Stomach gurgles are awful. Then I eat something hours later and repeat. I’ve got nothing left in me. Dropped 5lbs in a few days. Not barfing and keeping hydrated but jaysus this is a tough one so far.
What to do? Desperately don’t want to call the number, definitely don’t want hospital again. Any self help ideas? I am in nadir phase of chemo round.
Bleugh.
I had awful stomach gurgles and churning , gassy bowels after last EC. I found experimenting with cutting out food groups helped. ( Tried the FODMAP thing) Cutting out lactose seemed to have almost immediate positive effect, and reintroduced everything else very quickly. I know you’re on diff chemo, but still Might be worth a try?
@lumpybyebye I had this on Docetaxel. What stopped the awful stomach cramps was roughly following the Fodmap diet for IBS. It didn’t really stop the old 6/7, although more 6 less 7, but I found I could cope with that more easily if I wasnt doubled over in pain after eating.
Interestingly, on EC no 6/7 issues, but if I eat onion or garlic, the stomach cramps return.
Hope you can find something to help, it’s so miserable. Loperimide just set everything like concrete for me, which I found worse because then I had to take senna tablets which just set everything off again in the worst way.
@nib32 thanks hun, I have a gluten and dairy free diet due to severe intolerances. Added quite a few others into the mix after histamine attack and anaphylaxis due to chemo #3. Trying to ride this out but feel so weak and wobbly even my legs are like jelly. I’ve done my obs at home - bp, pulse, oxy, temp all within normal ranges except temp is 35.6c. Trying not to panic as it is still nadir window - I’ve not been anywhere or seen anyone to catch a bug. Hoping my body is just fighting back from chemo and kicking cancer cell asses. SMOG the tummy pains. This is utter hell. I’ll try eating again later. If it isnt resolving by tomorrow I’ll ring the number.
Pants.
Kx
Oh sorry to hear that, sounds like your diet is pretty damn restricted already . Maybe things will improve tomorrow but I know you’re experienced enough at this cruel game to know when you need to call the helpline. Wishing you all the best xx
@dilly feckn docetaxel the gift that keeps giving. I knew i was feeling too smug - they reduced me to 80% after the anaphylaxis shit show. Round 4 was basically a breeze. Enter round 5 - cummulative side effects strike again. I pretty much eat low fodmap, zero allergen diet and cook fresh.
My stomach signals are all messed up so as soon as food hits digestive tract brain tells tummy to empty all out! In the past I’ve had this and it takes weeks for my tummy to sort itself out but that was without chemo cause.
Gurgling, cramping, nausea, fatigue amd just feel crap. Moan moan moan, its all about meeeee.
@lumpybyebye it’s basically just utter crap (ha!) to be endured as best we can x
Definitely call the hotline if things don’t improve. I was also able to get a phone appointment with my oncologist to go through other side effects by calling the oncology secretary and explaining the situation.
@lumpybyebye I think you are going to have to call the number, as you are getting too weak to fight this with nothing in your body. You will be losing lots of salts and fluids too, the longer you leave it the worse it’ll be, maybe they can give you some drugs for at home. I have been given: Hyoscine Butylbromide 10mg (basically bascopan) for stomach cramping, because I already suffer with IBS they wanted me to be prepared with Docetaxel and I have Loperamide Hydracloride 2mg for diarrhea.
Really hope it starts improving!
@lumpybyebye I’m so sorry, that sounds utterly miserable 
Have you tried giving your tummy a little break and just having liquids for 24 hours? Clear soup or broth - and also the meal replacement shakes can be good - the balanced ones with vitamins and a decent amount of calories to keep your strength up.
But maybe call the hotline just to check? X
@lumpybyebye sorry you are struggling again. Chemo is really putting you through the wringer hey 
After EC I was pleased when my taste improved although it wasn’t back to normal. But after 3 Abraxane, everything has tasted ‘wrong’ today. I just made a smoothie and almost threw up 
. I managed to get it down by holding my nose. I thought my taste would be better than on EC but at this point I’m not sure any food will be ok. Feckin chemo, I’ve really had enough of this shit.
@Mairead_49 have you tried milk shake supplement drinks? My husband has bought me some FUEL drinks just in case I can’t get anything down. He’s only been married to me for 26 years and hasn’t yet figured out NOTHING stops me from eating!
Hope you manage to get some food in you it’s just horrible isn’t it? xx
