Hi all
I hope you don’t mind but I was wanting to pick your brains to see if you had any thoughts/ideas about what is going on with me at the moment.
I haven’t had an especially great week (I am sure that lots of you read my moan about falling down the stairs last weekend) I have been taking quite a lot of oromorph (15 ml/day) and ibruprofen & paracetamol (although not the max dose of either of those last 2) I also have 50 microgram patches of fentanyl.
I have been feeling gradually more tired as the week progressed - i put it down to half term holidays for the kids and the increased pain meds. Then by Thursday I started feeling very itchy. My dh said that he thought the whites of my eyes were looking a bit yellow (I did ask him!).
I have liver mets and my liver function hasn’t been great over the last few months so I was worried about jaundice and liver failure. I rang the Marsden and they told me to go to a&e for blood tests
I spent a long day in a&e and the upshot of it is that my liver function tests (I think it’s specific enzymes that they look for) are all slightly better than last month (??)
My bilirubin levels are unfortunately not better, in fact they are raised (doubled) since last month
No one at the hospital seems to have any idea why the bilirubin levels should be going up when liver function tests are going down.
I am currently on exemestane (aromasin) and faslodex. I had six rounds of havalen (eribulin) which finished in January of this year.
I’m really quite scared that this is moving me closer and closer to the end. I know that it happens when you are stage iv but I really wanted to be one of the ladies that lived for many years after diagnosis and I’m getting very fearful that it’s just not going to be the case for me 
Any thoughts, suggestions advice greatly appreciated.
Cheers
Mx
Dear Tillycat sorry to hear about your fall. I also have liver mets and frequently have elevated bilirubin levels which are due to Gilbert’s syndrome a heredity disorder. I used to be a nurse and discovered this when checking all my previous blood results. My oncologist now ignores my raised bilirubin levels and is much more interested in my ALT which is more specific to the liver and shows how well it is working. Another cause of jaundice is problems with the gall bladder. Hope that this helps but am sure your oncologist and GP will investigate your elevated bilirubin levels further to establish the cause. Thinking of you.
Big hugs.
Annx